Archives for August 2014

post

My Children Are Getting Tall, But…

When I was a child, my mother regularly marked my height and my brother’s on the door frame in the kitchen. Every Christmas morning, we would stand against the frame in our stockinged feet, and she would use a ball point pen to draw a line over the tops of our heads. An initial would be added – P for my brother, K for me – along with the date. By the time I was 15, there were over a dozen blue lines on the door frame, telling the story of how and when we had grown. For years, the kitchen door frame was the only part of the house that never got painted.

I started to follow the same tradition with my kids when they were little, but it became one of those non-essential things that I just didn’t have the energy for. Things were difficult for me back then. My dad had died, my older son had been diagnosed with autism, I was experiencing post-partum depression after the birth of my younger son, we were trying to recover from a financial crisis – drawing lines on a wall just didn’t feature anywhere on my list of priorities.

I may not have my boys’ growth recorded all in one place, but I do have photographic proof that they were once little. Like this picture, taken seven years ago:

10531388_10152374985227779_3820866616266191005_o

And now the kid who once needed a chair in order to reach the counter is big enough to ride a bike. With no training wheels.

DSC_0055

And the one who was barely peeking over the counter is almost as tall as the fridge. Taller, if you count the pineapple on his head.

DSC_0184

My firstborn son’s hands are bigger than mine now. I can comfortably slip my feet into his shoes, and he is less than three inches shorter than me. My younger son is catching up rapidly. He has outgrown his shoes four times in the last year, and when he falls asleep on the couch, I can no longer pick him up and carry him to his bed. He can sprint around a 300m track faster than I can.

And yet.

They are still my babies, and they always will be. When they come stumbling into the kitchen first thing in the morning, their faces puffy from sleep, I don’t see the teenagers they will one day be, I see the newborns they once were. When they are standing in front of me with tear-streaked faces or scraped knees, I still have the ability to comfort them with a gentle touch, with a kiss, with a Band-Aid sprinkled with magic dust. I can still make them laugh by acting like a goof.

When they greet me with a smile, throw their arms around me and hold on as if they are never going to let go, my heart still explodes with love.

And that is never going to change. Because even when they are taller than me, they will still be my babies.

This is an original post by Kirsten Doyle. All photos accredited to the author.

 

post

Ice Buckets For Autism

The Reason I Run

The Reason I Run

Yesterday, I spoke about the aspects of the ALS Ice Bucket Challenge that bother me. At the same time, I acknowledged that this campaign has been wildly successful in raising funds and awareness for ALS. Although I have been nominated, I have declined to participate – not only because of the reasons stated yesterday, but because there is another cause that is nearer and dearer to my heart. I am not in any way diminishing the ALS cause, I am just saying that with my limited funds and more limited energy, I have to focus my efforts on a cause that directly impacts my family.

Every year, I participate in the Charity Challenge of the Scotiabank Toronto Waterfront half-marathon to raise funds for autism services, and this year is no different. The money I raise goes to the Geneva Centre for Autism, a wonderful organization that has provided endless support not only to my autism boy, but also to his younger brother, my husband and myself. I can say without reservation that my son’s life – all of our lives – would be very different if it weren’t for the Geneva Centre.

The thing is, though, that fundraising is hard, and it gets more difficult every year. People struggle. They have difficulty paying their bills on time and providing for their families. Life in this day and age is not easy. And the people who do have funds to donate are increasingly selective about where that money goes, and rightfully so. There have been so many stories about donated funds lining the pockets of people who are already rich.

I can give my personal assurance that money donated to the Geneva Centre for Autism does not go towards ridiculously high salaries or swanky events. It is used for things like art supplies and musical instruments for kids with autism, job skills training for those leaving school, iPads for those in need of communication assistance, and summer camps for children and youth who need help with social skills development. This is money that is used to help real children and their families. It is money that genuinely makes a difference and can change the course of a young person’s life for the better.

This year, for those who do have a few dollars to donate, I am adding an element of fun to my fundraising efforts. It is a variation of the ALS campaign, and I am calling it “Ice Buckets For Autism”. The premise is simple: for every $100 that I can raise for autism, I will dump a bucket of ice water on my head. In keeping with my concerns about using water wisely, I will dump it in such a way that it can later be used for something else.

There are no nominations and there is no stipulation as to how much each person should donate. People can simply donate if and how much they choose, and every time the hundreds digit of my fundraising total changes, I will drench myself and provide photographic and video evidence of the act.

I am hoping to be drenched many, many times.

This is an original post by Kirsten Doyle. Photo credit to the author.

post

What I Think About the Ice Bucket Challenge

Since the ALS Ice Bucket Challenge started doing the rounds, my opinion about it has gone back and forth. And back again. There are things I don’t like about the challenge, one of them being the choice between dumping ice water on your head and donating $100. The message that being cold, wet and uncomfortable is preferable to donating $100 to charity doesn’t sit well with me.

I do know, however, that many people do both: they douse themselves with ice water and they donate the $100. No-one can deny that this campaign has been extremely successful in terms of raising money and awareness. Fundraising in today’s world is such a monumental challenge. Every year I try to raise funds for autism, and while I am always grateful for the funds that I do raise, I cannot escape the fact that it is getting harder and harder every year. Simply asking people for donations is no longer effective. These days, people seem to need gimmicks in order to donate to good causes.

And that’s fine. It has me thinking that maybe I need to come up with a gimmick to help with my own fundraising efforts. However, as much as I support those who have participated in the Ice Bucket Challenge, I have to confess that I still don’t like this particular gimmick. Yes, it has raised money. Yes, it has more people Googling ALS. Both of these are good things.

But what about those of us who choose not to participate? I have watched in dismay as people with limited financial means have been nominated for the challenge, and I have watched in bitter disappointment as those people have been mocked for not taking up the challenge. I have seen people being called things like party-pooper and apathetic. People are being advised to “give up one cup of coffee a day for a couple of weeks” in order to have funds to donate. I saw a priceless Facebook post in which someone arrogantly stated, “Everyone can afford to donate something.”

You know what, though? Not everyone can afford to donate something. There are people who have to dig around in couch cushions in order to buy diapers for their children, people who are choosing to let their Internet and phone services be cut off because they can’t make the bill payments, people who stand in the grocery store counting their coins and wrestling with the choice between buying milk or bread.

Those people should not be guilted into taking part in a trend that they cannot afford, simply because everyone else is doing it. People who do have money shouldn’t feel compelled to take part. This should be a matter of choice, not of coercion or emotional blackmail. And before people start jumping on me, I do realize that those who engage in these tactics could well be in the minority. But they do exist, and the fact is that many, many people who are short on cash – and some who aren’t – are feeling guilt that they should not be feeling. I’m sure it’s not the intent of those who started this challenge, and it’s not the intent of a lot of people who pass it on, but it has been an unfortunate effect.

The Ice Bucket Challenge is problematic for another reason, which is best described in the following picture that I saw on Facebook this morning.

icebucketWhile people all over the world are dumping water on themselves – water that is essentially being wasted – children are dying of thirst. If we need a gimmick in order to donate, shouldn’t we come up with a gimmick that does not involve so much waste? Could this gimmick be tweaked in a way that raises funds for ALS and also draws attention to the plight of people who do not have access to clean water?

I am glad this campaign has been successful, and I truly applaud those who have participated and contributed to its success. All I ask is two things. First, be respectful toward those who do not take part, either because of financial hardship or simply because they choose not to. Second, if you dump water on your head, try to do it in a way that the water can be reused. Catch the water in something and use it to water your plants, or wash your car, or fill the dog’s water dish – anything that does not result in the water simply wasting away.

And whether you choose to take part in the challenge or not, take a moment to Google ALS.

This is an original post by Kirsten Doyle.

post

The Air That I Breathe – Product Review

airgenius1

Last year, I was fortunate enough to be invited to the Kaz Mom Must-Haves event here in Toronto. The event featured a number of products aimed at making the home a healthier place for everyone, particularly during the winter.

Winters are a tricky time in Canada. The weather outside is, to quote the famous song, frightful, and the process of heating our indoor spaces to a point where we can live in them removes every last vestige of moisture from the air. Our skins get dry and itchy, and cold and flu bugs travel through dry air a lot more easily. In addition, we spend more time cooped up inside with little to no natural ventilation, so we experience an accumulation of dust mites and other allergens.

At the Mom Must-Haves event I got to chat with Dr. Dave Greenberg, who had a lot of great advice to offer about keeping families healthy when conditions aren’t great. He said that there are four keys to staying healthy during the winter:

* Make sure everyone in the family washes their hands frequently, with good old-fashioned soap and water
* Use humidifiers (preferably one in each bedroom) to replace the moisture that heating takes out of the air
* Supplement regular housecleaning with air purifiers to keep dust mites and other allergens to a minimum
* If someone gets sick, prevent bugs from spreading by eliminating sharing of towels and dishes and by using a vaporizer beside the sick person’s bed

Kaz was kind enough to give me an air purifier to try out in my own home, and it definitely made the air cleaner than it might otherwise have been. I have been using it for about ten months now, through all seasons, and I absolutely love it. The Honeywell AirGenius Air Cleaner is a tower unit that stands about two feet tall and fits neatly into any corner without taking up any space at all. Mine is tucked into a small space beside a door that I wouldn’t be able to use for anything else anyway. It is highly effective in a fairly large space that includes my kitchen and living room. Not only does it keep the air clean, it is close enough to the kitchen to help reduce cooking odours that could otherwise seem overpowering.

Some of the features of this unit include the following:
* The ability to capture microscopic particles 250 times smaller than the width of a human hair
* 4 speed settings, including a super-quiet one for night-time and a super-strong one for the benefit of family members who suffer from dust allergies
* The option to automatically turn the unit off after 2-12 hours
* A night light with two intensity settings that makes the unit visible in the dark
* A pilot light that indicates when the filter needs to be cleaned
* Oscillation that can easily be turned on or off
* A filter that can be cleaned just by rinsing it under a tap – and it takes no time at all to dry

The AirGenius control panel

The AirGenius control panel

After using the AirGenius for almost a year, during which time Toronto experienced the most extreme winter in recorded history, this is what I have found:

* The incidence of colds in my family has been dramatically reduced. I think we’ve had five colds between the four of us over the last year. Considering how much time we were forced to spend indoors last year, that is impressive.
* Colds haven’t been transferred to other family members, possibly because the number of allergens in the air has been so low, and our immune systems haven’t had to fight the effects of allergies.
* Vacuuming is a lot more effective than it used to be. Previously, carpet dust kicked up by the vacuum cleaner would kind of linger in the air. Now it gets captured by the AirGenius. The air in here has a crisp, clean smell that lasts from one vacuuming to the next.
* My husband has asthma, and he never has a problem with his breathing in the living room. He sometimes notices a difference just by entering or leaving the room.

I only have two tiny quibbles with this unit. First, when it’s operating on its highest setting, it’s a little loud. Second, when it’s operating on a medium to high setting, it blows a little blast of cold air right around the level of the lower legs. The first is something that you just get used to. The second, which was only an issue because my desk is right in line with the AirGenius, was rectified simply by putting the unit at a slight angle.

All in all, I’d have to say that this device has made a big difference to me and my family. I would recommend it to anyone, especially those who suffer from allergies or respiratory ailments.

The Honeywell AirGenius air purifiers retail for approximately $250 at major retail outlets, including Target and Canadian Tire.

This is an original post by Kirsten Doyle, published in accordance with my disclosure policy. I was provided with a review unit of the Honeywell AirGenius in exchange for an honest review.

Photo credit to the author. The appearance of different models may vary slightly.

post

Robin Williams And The Tragedy Of Depression

14704529120_3ca37b3063_z

Last night, for the first time ever, I cried over a celebrity’s death. My tears had nothing to do with the loss of such an immense talent – although I have been a Robin Williams fan for decades – and everything to do with the fact that another life has been lost to mental illness.

I suspect that I am not alone. I suspect that right now, people all over the globe are relating to the drowning feeling of depression that drove Robin Williams to seek such a desperate escape. Several times since this tragic news broke, I have seen variations of one overriding question on my social media feeds: if a man with the financial resources of a celebrity could not find the help that he needed, what hope is there for the rest of us?

The truth is that while money can buy therapy, it does not buy the understanding of those around us. I started seeing my therapist four years ago, and although it has undoubtedly helped me, the benefits I have gained have been severely restricted by the stigmas and misconceptions that surround mental illness to this day. A number of conditions have to be met in order for therapy to truly work. The right therapist is one. Adequate support and understanding in your daily life is another.

It’s not to say that people don’t care – it’s just that many of them don’t understand. If I had a dollar for the number of times I’ve been told that depression is not a “real” illness, I’d had enough for an entire team of therapists.

I’ve written about the misconceptions surrounding depression before, but they are worth repeating, especially now that Robin Williams has put such a focus on it by taking his own life.

* When I am in the grip of depression, I cannot “snap out of it”. Asking someone to snap out of depression is like asking them to snap out of a heart attack.

* Depression is not to be equated with sadness. It cannot even be regarded as a severe form of sadness. Depression and sadness are two completely different things, in the same way that asthma and the common cold are two completely different things.

* Suicide is not a selfish, cowardly act. It is the act of someone who is desperate to get away from a terrible, desolate, frightening situation, and who sees no other escape route.

* Contrary to a popular Facebook meme, people with depression are not “focused on the past”, and they will not magically cure themselves by living in the present.

* Sometimes, for some people, the right medication can lead to dramatic improvements in quality of life, but it’s not for everybody. Someone who refuses medication is not being stubborn. They might be afraid, or they might have learned from experience that it doesn’t work for them.

* A person with depression is capable of smiling, laughing at jokes and having a good time with friends. If you see a picture of someone smiling, don’t say that they “can’t be that depressed”. Robin Williams himself is a perfect illustration of that.

This list is a drop in the bucket, but if we can shift peoples’ understanding on these few points, that will be a good start. If you suffer from depression, don’t be afraid to talk about it and ask for help. It’s really nothing to be ashamed of. If you know someone with depression, be there for them. One of the scariest things for a person with depression is the feeling of being alone in the world.

The death of Robin Williams is a great tragedy. It will be an even greater tragedy if we don’t learn something from it. If his death leads to greater awareness and understanding, and saves just one person from suicide – well, I think he would like that.

This is an original post by Kirsten Doyle. Photo credit: BagoGames. This picture has a creative commons attribution license.

post

Autism Is No Excuse

7544361624_382e2ba450_z

A few weeks ago, there was a story in our local community newspaper about a boy with autism who had been asked to leave a restaurant, along with his mother. When I first read the headline – Autistic boy booted from restaurant – I felt outrage on behalf of the mother and child. But when I read the story, I found my sympathies shifting to the restaurant manager.

What happened was that a mother and her son with autism were eating at a fast food restaurant, and the child started melting down over something. He was shrieking and banging on the table, and at one point he grabbed a fistful of fries and threw them. The mother made little effort to soothe the child, saying, “He has autism. There’s nothing I can do.” When the manager politely asked her to leave, she complied, but in the aftermath she made a big deal of the fact that her son had been discriminated against because of his autism. The manager made a big deal of the fact that the child had been acting in a manner that was disruptive to other diners.

Anyone who’s been reading this blog for any length of time will know that I’ve dealt with my share of autism meltdowns. I’ve been that mother whose child kicks and screams in public places. I’ve been on the receiving end of the stares and comments, and on two occasions, I have had to offer to pay grocery stores for goods that have been damaged as a result of my son’s outbursts.

But my son’s autism does not entitle him to create a situation that disrupts the activities or enjoyment of other people. When he acts out in public, it’s for one of two reasons: either he is having an autism meltdown, or he’s acting like typical bratty kid. If he’s having an autism meltdown, it’s up to me to try and soothe him, either by removing him from the situation or by finding a way to divert his attention to something else. If he’s acting like a typical bratty kid, it’s up to me to discipline him and make it clear to him that bad behaviour is not acceptable.

Either way, it’s never OK for me to use my child’s disability as an excuse to let him behave in a way that impacts other people. He may have autism, but he still has to be held to a certain standard of behaviour, just like the rest of us. That restaurant manager was not reacting to the fact that the boy had autism. He was reacting to the child’s disruptive actions and the mother’s failure to do anything.

There was a story in the news a few years back about a child with autism who was removed from a plane under similar circumstances. He was lying in the aisle having a meltdown while the flight attendants and other passengers were trying to step over and around him. All attempts to get him settled in his seat were failing, and eventually the boy and his father were taken off the plane. My Facebook feed erupted in outrage as people accused the airline of discriminating against the boy with autism.

But really, what was the airline supposed to do? Delay the flight until the meltdown was over, which could have taken hours? Take off with a boy kicking and screaming in the aisle? Allow the behaviour to continue without regard for the safety of the flight attendants or passengers? My view was very unpopular, but I believe that the airline took the only action they really could. They would have done what they did whether the child had autism or not. In fact, from what I could glean from the story, the airline actually delayed their decision to remove the child because they had been made aware of his autism.

This subject reminds me of a conversation I had many years ago, when I was still in South Africa. I was talking to a co-worker about a high-profile murder case in which the accused had been convicted and sentenced to life in prison. Evidence against this individual had been overwhelming, in terms of forensics and witness accounts. My co-worker, a black man, told me that this man had been sent to prison just because he was black. I disagreed.

“No,” I said. “He’s been sent to prison because he killed four people.”

My co-worker did not dispute the fact that the man was guilty, but he was stuck on this idea that the outcome of the trial was symptomatic of racial discrimination. But what was the alternative? Should the judge have let the criminal walk free just to prove that he – the judge – wasn’t a racist?

Should flight attendants, restaurant managers and other people endure a child screaming and throwing things in public just to prove that they don’t discriminate against people with autism?

Discrimination in any way, shape or form is wrong. I do not condone racism, gender discrimination, homophobia or any kind of bias against people with disabilities. I am big on human rights and equality. I believe that accommodations should be made for members of minorities and people with disabilities where possible – like wheelchair accessible buildings, government services in multiple languages and alternative screening processes for job applicants with autism. But I also believe that everyone has a responsibility to be considerate to those around them.

This is an original post by Kirsten Doyle. Photo credit: Dmitry Kalinin. This picture has a creative commons attribution license.

post

6 Reasons To Run The Durham Quarter Marathon

10565239_10152609991766252_109694253206829017_n

Every year, my race calendar is a combination of the old and the new. Although I like exploring new races and new challenges, there are a handful of events that I put into my calendar every year. One of these is the Durham Quarter Marathon, or DQM. This event has all of the right ingredients, like great organization, a scenic course and a great cause.

This year I was kind of bummed, because I came down with a nasty cold several days before the race. For most of the week, it looked doubtful that I would be able to run, and it and touch and go right up until the night before the race. Fortunately, though, my immune system did what it does best, and I woke up on the morning of the race feeling  just a tiny bit congested but otherwise fine.

I’ve missed races due to illness or injury before, and it’s never fun. This event in particular is one that I never want to miss (the only race that I hate missing even more is my annual autism fundraising run). Here are some reasons why I love this race so much, and why I believe all runners in the GTA need to try it out at least once.

1. DQM raises funds for a cause that I am absolutely in love with. The Refuge is a place in Oshawa that helps homeless youth. They provide meals, basic supplies, clean clothing and a place for homeless teens to go. DQM does not merely support this cause by putting logos everywhere. The organizers provide a very practical way for runners to make a real difference. Instead of getting one of those reusable shopping bags that runners already have too many of, you get the race kit in a small cardboard box, which you can then fill with supplies and return to The Refuge at a later date.

DSC_0065

2. DQM is one of the smaller events. It does not have the massive numbers of the Scotiabank Toronto Waterfront Marathon, or the Yonge Street 10K. This means two things: you don’t have to fight ridiculous crowds in order to be squeezed into your corral, and the race has a wonderful community feel. When you run DQM, you feel like you’re running with friends. That community spirit travels with you along the entire course.

3. The course is absolutely marvelous. The run starts at the Oshawa City Hall (just a block away from free covered parking), and it runs along the Oshawa Creek and the Waterfront Trail. The last little bit offers a lovely unimpeded view of the lake. It’s a net downhill course, which means that the start is at a higher elevation than the finish. There’s something in it for runners of all levels – a nice combination of ease and challenge. There are a couple of decent uphill stretches in the second half, and a lovely little downhill right at the end, so that runners can build up good momentum for a sprint to the finish line.

4. The logistics of this race are so well organized that it’s impossible not to enjoy the experience. The 6K and 7K markers may have been slightly off, but apart from that, the course was well marked. There were four aid stations along the course, spaced fairly evenly. The organizers also provide bag check facilities, and for runners needing to get back to the start area, a free shuttle bus. Not one of those old school buses that make you feel like you’re being spanked whenever you go over a bump in the road, but a nice comfy city bus.

5. There’s a great finish line vibe. This year I loved the finish line announcer. He was announcing and encouraging runners as they sprinted down the final stretch, and he managed to make everyone feel like a champion. The atmosphere was one of support and celebration. I felt a tremendous sense of collective goodwill as I wandered around the finish line area picking up my bag and getting my post-race banana.

6. I appreciate a good coincidence as much as the next person, but how could you not love a race where you can take a picture of last year’s bib and this year’s bib that looks like this? Who knows – maybe if I run this race often enough, I’ll have a nice little collection of Lucky Number 7’s.

DSC_0070

This is an original post by Kirsten Doyle. Finish line shot is credited to the organizers of DQM. Shots of the bibs and the race kit box label are credited to the author.