Archives for October 2014

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Running For Autism 2014: A Thousand Thank Yous

Today’s post is going to look a bit like a speech from the Oscars, only there’s no red carpet, I’m not wearing a ballgown accessorized with diamond jewellery, and I didn’t get a funny little trophy thing. Instead, there is the finish line of a race, a sweaty old running outfit accessorized with a space blanket, and a finisher’s medal. Just setting the scene so you can picture me as I start my speech.

<clears throat and waits for the audience hubbub to die down>

My 2014 autism run is now almost a week in the past. I have one day left of sitting on the couch doing nothing post-race recovery. The stiffness in my legs is gone, my knees have recovered, and the chafing from my sports bra is fading. Even the Ankle of Doom is feeling pretty good. I am almost ready to lace up my shoes for an easy run, and I have started thinking about my race calendar for next year.

I want to thank my mother, because people always start by thanking their mothers. And because my mom is awesome. She lives on the other side of the world, but I felt that she was part of the finish crowd cheering me on last Sunday. Thanks also to my brother, who is a loyal supporter and a great friend.

I want to thank my Dad, who was an elite runner in his youth and the first to fuel my love of running many years ago, in a previous life. Dad was a superb runner, and he always believed in me. He is no longer with us, but I still feel his presence when I run, and he was definitely with me on race day.

I want to thank the organizers of the Scotiabank Toronto Waterfront Marathon, Half-Marathon and 5K for putting on a fantastic event. Everything was great, from race kit pickup right through to the post-race food. I enjoyed almost every minute of the race, and I even made it through my troublesome 18K patch better than I ever have before. I had enough energy in reserve at the end to really belt it out in the last kilometre, and the look on my face in my race picture tells you how I was feeling as I sprinted to the finish line.

Best finish line shot ever!

Best finish line shot ever!

Thank you to the Geneva Centre for Autism, not only for being a constant source of support for my family since George was diagnosed with autism in 2007, but also for getting me off the couch and into my running shoes a little more than five years ago. It is a true honour to be affiliated with this organization that has given countless autism families the most precious of commodities: hope.

Thank you to all of the people who sponsored me. Your generous donations are going to make a real difference for so many kids. Thanks to you, children and youth with autism will be able to learn how to play musical instruments, participate in sports teams, attend social skills training, go to summer camps, communicate via iPads and much more. Opportunities are being created for my son and other kids like him, thanks to you. My appreciation for your support has no bounds.

Thank you to the runners in my life, who have always been there with words of advice and encouragement when I’ve needed it. You have celebrated with me after the good training runs this season, and you have commiserated with me when the going has been tough. You know what it’s like – the long runs on rainy days resulting in squelchy shoes, the uncomfortable chafey bits where you didn’t apply enough Body Glide, the runs that are just bad for no reason – and you always encourage me to keep going.

Thank you to all of my non-running friends, who tolerate my running-related social media postings: the race-time status updates, the moans and groans about sore muscles, the Instagram pictures of my training watch. You are kind enough to like and comment on my posts, you tag me in running-related things that you think I will like (and I do – I love all of them). Your messages of support and love last Sunday were overwhelming, and they meant the world to me.

Thank you to my husband, who holds the unenviable position of being the partner of a runner. Over the course of the season, he made sure I could get out for my long runs and races, and he tended to my aching muscles with the right combination of concern and humour. The night before the race, he sacrificed sleep so that I could rest undisturbed by children, and he got up early to make sure I got to the start line on time.

Thank you to my younger son James, my tireless supporter and cheerleader. He cheerfully saw me off for my long training runs throughout the season, and he always welcomed me back with a hug, even though I was stinky and sweaty. He is a fantastic champion for his brother’s cause: it was his idea for me to run in a cape last Sunday, to “get into the spirit for autism”. His energy is contagious, and I took a bit of it with me on my race.

The final thank you is reserved for George, my older son, my brave and amazing autism boy. George is my inspiration. He is the reason I get up early in the morning to run in the dark, the reason I do ten-mile training runs in the midsummer heat, the reason I am willing to get rain in my running shoes on wet days. George teaches me about life every single day. And when I am struggling through a run, feeling like it will never end, thoughts of George get me through. I tell myself that this kid lives with autism every hour of every day. That doesn’t stop him from being one of the most determined people I have ever encountered. If he’s not going to give up, then neither am I.

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This is an original post by Kirsten Doyle. Finish line photo credited to Marathon-Photos. Picture of runner’s wall message credited to Kirsten Doyle.

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Product Review: Peace Of Mind With TRiLOC

One of the biggest concerns of most autism parents is the safety of their kids. People with autism – both young and old – are a flight risk. They can wander away, driven by motivations known only to themselves, and end up dead or seriously injured. Autism itself does not affect a person’s natural lifespan, but statistics show that people with autism are more than twice as likely as the general population to die of accidental causes, because of their tendency to wander off and get lost.

Thanks to companies like iLOC Technologies, the world is becoming a safer place for people with autism. iLOC has created a mobile personal emergency response solution called TRiLOC, which comes in the form of a GPS tracking watch worn by the individual with autism. A parent or caregiver can then track the movements of the individual using a secure website or a Smart phone app.

The TRiLOC GPS Watch

The TRiLOC GPS Watch

Although it is somewhat bulkier, the TRiLOC has the appearance and functionality of a regular watch. Because of its size, it is designed more for adults than children, but it does come with a spacer that can be attached to the strap to make it fit more snugly on children. Even with the spacer, the TRiLOC is probably not viable for children younger than about nine, since a child with a small hand would be able to slip it off. In any case, the bulk might make it too heavy and uncomfortable for very young children.

The strap fitted with a spacer

The strap fitted with a spacer

When I was told, before receiving the TRiLOC, that the clasp on the strap is childproof, I had my doubts. My child with autism has overcome many things claiming to be childproof, including just about every babyproofing device we tried to install in our home when he was born. However, the TRiLOC definitely lives up to this claim. The clasp is difficult for a typical adult to manipulate, never mind a child with autism. Not only that, it is lockable, and a sturdy cover clips over the top of the lock. I can close and lock the clasp and feel complete confidence that my child will not be able to get it open.

A lockable clasp makes this childproof

A lockable clasp makes this childproof

Before putting the TRiLOC on my son, I wanted to first use it myself to test the functionality. I had some initial trouble using the tracking app on my phone, but the man at iLOC Technologies was extremely helpful in getting me set up. Once I was sorted out, I discovered that I can locate the TRiLOC immediately, at any time, simply by tapping the “Find Me” button.

Map zoomed out for security

Map zoomed out for security

The app can be set up to notify you of the TRiLOC’s location every 60 minutes (default standby mode), every 10 minutes, or every minute (emergency mode). Notifications can come in the form of a text message to one or more cell phones, or an email to one or more email addresses. I have my alerts set up to go to both my text messages and my inbox. Alerts are also logged in the app itself, where they stay until they are cleared.

In addition to the basic alerts, you can set up the app so that you get notified about specific events, for example, the clasp being opened or the individual falling. The alert that really excites me, though, is the overspeed alert. You tell the app what the threshold speed is, and as soon as the TRiLOC starts traveling above that speed, you get notified. You can also set up the app to immediately go into emergency mode when the overspeed alerts kick in. Then you get minute by minute notifications of where the TRiLOC is, complete with full hyperlinked GPS coordinates.

Another nifty feature is the geofence. On the app, you simply select a central point and draw a circle around it. If the TRiLOC leaves that perimetre, you get a notification. Up to four geofences can be set for one device. We have one set up around our house and another set up around my son’s school. The geofence notifications can be turned on and off as needed.

After a period of rigorous testing, the TRiLOC definitely gets my stamp of approval. Right now, we are in Phase II of the testing, which involves my son wearing it on a day to day basis. A follow-up review will be posted, in which I will describe his experiences and those of his teachers and other caregivers in using the TRiLOC, and in which I will talk about more features that haven’t been described here.

In the meantime, it should be noted that although I am describing how TRiLOC can be used for individuals with autism, it can be a lifesaving device for people with other conditions as well. If you are the caregiver for someone with any developmental or neurological disability, TRiLOC is well worth considering.

This is an original post by Kirsten Doyle, published in accordance with my disclosure policy. A TRiLOC unit was provided to the author in exchange for an honest review. All photos are credited to the author.