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Creating Stories Out Of Life

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Out of all the concerns I have about my son’s autism, the biggest is his communication impairment. He has the physical ability to talk, and he has a perfectly good vocabulary. He routinely states needs and desires using full sentences, and he even makes the occasional little joke, but the kid does not have conversations.

The reason this is such a big worry for me is that he cannot talk to me about things that happen to him during the day. If I ask him what he did at school today, he cannot tell me. If something was going on that shouldn’t be, such as bullying or inappropriate touching, he wouldn’t be able to express it. It’s not a problem now, while he’s young and under the supervision of trusted adults at all times, but he’s not always going to have that protection.

For a long time, I have been practicing the art of conversation with George. I ask him a series of questions and then reward him for giving appropriate answers. Perhaps more importantly, I expose him to conversations as much as possible so that he can learn by osmosis, the way he’s learned many of the life skills that he has acquired.

So far, I’ve had limited success with this, but I never lose hope that some day he will get it. This is a child who took nine months to learn how to point. The length of time it took was not nearly as significant as the new skill. So I don’t give up, ever.

A very recent development is that George is learning to communicate his experiences in his own way, by turning them into little stories. I first noticed this over the weekend, when we were driving home from a fun afternoon at the water park. George, who almost never utters a full sentence that is not a request, suddenly came out with a bunch of them, one after the other.

“Dad drove to the water park. George got wet. James got wet. The children got wet. Everyone got wet. Oh nooooo!”

While I thought this was absolutely phenomenal, the full significance of it went over my head at first. It was not until an incident yesterday that I realized what this could mean for George’s communication.

George has a fascination with water running out of taps, and he turns taps on as far as they will go, and then just lets them run. Usually we’re able to keep this in check, but occasionally he gets out of sight, the way kids do. He turned on a tap in the upstairs bathroom that just happened to be temporarily disconnected from the plumbing. A pile of water went into the space beneath the floor, which is also the space above the ceiling of the living room downstairs.

We didn’t know that George was turning taps on and off, but when water suddenly started gushing from the living room’s light fixture onto the carpet, we had a clue that something might be wrong.

A flurry of activity followed, like laying towels down on the living room carpet, and drilling holes in the ceiling to allow the water to drain out. While this was going on, George was hovering nearby, simultaneously nervous and excited. There was no doubt that he knew he was responsible for the chaos, and he seemed to be anxious yet oddly proud of his accomplishment.

All of a sudden, he produced another group of sentences.

“George turned on the tap. The carpet got wet. Dad stood on the ladder. Dad got cross.”

That is when it hit me that George was starting to use simple little stories to communicate events from his day, and that this could be the key to conversation that I have been searching for. I feel that I now have something to latch onto, something that I can encourage and expand on.

I am beyond excited about this. I have a feeling that we are on the cusp of some fantastic developments, and I will be listening out for more of George’s little stories.

(Photo credit: Bludgeoner86. This picture has a creative commons attribution license.)

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An Unexpected Treasure

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While I’m waiting impatiently for my coffee machine to work its magic, my son suddenly appears by my side.

“Little pig, little pig, let me in!” he says.

I know the drill. I’ve done this enough times. “Not by the hair of my chinny chin chin!” I reply.

“Then I’ll HUFF! And I’ll PUFF! And I’ll BLOW your house in!”

He draws in an enormous lungful of air and then blows mightily in my direction, while I pretend to fall backwards from the force of wind.

Like many kids with autism, my son George has never really been one for stories, but from time to time a story comes along that really captivates him. The Brown Bear, Brown Bear books fell into this category when he was younger, and he still occasionally returns to them. The current flavour of the month, though, is The Three Little Pigs. George takes great pleasure in watching YouTube videos of the story, and quite significantly for a child with autism, he likes to role play some of the scenes.

By coincidence, The Three Little Pigs was the central activity of a training course I attended last week. The course was about Agile project management, and the theory was covered on the first day. Day Two was given over to a practical application of the theory. We were divided into teams and given the task of using Agile project management practices to make a comic book depicting the story of The Three Little Pigs.

The process was fun and interesting, and definitely helped highlight the ideas behind Agile project management.

The end result was pretty much what you’d expect from a group of five IT types, none of whom can draw to save their lives. Let’s just say that none of us will be leaving our day jobs anytime soon.

Since I had played the role of “product owner” during the exercise, and since my team-mates know that I am the mother of young children, I was allowed to keep the comic book we made at the end of the training. When I got home, I put the book on my desk, and George immediately pounced on it.

“The Three Little Pigs!” he said excitedly. And he started paging through the book, reading all of the words out loud in his sweet lyrical voice. When he got to the end, he took the book to his computer, clicked onto a Three Little Pigs YouTube video, and read the book while the video was running. During dinnertime, the book was beside George’s plate on the table. At bedtime, it was taken to his bed and stashed under his pillow.

While George was sleeping, I managed to sneak the book out from under his pillow so that I could reinforce the makeshift binding that was beginning to come apart from overuse. I put the book back where I had found it, and it was there for George in the morning.

George doesn’t care that the pages aren’t all quite the same size, that the pigs look more like cats and that the wolf looks more like a horse. All he sees when he looks at the book is a treasure to be enjoyed over and over again.

The training course did a great deal for me and my professional growth.

It has done a lot more for the happiness of one child.

(Photo credit: fdecomite. This picture has a creative commons attribution license.)