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5 Fantastic Posts From Fellow Health Activists

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For today’s prompt in the Health Activist Writer’s Month Challenge, I can either promote some of my favourite health activists, or post links to some of my favourite posts written by fellow bloggers in this challenge. I have chosen to do the latter, even though it is so difficult to pick out just a few posts from among the multitude that have resonated with me. Through the other participants in the challenge, I have learned so much about health conditions that do not personally affect me directly.

Here, then, are five posts in the Health Activist Writer’s Month Challenge that have had a particular impact on me.

1) http://www.pixiecd.com/2013/04/group-therapy-for-ass-hat.html How could anyone not be drawn to a post written by someone who claims to be a former ass-hat? Here is someone who has gone through inordinate amounts of pain, and is facing it all head-on with a delightful combination of frankness and humour.

2) http://theperfectd.com/2013/04/02/hawmc-day-2-introductions/ This post, written by someone with Type 1 Diabetes as well as a hefty dose of courage, is truly educational. Most of us know, on an intellectual level, what diabetes is. But reading this post gives you a glimpse into what the life of a Type 1 Diabetic is really like.

3) http://positivityinpain.wordpress.com/2013/04/06/my-goals-for-fibro-fighterz-hawmc-day-5/ This blogger lives with Fibromyalgia, and has some pretty lofty and highly worthwhile goals. This post describes what some of those goals are. Hopefully they can become a reality.

4) http://www.conquerinspiteof.com/2013/04/thank-you-for-your-unsolicited-advice.html We all hear ridiculous myths about the things that affect us. In this post, someone with Lupus weighs in on Lupus-related myths – some of which I actually believed myself until reading this.

5) http://thatmword.com/post/47544602681/day-9-how-to-care-for-a-migraineur-101 When someone close to you is in the throes of a debilitating migraine, what do you do? Do you know how to take care of them? This post gives some great pointers.

There is another favourite, but I am going to share that with you tomorrow in the form of a guest post written by the blogger concerned. I’ll just give you one hint: it made me cry.

 

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Book Review: I Run, Therefore I Am STILL Nuts!

My sports medicine doctor once told me that runners are his least favourite patients.

“It’s nothing personal,” he was quick to add. “It’s just that rehabbing you people after an injury is impossible. You never listen to instructions, you just go out and run long before you’re ready to, and then you’re back here ten days later wondering why your injury has flared up.”

I have to admit that my doctor has a point. We have a very special kind of dedication to our sport, runners do. If our training program calls for a 20km run, then we will do a 20km run, even if the Weather Network is warning motorists not to go out because of a blizzard. We take pride in the incredulous looks we get from people when we go out in mad conditions, we wear our black toenails like badges of honour, and we are slaves to our Garmin watches.

If you can relate to this, you will love Bob Schwartz’s hilarious book, I Run, Therefore I Am STILL Nuts! The author writes about his experiences as a runner, from injuries to races, from trying to force encourage his kids to run with him to giving in and getting a dog instead. All through this book, I was nodding along knowingly and gaining little insights into the slight insanity that the partners of runners have to live with. I’m sure my husband appreciates the new-found awe with which I regard him.

You don’t even have to be a runner to appreciate this book. If you live with a runner, know a runner, or simply get frustrated with races messing up the traffic where you live, you are sure to get a kick out of reading this. The easy reading and laugh-out-loud humour are supplemented with delightfully funny artwork by B.K. Taylor.

Runners and supporters alike will get more than a good laugh out of reading this. Interspersed among the humour are little snippets of wisdom. Thanks to the book, I now know how I might be able to achieve the all-important Runner’s High if an injury prevents me from running. I have a new appreciation for the sheer simplicity of running, and for the first time I realize that runners are more than a little obsessed with the concept of time.

I also take pride in the fact that I am part of a tribe that can claim to be truly nuts.

(Review copy and image of cover kindly provided by Human Kinetics).
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My Life Is A Reality Show

Reality show material?

Today’s prompt in the National Health Blog Post Month invites writers to describe why their lives might resemble a reality show. To be honest, it’s not much of a stretch to imagine my life as a reality show, especially when you consider the kind of stuff they’re putting on TV these days. They have everything from teen pregnancy to Mafia ex-wives to pig hunting to people getting simple trivia questions horribly wrong as they attempt to not have their cars repossessed. Several months ago, there was a show – an entire hour-long time-slot – devoted to a discussion about cricket poo.

I’m not even kidding.

Something tells me that a show about my life would be infinitely more entertaining than a show about cricket poo, and if people were watching that, then my show would be an absolute hit.

Let’s take a look at the cast of characters:

The Autie

Like many kids with autism, George is a complex little fella, seemingly full of contradictions. At nine, he still needs hand-on-hand assistance to brush his teeth, and yet he would probably be able to assemble a computer in three seconds flat, reminiscent of that scene in Forrest Gump where Forrest put a rifle together in record time. George has meltdowns when you least expect it, and at times when you just know there’s going to trouble, he is the picture of serenity. Every good show needs a dose of intrigue, and with George there is plenty of that.

There is also a feel-good element in watching George. Every day the kid comes out with some action or some little phrase that demonstrates the trajectory of his learning. Anyone watching would surely celebrate every little accomplishment.

The Hyperactive Neurotypical Kid

What would a reality show be without a hefty dose of drama? With James, there is plenty of that. So much that we have to be on guard against Shakespearean troupes taking him away to be in theatrical productions. He has strong opinions, and a strong sense of what he perceives to be justice, and he’s not afraid to express that.  When I tell him to put on his pyjamas, he cries bitterly and says I’m ruining his life. He threatens to run away and says he’ll never hug me again.

Five minutes later he always hugs me. Because as much as he is a drama queen, James has a big heart and a generous spirit. Only the most hard-hearted soul would not feel utterly moved at the sight of James comforting his brother.

Besides, the kid has an imagination second to none. His mind takes him to all kinds of places, and sometimes, when he feels like telling a story, he takes the rest of us right along with him.

The Dad

My husband is so weird, he could have a reality TV show all to himself. I mean, he once deliberately got into the shower with all his clothes on. He says things that sound offensive but are actually hilarious. Like the time he said my hair makes me look like Gene Simmons, or the time he said the lunch I had made him looked like gorilla puke. He has a whacky sense of humour that would have the viewers rolling on the floor with laughter.

He would also have the female viewers swooning with his sense of romance. This is a man who approached a complete stranger in a park and told her she had beautiful eyes, who many years later proposed to that same woman in a grand gesture at her citizenship ceremony. When I was in Winnipeg on business years ago, he sent me a singer. A guy with a guitar showed up at my hotel room, and sang me a song while my husband was on the other end of the phone line.

The Mom

If it’s suspense you want, I’m your girl. I’m the one who’s always rushing around in a tearing hurry, trying to complete about 37 tasks all at the same time. I juggle so much at any given time that it’s anyone guess which one I’ll drop and what the consequences will be. Viewers will watch in slight bafflement as I take multitasking to a whole new level, and they will not be able to help sniggering as my exhaustion makes me do stupid things, like put lipstick on my lashes and mascara on my lips.

Here’s the thing, though: I may have a  lot on my plate, like special needs parenting, distance running, a full-time job, commuting, the husband’s business – but I’m happy. Yes, I have my issues with depression and anxiety (which could also have a show all of their own), but I have this weird and wonderful family to keep me going.

The Set

The reality show would be filmed in my own home, and I wouldn’t be obsessively cleaning up and putting things away before the camera crew came. This is supposed to be reality, so it would have to include the ever-growing piles of paper on my desk, and the Lego all over the floor, and the discarded clothes lying around, that I swear reproduce when I’m not looking. Viewers would get a glimpse of my kitchen sink that’s always full of dishes no matter how much cleaning up I do, the holes in the drywall from where George has banged his head during meltdowns, and the unruly pile of shoes and coats by the front door.

So I have a cast and a set, and the plot is built-in to the fabric of our daily lives.

All that’s missing is a title.

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Twitter Tuesday: #WorstHolidayStory

Today is Twitter Tuesday. This means I look for an interesting hashtag on Twitter and find some interesting tweets to go with that hashtag.

For the Twitter virgins out there, “hashtag” is really a fancy word for “conversation”. If you’re tweeting about, say, green bug-eyed monsters, you would include this in your tweet: #greenbugeyedmonsters.

Today, I came across a hashtag that is appropriate for this time of year. If you have anything to add to the list, leave me a comment!

#WorstHolidayStory:

#worstholidaystory the fact we now get in trouble for saying Merry CHRISTMAS well you know what? CHRISTMAS CHRISTMAS CHRISTMAS! (@gnomedruid)

Getting a planner for the year 1998 in 2007, and a “L” charm when your name begins with “A” #worstholidaystory (@alliegoedecke)

#worstholidaystory on Xmas stuck in the middle of nowhere in a broken car, in the freezing cold,no signal, parents roaring at each other (@MissDianaSongsz)

Me “I flew in this wedding ring from Paris! Merry Xmas!” Her “I’m sleeping w/your Dad. And I’m pregnant. Happy New Year!” #worstholidaystory (@ryanpaulgibson)

went to Swiss Chalet for Christmas Eve dinner. By the time they served us, it was Christmas #WorstHolidayStory #SaddestDinner (@paddyjane)

Some weird green creature waltzed into my house and took all my presents #WorstHolidayStory (@justinkase3)

1 yr got busy wrapping presents, forgot to put names on them, then couldn’t remember who they were for #WorstholidayStory (@cindylee137)

The Monopoly incident of 1989. Left a family shattered. The mear mention of the game still sends shivers down the spine. #worstholidaystory (@suckitstupid)

the year my mother-in-law broke her hip we spent Xmas day in the emergency room #WorstHolidayStory (@avalen1)

Santa isn’t real?!? :’o #worstholidaystory (@datkidbrandon)

#worstholidaystory frosty the puddle: the effects of global warming. (@afilardz)

worst thing,I got turkey all stuffed and put it in oven only to realize 3hrs later I forgot to turn oven ON #WorstHolidayStory (@cindylee137)

#worstholidaystory I accidentally got drunk before attending evening service at church! THE SHAME! (@naphtalionline)

Go to see parents up north and come to find out they came south at the same time, so we missed each other. #worstholidaystory (@thomasflorida)

Running over wrapped presents as they fell out of the back of the vehicle on Christmas Eve. #worstholidaystory (#superheroalo)

And finally, a poignant tweet that reminds us to be safe as we celebrate whatever holiday we are celebrating.

I lost my sister to a drunk driver 2 Christmas’s ago on Christmas Day, She would have been 23 this year! #worstholidaystory (@amymariesantee)

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The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

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The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

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For Some People It’s Not So Funny

It’s almost too easy to make fun of Harold Camping. For the second time the world has, with absolutely no fanfare whatsoever, failed to come to an end despite his predictions. He was so sure of it this time. He said that “there is no possibility that it will not happen.”

Now, I am one of the most Biblically illiterate people around. I know some basics, of course, having been educated in a girls-only Catholic school that’s short on life training and high on guilt training. The Bible story that I know best is the one where Jesus turns water into wine, but I have a vested interest in that one.

As vague about the Bible that I am, even I know that there’s some passage in there somewhere that says the Rapture will pretty much sneak up on us without warning, and that even Jesus doesn’t know when it will happen.

Why Harold Camping thinks he knows something that Jesus doesn’t is beyond me. But anyway.

Now he is saying that his date was off by five months, and that the Rapture will actually happen on October 21st, the date that was originally supposed to be the earth-turning-into-great-ball-of-fire date.

What’s he going to say come October 22nd? That he had the year wrong?

I confess that in the last week or so, I have made much mockery of all of this. On Saturday I posted a Facebook status update suggesting that everyone fail to answer their phones after 6:00 p.m., just to mess with their friends. I posted links to post-Rapture animal rescue services, and I shared Rapture-related jokes. I tweeted about what I planned to wear to the Rapture, and pondered the question of whether I would still be able to go on Facebook when it was all over.

Not that I expected to go anywhere. With all of my skepticism and mockery, if the Rapture ever does happen, the most I’ll see of God is his middle finger.

As easy as it is to poke fun, though, there is a serious side to all of this.

There are people who really and truly believed Harold Camping’s prophecy. Some of them based their entire belief systems on the idea that they would be taken to Heaven on Saturday. Some non-believers might be tempted to dismiss these people as stupid, but that’s hardly fair. I would venture to say that many of them were vulnerable, and got caught up at a time in their life when they really needed something to believe in.

Can you imagine their disappointment when nothing happened? It must have been crushing for a number of Camping’s followers. They are now in a position where they are having to re-evaluate everything they believed in, and in some cases, cope with the onset of depression and anxiety. I think it would be a fair bet to say that there will be a sharp rise in mental illness among Camping’s followers, and that is so, so sad.

What about the people who spent their life savings in the belief that they would need the money after May 21st? Some of them are retired, and they no longer have the nest eggs that they had spent years working hard to put together for their old age.

What about the pregnant lady who gave up medical school, and who now faces life as a new Mom with her chosen career thrown away?

Harold Camping and his prophecy have cost many people a lot – both financially and spiritually.

What of Harold Camping himself? Is he an arrogant opportunist who knowingly deceived his followers, or did he truly believe what he was preaching? Is he deserving of sympathy or criticism?

(Photo credit: Kelly Beall)

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Top Ten Questions I Have About Tomorrow’s Rapture

10. Will it look like something out of a Dean Koontz novel?

9. How do you decide what to wear to a Rapture?

8. Will it be aired live on CNN?

7.  As people are ascending, will they be able to post Facebook statuses and Tweets about what it’s like?

6. Is there free wireless Internet in Heaven, for people to Facebook those left behind that they’ve arrived safely?

5.  What if it’s raining? Will there be a rain day or will the Rapture go ahead no matter what the weather is like?

4.  Will all the “good” people ascend at once? Or will people with children in strollers be allowed to go first, like when they board airplanes?

3. Will it happen all at once across the globe, or will it be phased in across time zones, like ringing in the New Year?

2. When it’s all over and done with, will the earthly telephone and Internet connections remain intact, so those of us left behind can figure out who else didn’t make the cut to get into Heaven?

1. When the world wakes up completely unchanged on May 22nd, what reason will the Rapturites give for the fact that the promised event failed to materialize?

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A Friend Who Saved The Day (And My Sanity)

I met my friend Fran about fifteen years ago. We met more or less by default: my boyfriend and her boyfriend were old high school buddies. We always got along well enough, but we didn’t really become firm friends until just over two years ago, when Fran emailed me to tell me she was moving to Canada. By then both of us had long split from the boyfriends who had been responsible for us meeting in the first place.

Despite living on the other side of the country, since Fran came to Canada she has visited me in Toronto several times. During her first visit we ran a race together. I did the 10km race and Fran – running in her first race ever – did the 5km. During that same visit, she assembled an outdoor grill that I had been given and that had me stumped. This is why you have friends who can put helicopters together. Seriously. That is what Fran does for a living.

During Fran’s visits, we always seem to go through an inordinate amount of wine. Not that there’s anything wrong with that.

Most recently, Fran came to my wedding. I can safely say that if she hadn’t been there, I would have been lost. She arrived three days before the wedding, when I was roughly halfway through a week-long nervous breakdown. By this point, she had already helped immensely, having offered to play flute music at the wedding ceremony (Fran can fix helicopters and play the flute like an angel).

On the day she arrived, Fran and I went driving all over the place, picking up the guest favours, sorting out a camera for the as-yet unconfirmed photographer, buying crafty stuff to make the guest favours look pretty.

The following day, while I was running around like a chicken with its head cut off and doing frantic last-minute shopping, Fran calmly took charge of the guest favours. She spent the day wrapping them, putting ribbon around them and even adding a bit of hand-written calligraphy to finish them off. They looked gorgeous.

I have to pause at this point to give credit to my Mom. She helped with the guest favours too. Enormously. For a day and a half the two of them – Fran and my Mom – were at it, working hard to make everything look perfect. If it hadn’t been for them, I honestly don’t know what I would have done.

Fran also helped keep me from unraveling completely at the seams. During the day, she was offering practical help with all kinds of things. During the evenings, she kept me supplied with wine, good humour and great conversation.

On the day, she drove back and forth to the reception hall with her friend Corrigan, dropping off things that needed to be dropped off and helping keep everything in line.

And of course, there was the music at the ceremony. It was beautiful, it was personal, it made the ceremony complete in a way that some random organist could never have managed. The musical interlude continued at the reception, where Fran and Gerard’s cousin Liam played a wonderful set of Celtic music. They played together effortlessly, despite having met and practised together for the first time the previous day.

Then there was the photography. We had a number of people present with cameras, many of whom are very capable photographers, and Fran was one of them. She took hundreds – literally hundreds – of fantastic pictures that are a wonderful record of a perfect day.

Fran, if you’re reading this, thank you does not begin to be enough. You came through for me in so many ways at a time when I really needed it.

Next time you’re coming to town, let me know and I’ll stock up on wine.

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A Final Goodbye

One of the guests at our wedding gets a special mention today: our wonderful friend Ken, who was there with his equally wonderful wife, Jo-Anne.

I’m not sure exactly how Ken and Gerard met, but it was over thirty years ago. In years gone by, Gerard spent many Christmases with Ken and his family, and for the last several years, I myself have been on the receiving end of Ken and Jo-Anne’s kindness and hospitality. They have been great friends to us. We have shared meals and laughs with them.

Many, many laughs. I have always referred to Ken as the only guy in the world who is as weird as Gerard.

Ken and Jo-Anne’s presence at our wedding was truly a blessing. The day just wouldn’t have felt right without them. When I said goodbye to Ken that night, I had no idea that it would be for the last time.

Six days after the wedding, Ken died suddenly at his home, taken by an aneurysm.

The news has been a tremendous shock to both Gerard and myself. But among the shock is pure gratitude that Ken was there to share an amazing and special day with us. Our final memories of Ken are fine ones indeed.

May Ken rest in peace. May his wife Jo-Anne and his son Will find themselves surrounded by strength and love.

If there is such a place as heaven, it has become a very, very funny place.

Goodbye for now, Ken. Your friendship and laughter will be sorely missed.