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Autism: My Child’s Reward For My Specialness

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A story that’s trying hard to be a feel-good tale is doing the rounds on Facebook. A family that includes a special needs child was eating out at a restaurant, and the special needs child started to get a little boisterous. Mom was feeling self-conscious, knowing that her son’s behaviour might be bothering other diners, but then a waitress approached the table and said that a kind stranger was footing the bill for their meal.

So far, so good, right? As the parent of a child with autism, I am touched that someone would extend such kindness to a special needs family. But the story doesn’t end there. The waitress also handed the family a note from the stranger. The note said, “God only gives special children to special people.”

While many people are going on about how sweet and kind all of this is, I am blown away by the presumptuousness within the message. Yes, paying for the family’s meal was incredibly nice, and I have no problem with the gesture. It’s the note that I take issue with, and not only because of the implied assumption that everyone believes in God.

My son was diagnosed with autism at a time when a lot was wrong in my life. My relationship with my husband had hit a rocky patch, our finances were in complete meltdown, I was going through postpartum depression, I was struggling with the loss of my father… There was a lot going on.

During this terrible time, while I was trying to adjust to the reality of autism, someone told me that God never gives us more than we can handle. If that is true, how do you explain the fact that there are people who reach the point of being unable to cope, who feel so desperate that they decide to take their own lives? How do you account for the mothers who feel so overwhelmed and lost that they either abandon their children or surrender them to social services? What about the people who lose their homes, families and jobs because they feel that they can drown their problems in drugs or alcohol?

God only gives special children to special people?

The implication here is that autism and other disabilities are some kind of reward. What kind of God would do that?

“This person is so great and so awesome and so special that I am going to give their child a disability that slows down their speech, slows down their learning, reduces their chances of independence, and makes them scream in frustration when they cannot express themselves.”

Call me crazy, but that’s one messed-up reward system.

Here’s the reality: there’s nothing special about me. Yes, I’m a good mom. I provide my kids with the necessities of life, I shower them with love, I advocate for them, I try to instil them with confidence…

But I also get overwhelmed. I have days when I yell at them too much. Sometimes I let them watch as much TV as they want because I’m too tired and fraught to entertain them myself. Occasionally I’ll buy them junk food because I don’t want to cook. There are times when I get impatient with my son’s autistic behaviour even though it’s not his fault.

In other words, I am just like 99.99999% of other moms: I do the best I can with what I’ve got, and I accept that I will have my good parenting days and my bad parenting days. I’m not any better – or more “special” – than anyone else.

I didn’t get my child with autism as a result of God deciding that I was special. I got my child with autism through an accident of genetics.

I love my son more than life itself. Whenever I see the look absolute desperation in his eyes when he’s having a meltdown, my heart breaks for him. I ache inside when I think of the fact that he doesn’t have friends because he doesn’t know how to, and I constantly worry about whether he will be OK in the future.

I don’t believe in God, but if I did, I’m pretty sure he wouldn’t make a child go through life with a disability just because the child’s parents were “special”.

This is an original post by Kirsten Doyle.

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I Feed My Kids McDonalds, And 9 Other Confessions

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During the first two days of my firstborn child’s life, as I lay in hospital with nurses bringing me food and taking the baby to the nursery so I could get some sleep, I had daydreams about how the whole parenting thing would go. I would breastfeed for a full year, and as the baby grew older, I would raise him on a diet of nutritious foods. I would interact with him, play with him, talk to him – he would not need to watch TV. I had visions of lovingly picking him up whenever he cried, never letting him sit for long in a wet diaper, reading to him every day right from the time we brought him home…

I mean, good parenting was just common sense. How hard could it possibly be to be a model mom?

It turns out, very.

What I failed to recognize in those early weeks was that there was no way I could completely give myself over to parenting. There were going to be times when I would have to do other stuff, like laundry, vacuuming and personal hygiene. And let’s face it, isn’t parenting supposed to be at least partly about the fun stuff, like letting your kid smear chocolate cake all over his or her face?

So here are some “confessions” – and I put that word in quotes because it implies wrongdoing that I do not believe I am guilty of.

1. I feed my kids McDonalds. Not every day, obviously, but from time to time I let them eat junk food.

2. I often let my kids watch TV because it’s convenient for me. They’re good at self-regulating their TV time so I really don’t care about that “Don’t let the TV be your babysitter” thing.

3. I yell at my kids. It’s not like I’m constantly screaming, but when they drive me insane I just cannot do the Zen-type of parenting that other moms seem to be capable of.

4. I sometimes reward my kids with material things. I’m not too concerned about whether this is teaching them to value the wrong things.

5. If my kids don’t eat the meals that are put in front of them, I don’t give them an alternative meal. If they go to bed hungry, so be it.

6. I don’t play with my kids every time they ask. If I did, I would never get to sit down for a cup of coffee, write a blog post or take a shower.

7. I don’t always lead by example. I’m completely fine with my kids learning that they have to follow certain rules that do not apply to adults.

8. It’s not a frequent occurrence, but sometimes my husband and I have arguments in front of the kids. It doesn’t bother me: on the contrary, they are learning that every healthy relationship includes conflict and the resolution thereof.

9. I love my kids unconditionally, but there are times when I don’t like them very much. Frankly, they sometimes act like little jerks.

10. I sometimes lock myself in the bathroom to avoid having to share chocolate.

Do these things make me a bad mom? Or do they simply make me human? Do you have any confessions of your own to share?

(Photo credit: Kirsten Doyle)