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What I Think About the Ice Bucket Challenge

Since the ALS Ice Bucket Challenge started doing the rounds, my opinion about it has gone back and forth. And back again. There are things I don’t like about the challenge, one of them being the choice between dumping ice water on your head and donating $100. The message that being cold, wet and uncomfortable is preferable to donating $100 to charity doesn’t sit well with me.

I do know, however, that many people do both: they douse themselves with ice water and they donate the $100. No-one can deny that this campaign has been extremely successful in terms of raising money and awareness. Fundraising in today’s world is such a monumental challenge. Every year I try to raise funds for autism, and while I am always grateful for the funds that I do raise, I cannot escape the fact that it is getting harder and harder every year. Simply asking people for donations is no longer effective. These days, people seem to need gimmicks in order to donate to good causes.

And that’s fine. It has me thinking that maybe I need to come up with a gimmick to help with my own fundraising efforts. However, as much as I support those who have participated in the Ice Bucket Challenge, I have to confess that I still don’t like this particular gimmick. Yes, it has raised money. Yes, it has more people Googling ALS. Both of these are good things.

But what about those of us who choose not to participate? I have watched in dismay as people with limited financial means have been nominated for the challenge, and I have watched in bitter disappointment as those people have been mocked for not taking up the challenge. I have seen people being called things like party-pooper and apathetic. People are being advised to “give up one cup of coffee a day for a couple of weeks” in order to have funds to donate. I saw a priceless Facebook post in which someone arrogantly stated, “Everyone can afford to donate something.”

You know what, though? Not everyone can afford to donate something. There are people who have to dig around in couch cushions in order to buy diapers for their children, people who are choosing to let their Internet and phone services be cut off because they can’t make the bill payments, people who stand in the grocery store counting their coins and wrestling with the choice between buying milk or bread.

Those people should not be guilted into taking part in a trend that they cannot afford, simply because everyone else is doing it. People who do have money shouldn’t feel compelled to take part. This should be a matter of choice, not of coercion or emotional blackmail. And before people start jumping on me, I do realize that those who engage in these tactics could well be in the minority. But they do exist, and the fact is that many, many people who are short on cash – and some who aren’t – are feeling guilt that they should not be feeling. I’m sure it’s not the intent of those who started this challenge, and it’s not the intent of a lot of people who pass it on, but it has been an unfortunate effect.

The Ice Bucket Challenge is problematic for another reason, which is best described in the following picture that I saw on Facebook this morning.

icebucketWhile people all over the world are dumping water on themselves – water that is essentially being wasted – children are dying of thirst. If we need a gimmick in order to donate, shouldn’t we come up with a gimmick that does not involve so much waste? Could this gimmick be tweaked in a way that raises funds for ALS and also draws attention to the plight of people who do not have access to clean water?

I am glad this campaign has been successful, and I truly applaud those who have participated and contributed to its success. All I ask is two things. First, be respectful toward those who do not take part, either because of financial hardship or simply because they choose not to. Second, if you dump water on your head, try to do it in a way that the water can be reused. Catch the water in something and use it to water your plants, or wash your car, or fill the dog’s water dish – anything that does not result in the water simply wasting away.

And whether you choose to take part in the challenge or not, take a moment to Google ALS.

This is an original post by Kirsten Doyle.

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Starting A Snowball Effect

From time to time, I find myself asking the following question: Why am I here?

Sometimes, when I am in a particularly bleak frame of mind, this train of thought leads me straight into a downward spiral, and I then have a hell of job trying to climb back out.

Other times, though, I can ask this question and come up with an answer (or answers) that make me feel – well, good about who I am. Because, you know, I think I’m quite a nice person. Not that I’m the type to blow my own trumpet or anything.

I am here to make a difference, to help make the world a better place. If my presence on this earth changes just one life for the better, then I think that maybe I’ll have done OK. I like to think that my immediate circle – my family and my close friends – are enriched by the fact that I am in their lives.

I try to instill positive values in my kids, to set them up for happy and productive lives in which they, in turn, can have a positive influence on those around them.

I am a strong supporter and advocate for the autism community. I run a race every year to raise funds for autism services, and I try to spread awareness and acceptance for people like my beautiful boy George. I also try to ease James’ path as sibling to a child with autism, to allow him to balance care and concern for his brother with his own need for independence and identity as a human being in his own right.

As Gerard’s partner, I try to make a difference in the lives of the youth in our community. I support Gerard in his endeavours to keep teens away from a life of crime and gangsterism, to steer them into avenues where they can have a more positive outlet for their creative energy.

When someone I love needs advice or support, I try to be there for them as much as I  can. I have a genuine love and concern for my family and friends, and it gives me joy to help them through troubled times.

When a friend’s baby dies, there is very little I can do to ease the pain, apart from making sure my friend knows I am there, and offering whatever support I can. There is no way to get anything positive out of that kind of tragedy.

Or… is there?

On January 20th, I donated blood for the first time, in honour of Capt. Snuggles, an eight-month-old baby who was fighting for his life. Four days later, I wept – even sitting at my workstation where other people could see me, I openly wept – as I read the devastating news that Capt. Snuggles had slipped from this world into the next.

A couple of weeks later, I started pondering the question: if I started the chain of events, how many people could I get to donate blood, in memory of Capt. Snuggles, over a five-day period? After running my idea by Amy, the brave, brave Mom of Capt. Snuggles, and after receiving her blessing (and some really valuable advice), I am now officially launching the campaign.

The Captain Snuggles Blood Drive.

From 9:00 a.m. Eastern Time on April 4th until 8:00 p.m. Eastern Time on April 8th, I am inviting everyone who is medically eligible to roll up their sleeves and give a unit of blood in memory of Capt. Snuggles. No matter where you are geographically located, please consider going to your local blood donor clinic in the first week of April to start in motion a sequence of actions that could save someone’s life.

I am relying on word of mouth here, so I need everyone’s help. Please spread the word. Repost, reblog, tweet, talk – please do whatever you can to let the people in your life know about this drive. Let’s work together to create a snowball effect that would make actual snowballs look like lazy amateurs.

Together, let’s save lives.

Currently, there are three ways for you to sign up:

  1. Respond to the Facebook event that has been set up.
  2. Send an email to captsnugglesblooddrive@gmail.com
  3. Leave a comment on this post, but make sure there is some way for me to contact you.

If you sign up, you will receive regular news updates and information, and I will even help you find a blood donor clinic convenient to you. Once your donation has been made, I will ask you to let me know, and you will be added to what will hopefully be the giant number of people who made a giant difference in honour of an incredibly brave, tough baby.

This blood drive is not going to diminish the tragedy of Capt. Snuggles’ plight, or the grieving of his family.

What it will do, though, is this. It will allow Capt. Snuggles to live on through the good that we will do for other families who need life, who need hope.

Together, let’s see what difference we can make.