post

Garage Door Racing

From a very tender age, George has been fascinated with garage doors. Garages themselves hold little interest for him, but the doors are an endless source of interest and entertainment. Right in the beginning, when he was barely old enough to walk, he would insist on being able to watch the garage doors open and close. Understanding this, of course, was a challenge for us, since George had no functional language to speak of at that time, and could not communicate his desires. We had many, many meltdowns borne of the fact that our boy had this thing he wanted and could not ask for. We accidentally discovered the issue when someone happened to close the garage in the middle of a meltdown. As soon as the door started to move, George instantly calmed down.

George is not fond of garages that are left open. They are pointless to him. An open garage does not have a visible door for him to examine in its minutest detail, and even now, when we are at large in our neighbourhood, we have to watch George to make sure he does not take off in the direction of any open garage he happens to see. If he gets into an open garage, he starts hunting around for the mechanism with which to close it, and this can create an awkward situation for the homeowner whose garage is thus targeted.

In the last couple of years, George has been able to satisfy his garage door obsession by watching YouTube videos featuring – you guessed it – garage doors. You would be amazed at how many videos there are dedicated to this subject. Many of them are demonstrations of garage door opening systems presented by salesmen or manufacturers. That’s good enough for George: he watches the videos over and over, and gives the appearance of actually absorbing the words that are spoken by the presenters. It wouldn’t surprise me: George’s speech is not up to much, but his receptive language is actually quite good.

About six months ago the knowledge came to me that there is such a thing as Garage Door Racing. My son found it on YouTube. To participate in this unlikely activity, all you need is a double garage, and two people, each one with a garage door controller. You start with both doors open, and when the signal is given, each person presses the button on their controller. The person whose door is completely closed first, wins the race.

I know, I know.

But clearly someone enjoys it.

About two weeks ago we started a new phase of the whole garage door thing. George found a YouTube video featuring a guy cutting into a garage door with a jigsaw.  He immediately went off and gathered several long pieces of Lego. He stacked them together in a tower that I later realized was a fairly realistic emulation of a garage door. Then he found a toy jigsaw that someone had given to one of the boys. Armed with the Lego and the jigsaw, he returned to the computer and played the video again. Except this time, he copied the video by “cutting” his version of a garage door with his toy jigsaw.

Since then, he has spent many happy moments pretending to cut his door, both with and without the computer. I am encouraged by the pretend play, even if the pretending is of a somewhat unconventional nature. Gerard is encouraged because his son is showing an interest in power tools.

Today we ran into a bit of a problem. Because I have a cold and took a sick day, I was home when George’s school bus dropped him off this afternoon. He came inside, and without even taking his coat off, he ran into the living room, retrieved his toy jigsaw, and then ran back to the front door and tried to go outside. It turned out that he wanted to use his toy jigsaw on the actual garage door.

Great. That’s all we need. Already I am picturing a day when I come home to find our garage door chopped up into pieces.

(Photo credit: http://www.flickr.com/photos/dumbledad/3398173944)

post

Look At The Bridge!

We had a nice George-vs-Autism moment this afternoon while we were driving down the highway. The four of us were on our way to the tuxedo place to get Gerard’s measurements taken.

George was unusually calm: usually when we are out in the car, he insists on McDonalds, Tim Hortons, Wendy’s, or whatever fast food place happens to be closest to where we are. One thing that he definitely has no issues with is his memory – he only has to pass through a neighbourhood once for the locations of stores and restaurants to be indelibly stamped in his mind. As a result, our drives are accompanied by a running commentary. “I want McDonalds chicken burger, please, yes. I want Tim Hortons cheese bagel, please, yes. I want Baby Burger, please yes.” As we drive past a place, taking it out of the running, he starts targeting whatever place will come next.

Today, though, he was silent but alert. He was quietly observing the world as we whizzed by it, and as we approached a bridge going over the highway, he suddenly and animatedly said, “Look at the bridge! Look at the bridge!”

Parents of neurotypicals who have never been exposed to autism are probably reading this and saying, “Yeah? And?”

This is a big huge holy-crap-that’s-phenomenal deal. A completely spontaneous utterance, appropriate to the situation, made for the purposes of social communication.

It was a beautiful moment indeed.

Funny, the things that have power to bring tears to my eyes.

(Photo credit: http://www.flickr.com/photos/ell-r-brown/3815822976)

post

Mommy Is A Boy

George - laughing boy!

This week, I had to share March break parenting duties with Gerard. It did not mean much to us where James is concerned, because James still got taken to the daycare and picked up again at the usual times each day. George, who usually gets bussed to school from the therapy centre each lunchtime, had to be picked up and brought home instead, and one of us had to be around for him.

And that is how, on Tuesday and Wednesday, I found myself working from home.

It was a treat. As soon as I had dropped James off, I got to start my work early instead of sitting in public transit for over an hour. I got to spend two entire mornings at home by myself, with no distractions. I got to complete tasks that tend to get pushed to the bottom of the pile when I’m in the office, because I have to keep running to meetings. I got to go running. In SUNLIGHT!

And by the time George’s grandmother had kindly picked him up, provided him with lunch, and delivered him to me, most of my work for the day was done, and I got to spend the better part of the afternoon alone with my firstborn.

As I always tell my kids, I love them “bigger than everything”. I love it when they collaborate with each other to wrestle me to the ground and play with me. Reading bedtime stories with them at night, with one child on either side of me, brings me great joy. When I wake up in the early hours of the morning to find myself sandwiched between my sleeping boys, I think of how lucky I am to have these kids. When I am together with both of my boys, I am happy.

But you know, getting to spend one-on-one time with either of them is a treasure as well. And so I savoured those two afternoons with George, when it was just him and me. Even when I was finishing up my work for the day, he was at his computer and we were each doing our thing, in companionable silence.

On Wednesday afternoon, right after I had finished my work and packed up my work laptop, George clambered into my lap – no mean feat for a long, lanky seven-year-old – and cheerfully said, “Mommy is a boy.”

I gasped in mock horror, “Noooooooo,” I said. “Mommy is a girl!”

George let loose with his giggles.

It is worth mentioning at this point that George has the most infectious laugh I have ever heard. It is impossible to hear this kid giggle and not giggle right along with him. He is the living epitome of the phrase, “Laugh and the world laughs with you.”

So there were the two of us, giggling as if there was no tomorrow because my son had called me a boy.

When the laughing subsided, I said to George, “Mommy is a…”

“BOY!” he shouted, collapsing once more into helpless giggles.

At that, I started bouncing him up and down on my lap as I chanted, “Mommy is a girl! Mommy is a girl! Mommy is a girl!”

Very quickly, George caught on to the chanting idea, and in unison with me, he was chanting, “Mommy is a boy! Mommy is a boy! Mommy is a boy!”

This continued until George became so overcome with mirth that he slithered off my lap and actually rolled on the floor laughing.

It was a truly phenomenal moment of connection, significant in many, many ways.

George had initiated the contact.

George had demonstrated his quirky sense of humour.

George had engaged in extended communication with me for the express purpose of making a joke and having fun – in other words, for social purposes.

George had continued the interaction, and determined its direction and outcome.

And George – my beautiful, bright, FUNNY child – had made laugh so much that my face hurt.

post

Life As Seen By My BlackBerry

On days when words fail me, my BlackBerry comes through. I have gotten into the habit of taking pictures with it, because it is so convenient. I don’t always have my camera with me when Kodak Moments crop up, but I always, always have my BlackBerry.

As a result, I have a multitude of pictures stored on this trusty little device (people are always telling me that iPhones are better, but since I’m anti-Apple and refuse to own anything that starts with “i”, I am not likely to find out). And so, on days when I do not have the time or the mental wherewithal to assemble coherent strings of related words, I can rely on my library of pictures.

As I do today, as I give you this photographic offering.

Yes, it's blurry, but it's still a great pic!

Dopey and Dopier

Sign made by James: No Dogs Allowed

What's he doing with his face?

What's he doing with his face again?

George and his creation

Proof that they *can* sit together quietly!

Move over, Gordon Ramsay!

post

Wonder Woman Wannabe

I woke up early this morning and started making a list of everything I hope to accomplish today.It is a daunting list, and I have just figured out why.

My wedding day coincides with the deadline for filing tax returns.

That is why I find myself having to organize tax documents for myself and Gerard, do bookkeeping for two businesses, and prepare and file an HST return, which is a headache in itself, all while I am printing off address labels and wedding invitation reply cards, stuffing envelopes, conjuring up missing addresses from thin air, following up on people who owe me quotes, and attempting to stay sane.

At the same time, there are other things that I have promised to do today – promises that I have made either to myself or my kids.

I promised James that we could make bread. He received a real chef’s hat at a school field trip a while back, and he takes great pride in wearing it while he helps me bake (I realize that that last statement makes me sound like Martha Stewart, but in reality, my baking happens about as frequently as a lunar eclipse).

I promised George that I would make up some math worksheets for him. The kid has a love and aptitude for numbers that is just staggering, and he cannot get enough of the worksheets. He has already completed all of the spare ones I had a home, so I have to make him some more.

I promised myself that I would bid on all of the writing jobs that are in my watch list. I have worked out that I can make a fair amount of extra cash during my daily commutes, but that’s not going to happen if I don’t bid for the jobs. I will lose some, but I will hopefully win some. Who knows where this might lead?

Before I do any of this, I have to take a shower, load the dishwasher, and throw a load of laundry into the washing machine.

I have to go now. I need to look for my Insane Wonder Woman suit.

post

Spectrum Musings

Sometimes I wonder if George got his autism from me.

I don’t say that with any sense of guilt. If he did get it from me, I don’t feel bad about it. After all, I can hardly be held responsible for my genetic composition. It’s not as if I had any control over what DNA I landed up with.

I wonder about this question, though, from a purely scientific, curious point of view. Because although I’ve never been screened for it, it would not surprise me one bit if I were to learn that I am on the autism spectrum.

When I was a baby, I cried. I know, that sounds like a ridiculous statement. Of course I cried. That’s what babies do. In my case, however, I couldn’t be soothed. My poor Mom would change me, feed me, rock me, try to get me to sleep. No matter what she did, I cried relentlessly, for hours at a time, for no apparent medical reason. Mom surmised that maybe I was reacting to a feeling of  rejection after my birth mother had given me up for adoption.

Adoptions in those days were closed, and no information was exchanged between the birth mother and the adoptive parents. My Mom knew nothing about where I had come from. She told me in later years that she just assumed there was some factor she did not know about that was causing all this angst in me.

When I was a very young child, it became apparent that I had notable developmental delays. I was a very late talker, and did not show signs of functional speech until the age of five. It took me a lot longer than my peers to learn how to read (although it must be said, once I did learn, it was like a floodgate had opened, and I read everything I could get my hands on).

At the same time, I had issues with motor skills. I was uncoordinated, and stubbed my toes a lot. I did not have the strength to hold a pen, and I didn’t even know, until some species of therapist did some testing on me, that I was left-handed. My hand-eye coordinatin was nowhere and I had to be taught it while other kids seemed to just pick up on it naturally.

There are certain sensory things that I find hard to handle. Flickering lights (although, to be fair, that would probably drive most people batty). The textures of certain foods. Clothing labels have the ability to make me want to chew off my own arm in frustration. When Gerard has the TV on too loud, I actually want to scream. Hearing too many sounds from too many different sources (TV, dishwasher, telephone, whatever) invokes a feeling of intense anxiety.

When I’m stressed I rock back and forth. I find it calming, I find that it can sometimes stop the stressful feeling from escalating.

One of the most telling factors in my musings, however, is my social awkwardness. I have had this problem throughout my life. As I get more comfortable with specific people, my social ineptness becomes less apparent, and I work hard to hide overcome it in my day-to-day life.

Social gatherings can be excruciating for me. High school was just torture – I so badly wanted to fit in, but I couldn’t be social enough and my attempts came across as awkward and embarrassing. The only person at school who I felt completely comfortable with was my friend Jenny, who remains my best friend to this day.

There are certain social situations that make me feel even more uncomfortable: conflict, meeting new people, situations where I unexpectedly have to make small talk, anything to do with telephones.

Gerard has remarked several times that I seem to have a special connection with George. When he is having a meltdown, I seem to have the ability to just know what to do, to know what he needs. It can take a long time to calm him down, but in most cases, I can just know – without explaining how I know – how he needs to be spoken to, held, comforted, soothed.

And I wonder why this is.

Is it a normal motherly instinct?

Or do I, in some ways, inhabit the same world George does?

(Photo credit: http://www.flickr.com/photos/53416677@N08/4972850923)

post

Random Things That Happened Today

Today has been busy. I have had a house full of people, as most of of the wedding party came over to toss around ideas and go over to-do lists. At the same time, I have been running on no sleep as my son George seems to have developed yet another tummy bug (please, God, don’t let either of my kids end up in hospital this time).

Anyway, with all of this going on, it’s a bit difficult to put together a coherent blog post. So for today, I’m going with the random.

Things that happened today, in no particular order, are the following:

  • I woke up this morning and saw a fresh layer of snow outside. My first thought was, “Cripes, more f*cking snow.”
  • I failed to go for my run. After no sleep it would have been virtually impossible. I would have been found wandering aimlessly around the neighbourhood chanting incoherently to myself.
  • I dragged a massive pile of laundry into the laundry room and then failed to actually put it into the washing machine to wash.
  • I delegated a list of wedding planning items to the best man. He will be receiving many emails from me from this point forth.
  • I cleaned out George’s designated puke bucket several times.
  • I made a giant pot of coffee and drank most of it myself, and ended up feeling jittery, but still exhausted. Not a pleasant feeling.
  • I realized that I need stuff to put in the kids’ lunches during the week and I haven’t been to the grocery store. I decided to just wing it with what I have for the next day.
  • I realized that I since I don’t actually have the capacity to make a lot of sense right now, I should just give up today’s blog post as a bad job and try again tomorrow.

 

post

Things That Go Boing In the Night

This morning I was once again lamenting the difficulty I am having with my running these days. I had planned to get up early to go running – an actual run on the road, instead of that pesky treadmill – but because my beautiful, quirky child with autism has an autism-related sleep disorder, he woke up at three in the morning to jump on the trampoline in the living room.

I had migrated to the couch in the middle of the night, having been ousted from my bed by James, who sleeps like a starfish and pokes knees and elbows everywhere. So what this meant was that I was woken at three this morning by the sound of “boing boing boing” coming from about four feet away from my left ear.

I couldn’t go running. Not that I had any hope whatsoever of going back to sleep, but going running would have involved leaving the kids with Gerard. Leaving sleeping kids with a sleeping Dad is OK. Leaving wide-awake, ricocheting-off-the-walls kids with a sleeping Dad is not a good idea. I would have come back from my run to find Gerard bound to a totem pole with rope, with the kids running around him in circles waving sticks.

It doesn’t matter that we don’t own a totem pole. The kids are resourceful. They would have found one or made one.

As I got ready for work in a haze of exhaustion, I stared wistfully at my pile of running clothes and wondered if I would ever get to go running again. I started freaking out a little. My next race is just under a month from now, and I have a half-marathon coming up at the end of May. I have not been running long distances for a couple of months now, and I need to start training in earnest.

I want to look strong and sexy when I pass the half-marathon water station manned by shirtless firefighters. I don’t want to look as if I’m about to explode. I mean, c’mon. I know I’ll be a lawfully married woman by then, but shirtless firefighters are shirtless firefighters.

When I stopped to think about the recent dearth of road running, I took heart simply by comparing myself to the state I was in this time last year. I was in the midst of being treated for a bundle of pinched nerves and I had bronchitis. Whereas this year I have actually been running – albeit on the treadmill – on a fairly regular basis, last year I was not able to run at all from late December until late March. And I still managed to put in a fairly decent showing at a half-marathon at the end of May.

So I’m thinking I’ll be fine. I’m in reasonably good shape, better than I was this time last year.

And even when the running is difficult, all I have to do is think about why I’m doing it and who I’m doing it for.

post

Wordless Wednesday – Brothers

Someone once told me that you know an idea is good when someone steals it. I am stealing the Wordless Wednesday idea from my friend Amy. I hope she doesn’t mind and that she feels flattered!

There is something special about the bond between brothers, and for today’s post, I want to offer you some pictures of my two boys – very special brothers indeed.

Driving Lessons (2007)

Sleeping Beauties (2007)

Winter Fun! (2008)

Drinking Buddies (2008)

All Aboard Thomas The Train! (2008)

Water Play (2010)

The Greatest Love Of All (2010)

post

Wordless Wednesday – Brothers

Someone once told me that you know an idea is good when someone steals it. I am stealing the Wordless Wednesday idea from my friend Amy. I hope she doesn’t mind and that she feels flattered!

There is something special about the bond between brothers, and for today’s post, I want to offer you some pictures of my two boys – very special brothers indeed.

Driving Lessons (2007)

Sleeping Beauties (2007)

Winter Fun! (2008)

Drinking Buddies (2008)

All Aboard Thomas The Train! (2008)

Water Play (2010)

The Greatest Love Of All (2010)