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New Year Roundup

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Every time the calendar ticks over to a new year, I invite friends and family members to share moments from the year gone by, as well as their hopes for the year to come. 2014 was a year of ups and downs: some had the best year of their lives, others had the worst. Many of us were on a roller coaster with good bits and not-so-good bits.

My friend Kandita, who I met when I roomed with her at a blogging conference a couple of years ago (that was an insane weekend) started 2014 with one last name and ended it with another. She looked absolutely beautiful and radiant as she married the love of her life.

My former co-worker, carpool buddy and maid of honour Michelle moved to London, Ontario a couple of years ago. Since then, she has dealt with many personal challenges, but she has never lost her desire to help other people. This year was a big one for her. She gave up her liver disease awareness work and started focusing instead on helping homeless and underprivileged people in her city. She also got a job, ending a lengthy period of unemployment, and she saw her daughter through some challenging times.

Karyn, who lives in New Zealand, also went through some major life changes. She decided to leave a marriage that was making her unhappy, and in doing so, she has started to rediscover her inner sparkle. In one of my favourite Facebook statuses on her wall in 2014, she said that happiness has become her default state. She starts 2015 with a goal to build a happier life for herself and her three sons.

Caroline, who lives a short way outside of Toronto, went through the shock and heartbreak of unexpectedly losing a very close friend. This brought home to her that we are not indestructible. Therefore, in 2015, she wants to take time for the things that really matter in life.

Corinne lives on the other end of the city to me, and a few months ago I saw her for the first time in years. She took the leap of reopening her business this year, and she enjoyed reconnecting with a lot of people she had lost touch with. She is looking forward to a year of discovery and success in 2015.

Sara, who lives south of the border from me, has a condition called Chiari, that results in debilitating headaches. Two years ago she had surgery, and in 2014, she finally got a handle on the pain. She is hoping that in 2015 she will be well enough to move out on her own.

Bronwyn also lives in the United States, but I have known her forever, since she was a little girl in South Africa. Last year, she quit her full-time job and went to work at a summer camp. This year she intends to continue the work she has started on her self-development, by getting her weight under 200 pounds and by going back to school full-time.

Fellow Torontonian Tawnya had a mixed year. She lost her beloved grandmother, but she ran her first half-marathon. She had two bicycle accidents, but is alive thanks to the fact that she always wears a helmet. In 2015, she wants to do the Army Run again, simplify her life by getting rid of clutter, and embrace challenges and changes instead of running from them.

My cousin Gillian, who lives in the back-arse of nowhere Tasmania, has family that is scattered all over the globe. Last year, she got to be with her whole family as they celebrated her mother’s 80th birthday. Her wish for 2015 is for health and happiness for everyone.

Noella lives in Missouri and is one of the loveliest people I know. She had a bittersweet year – she had a painful disconnect with her stepchildren, and at times her bills exceeded her income. But somehow her bills got paid, she was able to put food on her table and she got a part-time job just in time for Christmas. Her year did have some high points, like a Mothers Day trip to Memphis and a fancy birthday dinner, both with her son. Her health stayed strong and she received wonderful support from family and friends. Her dream in 2015 is to go to Savannah.

Jennifer, also from the United States, worked with her husband on putting their marriage first instead of focusing solely on their children. In 2015, she wants to find full-time work, get her fitness journey back on track, and go on a couples getaway to recharge and reconnect with her husband.

Elle lives in Australia with her husband Ray. In 2014, they flew back to South Africa where Ray proudly walked his daughter down the aisle at her wedding. This year, Elle hopes to find a job that she will be happy in until retirement.

And what about me? Well, 2014 was a huge year for me. I reevaluated my running goals, and through a bittersweet process I decided to take the full marathon off my bucket list. I also made the leap into self-employment and formally registered my own business. I have high hopes for 2015: I am going to run a half-marathon in 2:15:00 or less, I am going to build on the early successes in my business, and I am going to declutter and organize my home.

What were your biggest moments of 2014? What are your hopes for 2015?

This is an original post by Kirsten Doyle, with input from the above-mentioned individuals. Photo credit: Takashi .M. This picture has a creative commons attribution license.

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2012: Moments To Remember From Around The World

When I was a kid, New Years Eve was a family occasion. We would all gather – cousins, aunts, uncles and my grandmother – to ring in the New Year together. Everyone would get sparkling wine (even us kids were allowed a token amount) and beneath the stars in the warm South African summer, we would count down to The Big Moment. As the clock stuck midnight, we would toast each other with the sparkling wine, and then we would stand in a circle, link arms and sing Auld Lang Syne.

My mom always cried during these moments, and when I asked her about it once, she answered, “I don’t know why. I just hate New Years Eve.”

As I’ve grown older, I’ve noticed a curious pattern that I suspect my mom unwittingly followed. As December 31st approaches each year, we tend to be tearfully nostalgic for the good things we are leaving behind, but in fear of the bad things we think will be carried forward.

What if we approached it the other way round? What if we decided to leave the bad stuff behind and bring the good stuff into the new year with us?

In that spirit, I recently asked people to tell me about their best moments of 2012.

Alison from Malaysia had a pretty good year as she gave birth to her second child. It doesn’t get much better than new life, does it? She describes her pregnancy as a race, and she got the best possible prize at the end of it.

Like me, Cheryl is a special needs mom living in Ontario. We share many of the same frustrations when it comes to getting services or funding for our kids. Cheryl hit a sweet spot in 2012 when she took on an insurance company and WON! She got a medication covered for her daughter, who has cerebral palsy, and she helped pave the way for thousands of other parents in a similar situation.

I can also relate to Melanie from Japan, who’s daughter has difficulty making friends. My son, who has autism, does not have any friends apart from his brother, and I know how hard it is to watch your child sitting alone in the playground simply because he doesn’t know how to make friends. Melanie had a lovely moment last year when her daughter made a new friend.

As parents, we bask in the accomplishments of our children, and Purnima from India shares her young son’s success as he played a key role in his school’s Annual Day Program.

My cousin Gillian (a.k.a. “Mug”), who lives in the back of beyond Tasmania, was given that all-too-rare commodity in 2012: the gift of time. She has a job AND a farm, and judging from some of her adventures, farm animals can sometimes be more wayward than children. So when she was able to start working four days a week instead of five, it was a welcome break for her.

(On a side note, I have a confession. Before Mug moved to Tasmania, I didn’t realize it was an actual place. I thought it was a mythical place with a mythical devil.)

Tania from Puerto Rico did a fair amount of traveling last year. When her husband had to go to Paris on business, she went with him. On the day of their arrival, they went to a live performance by their favourite band, Coldplay. Coldplay has never performed in Puerto Rico, so this was icing on the cake for Tania.

For some people, the best moments of 2012 arose from something bad. Margie from Arkansas had a great year that culminated in her obtaining a hard-earned Bachelors degree. As impressive as that was, it paled in comparison to the time she found out that her fiancee was alive and more or less in one piece after being hit by a car.

Karyn from New Zealand had one of those moments as well, when her eldest son had a surfing accident. All three of her boys handled the crisis remarkably well and made Karyn realize that she can enjoy parenting more, knowing that the groundwork has been laid.

My own year was a perfect example of good moments arising from bad events. In February, a beloved aunt died in a freak accident, and I flew to South Africa to be with family. My time there was bittersweet. There was sadness and shock as we all started the process of calibrating ourselves to a life without someone who had been very much loved. But there were also moments of joy and laughter, of peace and togetherness.

One moment in particular stands out for me.

My brother and I went to see a movie together. This in itself was a momentous occasion, not only because my brother and I hardly ever spend time together on account of living on different continents, but because it had been years since I had seen a movie made by someone other than Disney Pixar.

After the movie, we went to the rooftop bar of a nearby hotel for a drink. As we sat there talking and enjoying the last of the day’s sunlight together, I realized that this was one of those perfect moments in life – one of those moments that you want to capture and carry around with you forever.

What was your best moment of 2012? What good stuff are you bringing with you into 2013?

(Photo credit: http://www.flickr.com/photos/kevgibbo/706220224. This picture has a creative commons attribution license.)

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A Letter To My Sons

 

My boys, my heart, my life

To my dearest boys,

I was going to start this letter by telling you about the things that happened today, but it will be easy enough for you to find out if you are so inclined. Just Google today’s date – December 14, 2012 – and “Connecticut”. I am afraid that if I try to describe the events for you here, I will drown under the weight of my own sadness, and I won’t be able to tell you the stuff that you really need to know.

When you were newborn babies, I held you in my arms and promised you that I would give you the best life I possibly could. I would provide for you, support you in whatever you wanted to do and help you reach your full potential, whatever that might be. I would keep you safe and warm, and I would do everything I could to protect you from the uglier side of life.

But sometimes the uglier side of life kind of forces itself on us. People do things that are so unspeakably terrible that the effects penetrate to the deepest parts of our souls. It reminds us that sometimes we cannot protect the ones we love – sometimes we just have to do the best we can and then go on faith.

Today I feel like the luckiest mom in the world. When I got home from work today, you both came running at me, and I wrapped my arms around you and held you as close as I could. You hugged me back, kissed me on my cheek and told me you loved me. Right now, there are some parents who will never feel the warmth of their children’s hugs again.

We all spent some time romping around on my bed, telling jokes and wrestling with each other. I scolded you when you started jumping on the bed, all the while feeling immensely grateful that you are here for me to scold.

We went out to dinner, the four of us. We went to our usual restaurant, sat in our usual booth and ate the food we usually eat. We were all together – an intact, whole family. I thought of the families who have new gaps at their dinner tables and in their hearts.

As I sit here now, I am thinking about how tomorrow, I will finally get around to putting up the Christmas tree. I will be doing it with you boys, but instead of bossing you around about how to decorate the tree like I usually do, I am going to let you do it however you want.

You see, I get to decorate the Christmas tree with you. I will get to give you the Christmas presents I have bought you, unlike some families who have gifts hidden in their closets that will never be opened.

Right now as I write this, you are both in bed. You are supposed to be asleep, but one of you is trying to play with Lego quietly, and the other has a colouring book and crayons under the blankets with a flashlight. In a little while, I will go into each of your rooms and tell you to go to sleep.

While I am there, I will hug you tightly and tell you I love you.

With all my love, with all my heart, with everything I have.

Mommy

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Dear George

For the last week, I have been participating in the WEGO Health “Advocating for Another” challenge. Life got in the way of blogging over the last few days, so I am a day behind.

Yesterday’s prompt: When I was your age… – Write a letter to your child/ren starting off the with the phrase “When I was your age…” share a story of your own with them.

Dearest George,

When I was your age, I was very much like you. I had the same shyness, the same difficulty with speech, the same awkwardness around people I didn’t know. Learning was difficult for me until someone realized that I was smart but couldn’t learn in the same way as other people.

The world was a different place then, when I was an eight-year-old girl. In the late 1970’s, there was no Internet, so my parents couldn’t Google my symptoms. While diagnoses like autism existed, they were not very common, and not easy to come by unless the doctors knew exactly what they were looking for.

Throughout my childhood, I was sent for tests and assessments, but the most my parents were ever told was that I had “learning disabilities”. No-one was really sure what that even meant.

Like you, I loved books. I remember the summer I learned how to read. It was as if a door to a whole new world had opened to me. My newfound love of reading was both a relief and a source of worry to my parents. On the one hand, I could read, and this is something that everyone wants for their children. But on the other hand, the more I delved into the world of books, the more I withdrew from the world I lived in.

In spite of my rough beginnings, I turned out OK. I graduated high school, got myself a university degree and some post-graduate qualifications. I have a reasonable career, and most important of all, I have my family. You, your dad, and your brother.

You see, even though teachers and doctors didn’t really know what to do with kids like me, I was lucky enough to be part of a loving, supportive family.

My dad was always there for me to talk to, anytime I needed. He was my kindred spirit in many ways, sharing my love of reading, and later, my enthusiasm for running. He was like my rock of support, something that would never waver in the harshest of storms.

My brother and I fought like cat and dog, but in the end, we would have moved the earth for each other. God help anyone who hurt my brother’s little sister.

And my mom, your granny – she was a pillar of strength and support for me. She never doubted that I was capable of succeeding in life, and she helped steer me in the right direction. She worked tirelessly with me, making sure I was doing my homework, reading with me, being my advocate at school.

I often had conflicts with all of the members of my family. There were times when I wanted to run far, far away.

But there was never a time when I doubted that my family loved me and were there for me. When things got stormy, I always knew that the storm would pass and everything would be OK.

This is what my hope is for you. Parents and kids argue. Brothers fight. All of that is part of life. But I hope you know that no matter what, you are loved more than you could possibly know.

Please know that we are here for you, and always will be. I hope that can be at least half the mother to you that my mother was to me.

I love you always,

Mommy

(Photo from Kirsten Doyle’s archive of childhood pictures)

 

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Photographic Adventures: Indiana Road Trip

Last weekend we took a road trip to Elkhart, Indiana, to check out the jazz festival and visit a friend. To say that it was an impromptu trip would be an understatement. Roughly 24 hours after deciding to go, we were on the road. The trip was not without its challenges, but that is another blog post for another day.

Today, I want to share a few pictures that I took during the trip. I don’t claim to be a photographer, but I do enjoy trying to capture those moments during which happy memories are made.

Hitting the road

The driver should be concentrating on driving!

Happy traveler!

Driving along Hwy 401 in Toronto

Driving over the bridge into the United States

Sharing the road with a biker

 

During our picnic, James decided to seek inner peace (his words)

 

While James sought inner peace, George tried to climb a tree

 

Objects in the rear-view mirror can be really, really cool!

 

Elk riding in Elkhart, Indiana

 

Water park wars!

 

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Homecomings

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

When my kids were little – well, littler than they are now – they went to a great daycare centre a few minutes’ walk away from our house. When the weather was nice, the kids would be allowed to play outside at the end of the day while they were waiting for their parents to pick them up. When I got off the bus from work, I would walk directly to the centre, and as I approached, I would hear the sound of children laughing and playing in the outdoor play area behind the building.

There is no sound in the world that is more magical than the laughter of children. I used to treasure that part of every day – those moments in which the sounds of childhood joy floated through the air and reached my ears.

When my boys reached the age-limit of the daycare and had to leave, I knew that I would miss those precious sounds.

Now that both boys are always home by the time I get off the bus, my homecoming is quite different to what it was back then, but it is no less magical.

My husband and children, alerted to my impending arrival by a text or phone call from me, stand together at the front door, peering out of the frosted glass panels on either side. When I appear at the end of the road, my husband opens the door and releases them into our quiet street. They charge down the road towards me, running in that completely natural, unrestrained way that only children are capable of, and they launch themselves at me, giggling helplessly as I pretend to fall over backwards.

By this time, my husband is usually ambling down the road to meet me. We go for a walk around the block, all four of us holding hands. Then we turn and head back towards the house. When we’re about half a block away, we line the kids up.

On your marks!

The kids look up at us with anticipation.

Get set!

George starts to giggle and looks all around him. James, who has acquired my love of running and actually takes this seriously, looks straight ahead as he braces himself for takeoff.

GO!

And they’re off, racing each other to the house. In that moment, we are not looking at a child with autism and a child without autism. We are looking at two typical boys, being brothers.

And this is what life is all about. Love. Togetherness. Family.

(Photo credit: Kirsten Doyle)

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A House Full Of Love

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today is Guest Post Exchange Day! I am honoured to introduce you to a fellow special needs mom, who is not only an awesome blogger, but also an awesome friend. Mimi has not one, not two, but five children with special needs. That would sound daunting to anyone, but Mimi wouldn’t change her life for anything.

Hi!  I’m Mimi, mom to 5 great kids, all with special needs, but we don’t focus on that.  We focus on their achievements, their triumphs and the love that they have for each other.  Sure, they fight just like any other siblings would fight but at the end of the day the love is still there for each other.  My oldest daughter is 24 and diagnosed with PDD-NOS (a form of autism) and is an unmedicated bipolar by her choice.  My next daughter is 22 and was born with Down Syndrome, hydrocephalus, PDD-NOS and acanthosis nigricans, she’s my spit-fire child.  Next is my soon to be 16 year old daughter who was born with spastic diaparesis cerebral palsy, she also has Asperger’s Syndrome, bipolar with psychosis, anxiety disorder and an eating disorder.  Next are my two boys, my first son is 10 (11 in June) and for some unknown reason he is cognitively impaired, he too has PDD-NOS and a mood disorder.  My youngest son is 9 (10 in June) and he was born with Fetal Valproate Syndrome, static encephalopathy (due to a traumatic birth), he has PDD-NOS and a mood disorder.

Raising special needs children has its ups and downs, but I wouldn’t trade my life for anything the world has to offer me.  My children are the reason my world rotates on its axis.  Some people call me a mother polar bear because I am so protective of my children, but who else is going to protect them besides me?

My boys are the best of friends, they are great playmates for each other and I hope and pray that the bond between them stays forever.  It’s similar to the bond between my 2 oldest daughters.  They are close because when they were young girls, I was a single parent by my choice, so it was just us 3 girls against the world.  Until I met my husband in 1994, Bethany was 6 and Lauryn was 4 and Jon has been their daddy ever since.

What entertains my kids?  Different things…  My boys are video gamers with their dad, they each have either their PSP’s or PSP Go’s or in Jons case his PSP Vita, but they all three will gang up on the bed and be gaming, ignoring everything else that’s going on, whereas Maurra my (almost) 16 yr old loves doing research on various things, which is very common for children diagnosed with Asperger’s Syndrome, right now she’s focusing on historical events.  Lauryn is crazy for Justin Bieber and loves to watch horror shows in her bedroom.  Bethany is my crazy football fan – well I’m pretty crazy for our Green Bay Packers also, so we tend to watch football together and we DVR the games so we can watch them through the week.

Our social outings look a little different than most.  First of all, my 3 youngest kids can’t handle car rides very well, so our trips have to be short in nature, and there has to be a reward at the end of the trip.  Lauryn enjoys going to her adult day program 4 days a week, but that’s about the extent of her traveling comfort.  She loves to dance in the truck which is fun and the cars around us seem to be her audience.  Bethany (my oldest) and I tend to do mother-daughter outings or she will go with me if I have to run errands.  It’s hard to break things up so the kids can handle everything, but in the end it’s for the best for them.

The boys are getting ready to start their 3rd year playing Miracle League baseball, which is baseball strictly for children who are disabled.  I volunteer my time with the league as the team coordinator and absolutely love watching all of the kids play the game.

Like I said before, I love having special needs children, and now we are looking into adopting a special needs child because there is more room in my heart for more children, but I can’t have them myself anymore.  So we are looking into a special needs adoption.  I hope it all works out for the best.

Well, thank you for letting me share my family with you.  Have a great day!

And thank you, Mimi, for sharing your family with us!

Mimi has a great blog at Wife… Mom… Writer… All Blessings. She can also be found on Twitter @Gigi_S.

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The Transience Of Life

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

As I write this, I am sitting on the subway (having miraculously gotten a seat with enough room to type) on my way to the memorial service for my friend Margaret, who died last week.

Her passing was a big shock to me and my husband. We knew that she had been sick, but we had no idea that her illness was life-threatening. We did not know that she had cancer.

As I prepare to honour Margaret’s memory and offer condolences to her husband, I am still reeling from the very unexpected death of my aunt just three months ago. I find it hard to believe that so recently, I was jetting to the other side of the world to comfort my mom and help scatter the ashes of a woman who had been like a second mother to me.

These events – the deaths of my aunt and my friend – have led me to think almost obsessively about the transience of life. I am very aware that at some point over the next few years, I will lose my mom, who is now the last surviving sibling in her family. In all likelihood, because I am ten years younger than my husband, someday I will be widowed – hopefully a long time from now.

And I think about how I am getting along with everyone in my life, how much they all mean to me, and how much it would devastate me if any of them were to suddenly not be here anymore. I worry about whether I am a good enough mother, wife, sister, daughter, and friend.

I find myself feeling permanently shaken by the idea that at any moment, someone I love could simply and suddenly be gone forever. Arguments and disagreements upset me a great deal more than they used to, because what if I never get a chance to make it up with the other person? What if I never get to say sorry?

Earlier today, I gave one of my best friends a directive that she is not allowed to die. Ever. Not understanding the depth of how I feel about all of this these days, she asked why.

Well, it’s because I value her friendship and although our only communication is via email and Facebook, she is an integral part of my life. And I want her and my other loved ones to be there forever.

I know it’s a simplistic wish – for people to never die – but whenever I lose someone close to me, I feel like a part of me dies with them.

The only bright part of this is that when they die, a part of them stays alive with me – a part of them that I carry with me always, no matter where I go.

My point in all of this is that life is short. There is no time for meaningless disagreements that really don’t matter, and there is no time for people to treat their loved ones in a way that makes them feel unhappy, unwanted, or unworthy.

We need to embrace the people we have, while we still have them.

And when arguments happen, as they invariably do with us humans, there is no better time to patch things up than the present.

(Photo credit: http://www.flickr.com/photos/mikebaird/3036430387/. This picture has a creative commons attribution license.)

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Beyond The Stars

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 29 – Six sentence story: In this day of micro-blogging – brevity is a skill worth honing. Can you tell a story and make it short and sweet? What can you say in six sentences?

When my son George was diagnosed with autism, I didn’t really know what it meant or what he would ultimately be capable of.

I didn’t know what it would mean for my family, or for George’s sibling relationship with his little brother.

Since then, we have discovered that George has potential that reaches beyond the stars, and that all we have to do is help him get there.

We have discovered that he has a big  heart with an infinite capacity for love, and that he and his brother will be best friends for life.

There are challenges, and I worry about what the future could bring for my boy.

But I believe in him absolutely.

(Photo credit: http://www.flickr.com/photos/gsfc/5161800961/. This picture has a creative commons attribution license.)

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Dream A Little Dream

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 14 – My dream day: Describe your ideal day. How would you spend your time? Who would you spend it with? Have you had this day? If not – how could you make it happen?

Summer 2008

My perfect day…

It is a hot day and the sun is shining brightly. We are on a beach with lots of soft white sand, and the sound of the Atlantic waves fills our ears.

It is our first proper family holiday. I am with my husband and my two children, who at 2 and 4 years, are the perfect age for children to really enjoy a day at the beach. My brother is there too, and so is my mom, who has flown in from South Africa to be with us.

George, who is almost five, has found a new hobby. He lies down on the slope leading down to the water and he rolls himself down, down, down until he feels the waves kissing his body. Then he jumps up, and squealing with delight, he runs back up the slope to do it all again.

Not only is this fun for him, the physical motion of what he is doing seems to give him some kind of sensory input – something that many children with autism crave.

Two-year-old James and I are sitting near the water’s edge, and I am teaching him how to build a sand castle. I use the little shovel to put damp sand into the bucket. I pack it down as tightly as I can, and then turn the bucket upside down. I lift it off and we are left with a perfect tower for our castle. James stands up, and giggling like it’s the funniest thing in the world, he turns around and lets his bum go Plop! right on the tower.

“Again!” he shrieks, laughing so hard he can hardly talk. “Again, again, again!”

So we do it again. And again, and again, and again. We are not making any progress with the sand castle, but we are having a lot of fun.

My husband is in the water, doing battle with the waves. His life has not afforded him much opportunity to swim in the ocean – real ocean with big waves that raise you up and move with you and crash over your head. He turns and waves; I wave back and laugh as a wave hits him side-on, knocking him down.

I see my mom and brother in the distance, returning from a walk along the beach. They meander slowly to me, taking their time, and sit down beside me, James and George, who has finally tired of his roll-down-the-slope game. My husband comes out of the water and joins us. We discuss dinner plans, wonder whether we need to stop on the way back to the house for wine, and bury the kids up to their waists in sand, much to their amusement.

We are together. We are happy. We are family.

Later, as I am riding the waves, I think that there is only one thing stopping this day from being complete, and that is the absence of my dad. But then, as the ocean swirls around me – the same ocean in which Dad’s ashes were scattered thousands of miles away – I look around me, at the sunshine and the white beach where the people I love most are clustered around a smushed-up sandcastle.

As the laughter of my children floats through the air and reaches me, I think that Dad is probably with us after all.

(Photo credit: Kirsten Doyle)