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Running For Autism: One Step At A Time

running for autism

Two days from now, I am running my annual half-marathon for kids with autism. You’d think that after doing ten half-marathons in the last six years, this would be old hat to me. I am familiar with the distance, and since this year is my seventh Scotiabank Toronto Waterfront race, I am familiar with the course. I know exactly where the hills are (not many, thank God, and none of them are exactly mountainous), I know where the halfway point is, and I know which sections of the course are more challenging for me.

The training, the period of Taper Madness and the race itself are supposed to get easier with each passing year, right?

Well…

This year, my family has faced some intense challenges. A series of unfortunate events culminated in my husband having just three weeks’ notice to vacate his business premises. This meant packing up and moving fifteen years’ worth of product, tools and heavy industrial-grade machinery. While this was going on, I landed a big contract for my own fledgling business that I couldn’t turn down. I was helping with the move during the day, working on my contract at night, and grabbing catnaps on the couch from time to time.

This left me no time for running. My half-marathon training called for intense speed work during the month of July. Instead, my training ground to a screeching halt, and I was only really able to get it going again halfway through August. By then, as much as I had tried to keep my work on an even keel, I had fallen so far behind that I was continuing to work late into the night. So although I was running again, I wasn’t running as much as I needed to.

Consequently, I am not as prepared for this race as I should be. I know I can complete the distance, but I do not expect it to be my finest hour. I don’t even have a goal time in mind. All I want to do is cross the finish line, get my finisher’s medal, and come home where I can sit on the couch and eat weird amounts of cheesecake. If I get a decent time – and I’m certainly not ruling that out – that will be a bonus.

My fundraising hasn’t gone as well as I had hoped either, for pretty much the same reasons. Asking people for donations makes me feel more than a little awkward at the best of times, and this year it has been particularly challenging. I haven’t had time or energy, and I have been operating in a fog of exhaustion and stress. I have fallen far short of the fundraising goal that I had set for myself.

But still – I have raised almost $300, and that money is going to make a huge difference to some kids with autism. It will provide art supplies, musical instruments, sports equipment or camp activities. It will give young people with autism opportunities and experience that might otherwise be out of reach for them. And I am more grateful than words can express to the people who have helped me reach that total.

I think, in spite of the circumstances, I have done all right. I feel excited about the upcoming race, and I feel proud to be doing my small part to make a difference to children and youth with autism.

It’s not too late to donate. If you would like to sponsor me, please click here. All funds go to the Geneva Centre for Autism, where they will be used to provide services for children and teens with autism.

This is an original post by Kirsten Doyle. Photo credit to the author.

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The Flea In The Bottle

George and his dad, enjoying the concert

George and his dad, enjoying the concert

A long time ago, I heard a story about a flea that was put into a bottle. Since fleas are capable of jumping something like 30 times their own body length, the lid had to be put onto the bottle in order to contain the flea. Whenever the flea jumped, it dinged itself on the bottom of the lid, and eventually it figured out how to jump to a level just below the lid. After a period of time, the lid was removed, and the flea was free to go. But by now, it could no longer jump high enough to escape from the bottle. The physical capability was there, but the flea had the expectation that if jumped any higher, it would get hurt.

The story is a metaphor, of course. It’s supposed to illustrate the idea that we perform not according to our abilities, but according to the expectations we have, that are put there by ourselves or by someone else.

When George was diagnosed with autism seven years ago, I promised myself that I would never put a lid on my expectations of him. I would ensure that he had whatever opportunities he needed to learn and grow, and to discover what he might be capable of.

This strategy has not always been easy to follow, but it appears to have been reasonably successful. Over the years, periods of rapid progress have alternated with disheartening plateaus. Lately we have been experiencing the latter, and my husband and I have been having some depressing conversations about George’s limitations.

In the midst of all of this, my other son James has been preparing for his school’s spring concert, which happened this evening. In the past, we have left George at home with his grandma on occasions like this. Sometimes crowds and excitement overwhelm him, and we don’t want to stress him out or wreck things for James. Tonight, however, Grandma was unable to watch George, so we had to bring him with us.

While we were standing outside the school waiting for the doors to open, George was already getting antsy. My husband and I spoke about which one of us would leave with him, and which one would stay behind to watch James. In the end, we decided to see how long George would last for, so we went in and took a seat.

The concert started with the 8th Grade band. As soon as the music started, a huge smile appeared on George’s face, and he started swaying in time to the beat. He briefly clapped his hands over his ears when the drumming started, but for the most part he stayed calm. He even started singing along when the band played We Will Rock You.

The folk-dancing act that James was participating in was quite late in the program, and throughout the whole concert, George was sitting calmly, listening to the music and clearly enjoying himself. From time to time he would bop up and down in time to the music.

When James and the rest of the folk dancers came out, I scooted to the other side of the auditorium to get a clear shot with my phone’s video camera. While the dancing was going on, I turned my head to see how George was doing. To my astonishment, he was standing beside his seat, trying to imitate the moves of the dancers. As his hat-bedecked head bopped and jived in time to the music, my husband caught my eye and gave me a thumbs-up. For a few moments, I swung the camera around to capture some of his dancing.

We left soon after James was done with his performance. George was brimming with happiness, but we could tell that he was ready to leave. We took the boys to McDonalds to reward both of them for a job well done.

Now, as they settle into bed for the night, I cannot help reflecting on the fact that if my mother-in-law hadn’t had a prior appointment, George would have stayed home and we would have missed the opportunity to see him having such a wonderful time. This has renewed my resolve to keep testing his limits and pushing him beyond his boundaries. I don’t want to put a lid on my expectations of him, or his expectations of himself. I don’t want him to be that flea that is conditioned into lowering its potential.

I want George to dream big, and to fly as high and as far as he dares to go.

This is an original post by Kirsten Doyle. Photo credit to the author.