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Running For Autism: One Step At A Time

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Two days from now, I am running my annual half-marathon for kids with autism. You’d think that after doing ten half-marathons in the last six years, this would be old hat to me. I am familiar with the distance, and since this year is my seventh Scotiabank Toronto Waterfront race, I am familiar with the course. I know exactly where the hills are (not many, thank God, and none of them are exactly mountainous), I know where the halfway point is, and I know which sections of the course are more challenging for me.

The training, the period of Taper Madness and the race itself are supposed to get easier with each passing year, right?

Well…

This year, my family has faced some intense challenges. A series of unfortunate events culminated in my husband having just three weeks’ notice to vacate his business premises. This meant packing up and moving fifteen years’ worth of product, tools and heavy industrial-grade machinery. While this was going on, I landed a big contract for my own fledgling business that I couldn’t turn down. I was helping with the move during the day, working on my contract at night, and grabbing catnaps on the couch from time to time.

This left me no time for running. My half-marathon training called for intense speed work during the month of July. Instead, my training ground to a screeching halt, and I was only really able to get it going again halfway through August. By then, as much as I had tried to keep my work on an even keel, I had fallen so far behind that I was continuing to work late into the night. So although I was running again, I wasn’t running as much as I needed to.

Consequently, I am not as prepared for this race as I should be. I know I can complete the distance, but I do not expect it to be my finest hour. I don’t even have a goal time in mind. All I want to do is cross the finish line, get my finisher’s medal, and come home where I can sit on the couch and eat weird amounts of cheesecake. If I get a decent time – and I’m certainly not ruling that out – that will be a bonus.

My fundraising hasn’t gone as well as I had hoped either, for pretty much the same reasons. Asking people for donations makes me feel more than a little awkward at the best of times, and this year it has been particularly challenging. I haven’t had time or energy, and I have been operating in a fog of exhaustion and stress. I have fallen far short of the fundraising goal that I had set for myself.

But still – I have raised almost $300, and that money is going to make a huge difference to some kids with autism. It will provide art supplies, musical instruments, sports equipment or camp activities. It will give young people with autism opportunities and experience that might otherwise be out of reach for them. And I am more grateful than words can express to the people who have helped me reach that total.

I think, in spite of the circumstances, I have done all right. I feel excited about the upcoming race, and I feel proud to be doing my small part to make a difference to children and youth with autism.

It’s not too late to donate. If you would like to sponsor me, please click here. All funds go to the Geneva Centre for Autism, where they will be used to provide services for children and teens with autism.

This is an original post by Kirsten Doyle. Photo credit to the author.

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Running For Autism 2014: A Thousand Thank Yous

Today’s post is going to look a bit like a speech from the Oscars, only there’s no red carpet, I’m not wearing a ballgown accessorized with diamond jewellery, and I didn’t get a funny little trophy thing. Instead, there is the finish line of a race, a sweaty old running outfit accessorized with a space blanket, and a finisher’s medal. Just setting the scene so you can picture me as I start my speech.

<clears throat and waits for the audience hubbub to die down>

My 2014 autism run is now almost a week in the past. I have one day left of sitting on the couch doing nothing post-race recovery. The stiffness in my legs is gone, my knees have recovered, and the chafing from my sports bra is fading. Even the Ankle of Doom is feeling pretty good. I am almost ready to lace up my shoes for an easy run, and I have started thinking about my race calendar for next year.

I want to thank my mother, because people always start by thanking their mothers. And because my mom is awesome. She lives on the other side of the world, but I felt that she was part of the finish crowd cheering me on last Sunday. Thanks also to my brother, who is a loyal supporter and a great friend.

I want to thank my Dad, who was an elite runner in his youth and the first to fuel my love of running many years ago, in a previous life. Dad was a superb runner, and he always believed in me. He is no longer with us, but I still feel his presence when I run, and he was definitely with me on race day.

I want to thank the organizers of the Scotiabank Toronto Waterfront Marathon, Half-Marathon and 5K for putting on a fantastic event. Everything was great, from race kit pickup right through to the post-race food. I enjoyed almost every minute of the race, and I even made it through my troublesome 18K patch better than I ever have before. I had enough energy in reserve at the end to really belt it out in the last kilometre, and the look on my face in my race picture tells you how I was feeling as I sprinted to the finish line.

Best finish line shot ever!

Best finish line shot ever!

Thank you to the Geneva Centre for Autism, not only for being a constant source of support for my family since George was diagnosed with autism in 2007, but also for getting me off the couch and into my running shoes a little more than five years ago. It is a true honour to be affiliated with this organization that has given countless autism families the most precious of commodities: hope.

Thank you to all of the people who sponsored me. Your generous donations are going to make a real difference for so many kids. Thanks to you, children and youth with autism will be able to learn how to play musical instruments, participate in sports teams, attend social skills training, go to summer camps, communicate via iPads and much more. Opportunities are being created for my son and other kids like him, thanks to you. My appreciation for your support has no bounds.

Thank you to the runners in my life, who have always been there with words of advice and encouragement when I’ve needed it. You have celebrated with me after the good training runs this season, and you have commiserated with me when the going has been tough. You know what it’s like – the long runs on rainy days resulting in squelchy shoes, the uncomfortable chafey bits where you didn’t apply enough Body Glide, the runs that are just bad for no reason – and you always encourage me to keep going.

Thank you to all of my non-running friends, who tolerate my running-related social media postings: the race-time status updates, the moans and groans about sore muscles, the Instagram pictures of my training watch. You are kind enough to like and comment on my posts, you tag me in running-related things that you think I will like (and I do – I love all of them). Your messages of support and love last Sunday were overwhelming, and they meant the world to me.

Thank you to my husband, who holds the unenviable position of being the partner of a runner. Over the course of the season, he made sure I could get out for my long runs and races, and he tended to my aching muscles with the right combination of concern and humour. The night before the race, he sacrificed sleep so that I could rest undisturbed by children, and he got up early to make sure I got to the start line on time.

Thank you to my younger son James, my tireless supporter and cheerleader. He cheerfully saw me off for my long training runs throughout the season, and he always welcomed me back with a hug, even though I was stinky and sweaty. He is a fantastic champion for his brother’s cause: it was his idea for me to run in a cape last Sunday, to “get into the spirit for autism”. His energy is contagious, and I took a bit of it with me on my race.

The final thank you is reserved for George, my older son, my brave and amazing autism boy. George is my inspiration. He is the reason I get up early in the morning to run in the dark, the reason I do ten-mile training runs in the midsummer heat, the reason I am willing to get rain in my running shoes on wet days. George teaches me about life every single day. And when I am struggling through a run, feeling like it will never end, thoughts of George get me through. I tell myself that this kid lives with autism every hour of every day. That doesn’t stop him from being one of the most determined people I have ever encountered. If he’s not going to give up, then neither am I.

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This is an original post by Kirsten Doyle. Finish line photo credited to Marathon-Photos. Picture of runner’s wall message credited to Kirsten Doyle.

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2013: Memorable Moments

With just a few days left in 2013, this seems like a good time for me to take a look at some highlights of the last twelve months. The word “highlights” is a bit of a misnomer, though – a large portion of the year was filled with the most mind-bending stress. To be completely honest, I am ready for the year to be done. I am ready to wake up on January 1, 2014 looking forward to a year of new beginnings.

Not a lot happened in the first three months of the year. I was working overtime on a massive project, so for a while I didn’t really have a life. From time to time I went running, and that was going great until the day I gave myself an injury by doing a long run at race pace on icy sidewalks. As far as common sense goes, that was not one of my shining moments. I had to pull out of a half-marathon that I had registered for – not the greatest start to my season.

In April I ran a ten-mile race that can only be described as my worst race ever. It took place on a golf course, which was very scenic but had a scary number of hills. If the weather had been nice it might not have been so bad, but it was cold and windy, and it was raining. Instead of feeling down about my dismal finishing time, though, I was surprisingly upbeat. I had run this brutally hard race in terrible weather, and I had crossed the finish line. It was a testament to my determination. The hard-earned finisher’s medal I got that day is one of my favourites, just because of how hard I had to work to earn it.

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In May, my life kind of spiralled out of control a little. Things were going reasonably well at the time: my running was back on track and my big project was a whisker away from being closed after a successful implementation. A few days from the end of that month, I got the shock of my life when I was called into a little office in the HR department and informed that I no longer had a job. I had seen it coming – much change was afoot at my place of work and they had been downsizing people for a while.

Something else happened in May that shook my foundations quite badly. One of my best friends, who I had known for seventeen years, passed away after a lifelong battle with Cystic Fibrosis. Fran was just shy of her 41st birthday when she died, and years of knowing that I would in all likelihood lose her did not make it easier when it happened. I have so memories that include Fran, including her first race and my wedding. Seven months on, I’m still having trouble adapting to a world that she no longer inhabits.

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In June, my family and I went away to Niagara Falls for a few days. It was a break I desperately needed, and it included the Niagara Falls Women’s Half-Marathon. I had a fantastic race – although it was not my best-ever performance, my finishing time was respectable enough. The race was a perfect opportunity for me to run off a bit of stress.

July kind of passed without me noticing. I was worn out from stress and grief, and I was fighting what felt like a losing battle with depression. I applied for jobs without getting any responses, and my spirits sank lower and lower with each passing day. Ultimately, what got me through was running.

August started off on a note of terrible tragedy, when a friend’s seven-year-old son drowned in a river. He hung on in hospital for a couple of days, but in the end, his mother had to make the heartbreaking decision to let him go. I felt the kind of sadness that threatens to engulf you, like a heavy blanket that suffocates. I started worrying a lot – about my kids, about the twists and turns of fate that we have no control over, about friendship and whether I was doing enough for the people in my life, including the bereaved mother.

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Luke

In September, I was supposed to travel to Ottawa to take part in the Army Run, a majestic half-marathon in the nation’s capital city. Due to illness and circumstance, the trip had to be canceled at the last minute. The disappointment was excruciating. In the grand scheme of things, it wasn’t a big deal, especially when looked at beside all of the other stuff that had been going on, but at that point my coping skills had been eroded to the point of nothingness. I turned to my trusty method of stress relief and threw myself into my running.

A month later, my training paid off when I ran my main race of the season: the Scotiabank Toronto Waterfront half-marathon. For the fifth consecutive year, I ran the race to raise funds for the Geneva Centre for Autism. Inspired by my son George, I ran my way to a personal best time. It was a truly fantastic race, and that day marks the point at which I finally started to claw my way back from the terrible depression that I had been going through.

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In November I signed up for a novel-writing challenge called NaNoWriMo. I decided that what I really needed was a goal, and writing a book in thirty days seemed like a reasonable one. Every day when I woke up, I sat at my laptop and hammered out two thousand words, and by the time the end of November rolled around, I had a completed manuscript of almost 60,000 words. It was a first draft, meaning I would need to do a whole lot of work to make it fit for public consumption, but I had done it. That achievement did wonders for my confidence.

December has, for the most part, been kind to me. Yes, we had a pesky ice storm that cut out power for a few days and left a mess of fallen trees and broken branches all over the neighbourhood, but we got through it. Although there was the obligatory family drama, we enjoyed Christmas. We even got a picture of Santa that involved a lot of fun and no autism meltdowns.

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Over the next few days, I will be setting some goals for 2014. I have lofty plans that include running a 30K race and getting my book published. For now, though, I am enjoying time with my family, and in spite of the more stressful things that have happened this year, I am feeling grateful for what I have.

This is an original post by Kirsten Doyle. Photo credit for the Scotiabank Toronto Waterfront Half-marathon picture: www.marathon-photos.com. Photo credit for all other images: Kirsten Doyle.

 

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On Running

With Running Room founder John Stanton, right after one of my autism runs

With Running Room founder John Stanton, right after one of my autism runs

My friend Phaedra posted some running reflections on her blog today. She ended her post with the question: “What has running brought to your life?”

I started to draft a reply on her blog, but it started to get kind of wordy, so I decided to just make a blog post of my own on the topic.

The first time I start running seriously, I was a 26-year-old couch potato with a 30-a-day smoking habit. I didn’t really care for the idea of exercise very much, but I wanted to quit smoking, and instinct told me that in order to accomplish that, I would have to fix other aspects of my lifestyle.

So I cut back on the caffeine, traded junk food for healthy home-cooked meals, and started to run shuffle along at a snail’s pace. A few months later, I smoked my last cigarette and my shuffling started to look like actual running. To my surprise, I discovered that I actually liked it. My dad, a former elite athlete who had long suspected that there was a runner lurking somewhere within me, merely said, “Told you so.”

During that time in my life, running was much more than just a means to quit smoking. I badly needed some self-affirmation back then. I had no self-esteem to speak of. I felt completely worthless, and when I started running, I realized that I had found something I could actually do. I didn’t claim to be particularly good at it, but I wasn’t looking for something to be good at. I was merely looking for something that I could do without failing.

The combination of stopping smoking and starting running allowed me to start feeling as if there was some validity to my existence.

The second time I started to run, I was a 39-year-old mother of two and I hadn’t touched a pair of running shoes in over six years. Some aspects of my life were very similar to the way they had been the first time round. Although I was no longer a smoker, my lifestyle had become sedentary, and once again, I was grappling with severe depression.

This time round, it was the idea of running for a cause that gave me the kick in the pants that I needed. The Geneva Centre for Autism had decided to enter a team in the charity challenge of a major Toronto running event, and they were looking for parents to participate. And somewhere deep inside me, underneath all of the layers of depression that were crippling me, a flame was lit. I registered for the half-marathon there and then, without giving myself time to think about it.

Six months later, I stood at the half-marathon finish line with a finisher’s medal around my neck. I had gone the distance, all 21.1km of it, and every inch of it had been for my son. It was an intensely emotional experience and the tears flowed unchecked.

Since then, I have run six more half-marathons and a number of races of other distances. One half-marathon each year is dedicated to my son and other children with autism, as I fund-raise and strive to make my small contribution to the autism community.

Once again, running has been a salvation for me, a form of self-affirmation, and a way for me to feel truly alive. When my running is going well, I feel as if I have it in me to get through any challenge and achieve any goal I want.

And when it’s going badly, all I have to do is think of my son. If he can live his entire life, 24 hours a day, 7 days a week, with the challenges of autism, then I can run for a couple of hours to make the world a better place for him.

 

 

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A Myth About Running

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An important part of special needs parenting – indeed, of any parenting – is staying healthy. For a long time I didn’t do this. I had some mental health conditions that were going untreated, and probably as a side effect of this, I didn’t care enough to look after my physical health.

Then, during a visit for a foot complaint, my doctor started questioning me about this and that, and realized that I was suffering from post-partum depression. At about the same time, the Geneva Centre for Autism started its charity challenge runs, and that proved to be a marvellous motivation. And so I gradually got myself onto the path of better physical and mental health. Now I run races regularly, and I see a therapist once a week.

When I tell people I run, a surprising number of them respond by saying, “Really? But it’s so bad for you!”

“Um, excuse me?” I ask politely.

“Yeah!” says the naysayer. “Running can give you heart attacks, and it destroys your knees!”

Both of those statements are, in fact, false. Running in itself cannot give you a heart attack. Exerting yourself beyond your physical capability without due care and attention can, but that has nothing to do with running. Unfortunately, that myth has come about as a result of a few highly publicized sudden deaths during marathons and half-marathons. It is important to realize that those tragedies were not caused by running, but by underlying medical conditions. The people concerned just happened to be running, but they could just as easily have died engaging in any other physical activity.

It is also important to realize that the percentage of marathoners and half-marathoners that this happens to is so small that it cannot even be expressed in a meaningful way.

The thing about bad knees is a fallacy as well. Several studies have tracked runners and non-runners over the same period of time and found that on average, the runners’ knees were more robust than those of the control group. Runners with bad knees tend to have one of the following: a genetic or medical predisposition to weak knees, bad running shoes, or the symptoms of going out too fast in an unfamiliar activity or on an unfamiliar surface.

Far from being bad for you, running can provide many mental and physical benefits. Ironically, as I write this, I am experiencing the after-effects of an exceptionally hilly ten-mile race I ran today, for which I was definitely undertrained. As sore as I am feeling, though, my knees feel great and my heart is beating strong and healthy.

 

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Countdown

first halfmarathon medal

Three minutes… Will it begin? Or end?

I shift nervously from foot to foot as I look at the crowd around me. The vibe here is immense. I feel like the collective energy created by these twenty thousand people could lift me up and carry me. I have not slept for a week in anticipation of this day, but that does not matter. Standing here, it is impossible to feel tired.

Two and a half minutes… Will these 13.1 miles make me or break me?

It all started six months ago with an email. A local autism centre was entering a team into this race. Was I interested in joining, to raise funds for autism services? My first reaction was: You must be joking. At the time I was tipping the scales at almost two hundred pounds, which was a lot for a woman whose pre-pregnancy weight had been 130 pounds. I had let myself go to seed following the birth of my younger son. Exercise was a four-letter word to me. I found it impossible to lift myself out of the post-partum depression I was still suffering from for long enough to walk to the mailbox and back. And now these people wanted me to run a race?

Two minutes… Will this race be the fruition of all my efforts? Or will it make me slink back into depression?

I deleted the email, but its contents pulled at a thread in my mind. I was in very bad shape, both mentally and physically. It was clear that I needed some impetus to get myself sorted out. Could this be it? Did I finally have the right reason to get up and do something? Would this venture even be possible?

One and a half minutes… Will I have the strength to go the distance? Or will I give up and not finish the race?

I recovered the email from my Deleted Items folder. If I decided to join the team, I could choose a distance. I ruled out the marathon – it would definitely be too much. I considered the 5 kilometre run, but somehow this did not seem to be enough. If I was actually going to do this, I wanted it to be a real challenge. I’ve never been one for doing things in moderation. Either I don’t do it at all, or I go all out. Abruptly, I checked my thinking. Was I seriously thinking of attempting the half-marathon? Was I crazy?

One minute… Will this endeavour cement my newfound love of running? Or will it make me toss my running shoes into the back of the closet forever?

My thoughts drifted to my older son. My beautiful boy with autism, so loving and full of promise. He could go so far and accomplish so much, but he would need help along the way. He would need services and social supports and programs, all of which cost money. The autism centre was hoping to raise funds to finance exactly the kinds of programs that are needed by kids with autism. I could be doing this for my son.

Thirty seconds… Do we proactively give our kids the best possible chances to overcome their challenges? Or do we just sit back and hope for the best?

Just like that, the thread in my mind – the one that the email had been gently pulling at – unravelled. I knew what I had to do. I pulled out my calendar and looked up a few online training programs. I worked out that in six months, I just about had time to train for a half-marathon. I signed up and got to work. And now here I was at the start line, fifty pounds lighter, and although not exactly fleet of foot, at least capable of running for a couple of hours.

The starter’s siren goes off and the crowd surges forward. As I cross the start line, I put a picture of my son in my head and run from the heart.

(Postscript: I finished that first half-marathon in almost two and a half hours. I remember the lump in my throat as I crossed the finish line and the tears that sprang to my eyes when I received my finisher’s medal. Every step of that race was dedicated to my son. Since then, I have done two more half-marathons for autism, and this year I will be doing it again. In my three autism runs to date, I have raised about $1500 for the Geneva Centre for Autism. My sons – the child with autism and his loving, caring brother – are my inspiration. I would run to the ends of the earth for them.)

For the IndieInk Writing Challenge this week, Shauntelle challenged me with "Write a story that begins "Three minutes. Will it begin? Or end?"" and I challenged Head Ant with "Write a story that includes the following: a dreamcatcher; red high-heeled boots; a broken wine glass."