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Book Review: Beyond Rain Man by Anne K. Ross

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When my son was first diagnosed with autism nine years ago, I went to my local bookstore in search of help. I was looking for books that would tell me how to deal with the sensory eating issues, the grocery store meltdowns, the head banging incidents that left dozens of holes in our drywall. I wanted to know how to get my son to talk, to make friends, to play with toys instead of spending hours staring at a piece of string.

What I didn’t realize at the time was that I didn’t need an instructional manual. I needed to know that I was not alone, that there were people out there who knew what I was going through as the parent of a child with autism, and above all, that my family and I would survive. We would figure out all of those things that I was so desperately looking for, and we would, in time, adjust to our new version of reality.

While I was enduring this phase of post-diagnostic angst, psychologist Anne K. Ross was going through experiences that she would later capture in the pages of a wonderful book. Beyond Rain Man tells the story of a woman who, having devoted her life to helping children with developmental disabilities, was thrown for a loop when her son was diagnosed with Aspergers Syndrome.

With compelling bravery, the author tells the story of her son’s childhood. She describes his struggles, the tears and the triumphs, and the ups and downs of the relationships within her family. As an autism parent, I can relate to so many of the stories Anne tells in her book: the impact of her son’s Aspergers on his younger brother, the challenges of keeping a marriage healthy when there’s so much going on, and the endless concerns about the future.

I do not feel as if I read a book. I feel as if I sat on a couch chatting with the author over a cup of coffee, learning about her experiences and how she and her family got through them.

If time travel was a thing, I would toss a copy of Beyond Rain Man to that earlier version of myself who was desperately searching bookstores for answers. I would make the book magically appear in front of her, and I would tell her that this is the book she needs to make her feel less alone and more hopeful.

Kirsten Doyle was given a copy of “Beyond Rain Man: What One Psychologist Learned Raising A Son On The Autism Spectrum” by Anne K. Ross, in exchange for an honest review.

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Autism And Mental Health

I'm Blogging for Mental Health 2015.

My son George hops off the yellow school bus and bounds up the driveway with his fingers in his ears – a throwback to last summer, when the sound of the tree-feller’s chainsaw hurt his ears. He shucks off his backpack, removes the hoodie that he will not abandon even during the height of the summer, and kicks off his shoes. Then, and only then, am I permitted to talk to him.

“How was school?” I ask him, as I always do.

“School was fine,” he says, as he always does.

“What did you do today?”

He doesn’t reply. Instead he starts peering at the brim of his hat, or running a finger along the edge of the door frame.

“George?” I ask, needing to engage him before he gets too far into his own head. “What did you do at school today?”

“School was fine,” he mutters.

“Tell me one thing you did today.”

“Played outside,” he says, after a pause.

“And what did you do outside?” I ask, hoping I’m accomplishing the tone of gentle persistence that I’m going for. He cannot feel forced, but he needs to know that I’m not giving up on this conversation. It’s a delicate balance some days.

“Kicked the soccer ball,” he says.

“Wow, that sounds like fun!” I say effusively.

Sensing that he’s fulfilled his obligation to talk, he runs off to turn on his computer. I sit on the stairs for a moment, feeling both exhausted and elated by the fact that I actually had a conversation – albeit a brief one – with my son. For most kids, this kind of exchange would not be a big deal. For George, it is.

George, now eleven years old, was diagnosed with autism when he was three. We had him assessed because he wasn’t talking, and even though he has come a long way since then, his speech and communication skills are far below those of his typically developing peers. This comes with a number of challenges, but there is one challenge in particular that I have never really spoken about.

How do I know if he’s OK?

I’m not talking about “OK” in the physical sense. George is able to tell me when he feels sick, or when a part of his body is hurting. He has even started to identify emotions, telling me when he’s sad or angry.

What I’m talking about is whether he’s “OK” from a mental health perspective. With my younger son, who is typically developing, it’s fairly simple. I have conversations with him, I talk to him about how he’s feeling, and from his natural expressiveness I can get a sense of whether everything is all right or not. I am well aware that childhood depression is a very real problem, I know what signs to look out for, and I have a reasonable degree of certainty that I would recognize it in my younger son.

With George, it’s a little more complicated, and from a statistical standpoint, it’s more of a concern. Individuals with developmental disabilities are more likely than the general population to experience mental illness, but they are less likely to be diagnosed, because it’s less likely that the people around them will realize that something is wrong. George, with his speech delays, does not have the words or the cognitive functioning to describe depression in a way that would enable me to recognize it.

Even the behavioural cues present in typically developing children may be different for those with special needs. It is easy – far too easy – to blame everything on autism. When a child with autism has a meltdown, or starts to cry for no reason, or gets lost inside his or her own head, everyone assumes it’s because of the autism. That is not unreasonable: in many cases, it is because of the autism.

But what about those times when it isn’t? What about the times when a child is banging his head against the wall because his mind is in a dark, desolate place and he doesn’t know how to express it? What if the other-worldliness is not symptomatic of autism, but of withdrawal? What if no-one realizes that depression has become the child’s companion, because in their well-meaning attempts to manage the autism, they just haven’t thought to consider anything else?

These concerns are part of what drives me to try to have conversations with George. Every single thing he can tell me – no matter how small it might seem – is like a golden nugget that I treasure. I lavishly praise his attempts to communicate, and every day, I encourage him to tell me something – anything – that happened to him that day. It is my hope that if, at some point, anything is going on in his life or in his mind that he needs help with, that will be the thing he tells me about that day.

This is an original post by Kirsten Doyle, written for APA’s Mental Health Blog Day. Picture attributed to the American Psychological Association.

 

 

 

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In Defense Of Ontario’s Sex Education Curriculum

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I was educated at a girls-only Catholic school run by nuns. Our sex education was fairly basic and had a singular message: we weren’t to have sex, or engage in any physical contact with boys. When we did start having sex – only after marriage, of course – the only form of contraception we could use was the rhythm method. Every sperm was sacred, and all of them had to be given a chance. Sex was there for procreation only. If we could manage to avoid enjoying it, so much the better.

The concept of “safe sex” was never taught – why would it be, when abstinence was the word of the decade? Our sex education did not comprehensively cover the area of consent, and if anyone had even mentioned respect for gay rights, the nuns would have had a heart attack.

The simple truth is that we were not told enough, and we suffered for it. I mean, we knew about the mechanics of sex. Most of us had mothers who did a good job of preparing us for menstruation, and we knew that if the sperm hit the egg, pregnancy would result. We had a good grasp on the biology of it all. But sex is so much more than biology, isn’t it?

No-one thought to tell us about body image and self-esteem – if anything, we were all encouraged to be skinny so that we could appeal to the boys we were forbidden from having physical contact with. We were given no information about how to reduce our risk of sexually transmitted diseases, or where to access birth control. Any discussion about rape was centred around two themes: how we had to make sure we didn’t “ask for it” (the clear implication being that rape victims were responsible for the crimes committed against them – an attitude that is frighteningly prevalent even today), and how abortion was not acceptable even if the pregnancy was a result of rape.

When I look back at the quote-unquote “sex education” that I received at school, I cannot help being utterly befuddled by the current spate of protests against Ontario’s sex education curriculum. If me and my peers had had access to the information being taught today, many of us might have been better equipped than we were to navigate the world of sex and relationships.

Those protesting the Ontario sex education curriculum are tossing around some statements that are either untrue or unreasonable. Here are some of the prizewinners and my responses:

They are teaching young children how to consent to sex. No, they are NOT. They are teaching young children that nobody has the right to hug them, touch them or have any kind of physical contact with them without their consent. They are teaching them how to tell what kind of touching is never OK, and what they should do if they find themselves in a difficult situation. They are teaching them that they, and they alone, are in charge of their bodies.

They are giving graphic information about sex to grade schoolers. Sorry, but teaching a child the proper terms for their genitals does not count as “graphic information about sex”.

Sex education is the job of parents, not the schools. Some kids are fortunate enough to have parents they can have completely frank discussions with. Others have parents who tell them nothing. Most kids fall somewhere in the middle. Their parents have the best intentions, but they – the kids – need to be able to talk to another trusted adult about some delicate issues. Having an organized sex education curriculum ensures that all kids have access to information that is really important. Besides, what would you rather have? Kids learning from people who are trained to teach them, or kids learning from each other and from Google?

They are teaching kids about masturbation. Look, it’s not like they’re giving illustrated how-to manuals to Kindergartners. They are merely teaching young adolescents that exploring their bodies is a normal part of life and that it’s not something to be ashamed of. Quite frankly, what they’re teaching about masturbation now is less graphic than what they taught four or five decades ago.

The sex education curriculum needs to be respectful of our religious freedoms, and we believe that homosexuality is a sin. Actually, no, the curriculum does not need to be respectful of “religious freedoms”. It needs to be consistent with the laws of Canada, which prohibit discrimination on the basis of sexual orientation.

But it’s wrong to teach that homosexuality is normal. Our kids are growing up in a society that has many versions of “normal”. There are traditional households with a man, a woman, two-point-four children and a dog named Rover. There are single moms and single dads, blended families, gay parents. We live in one of the most diverse societies in the world, and our education system has to reflect that.

I don’t see why I have to subject my child to this sex education curriculum. Ah, but you don’t. You have the choice to opt your children out of the sex education curriculum. You have the choice to make your child sit alone in the library while his or her peers are learning about the realities of life.

What are your views about sex education? If you live in Ontario, what do you think of the curriculum?

This is an original post for Running For Autism by Kirsten Doyle. Photo credit: QuotesEverlasting. This pictures has a creative commons attribution license.

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Autism Advocacy: 8 Survival Tips For Parents

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Yesterday, I shared my family’s recent success at securing a good Grade 7/8 program for my son, who has autism. The short version of the story is that my husband and I knew immediately that the program George was slated for would be very bad, not only for him but for his classmates. And so we went to bat for the kids. Over a period of seven months, we had meetings and phone calls with all kinds of people in the school board. A couple of weeks ago, George’s principal called to tell us that a Grade 7/8 program was being introduced in his current school. The news could not have been better. We would have been OK with a good program at any school, but George’s current school, which is fantastic in so many ways, was definitely the prize we were hoping for.

George was diagnosed with autism seven years ago. In that time, I have learned a lot about what works and what doesn’t work when it comes to fighting in his corner. Here are some of the big ones.

1. Know what your child’s rights are. Don’t go into any meeting with your child’s teacher, principal or any school board representative without having a clear idea of what you are entitled to ask for on behalf of your child. A few pointers: in Ontario, you cannot be forced to homeschool, you cannot be forced to relocate and you cannot be forced to accept a shortened school day. Your child is entitled to an education in a public school in his or her neighbourhood, with the same number of instructional hours as any other student, regardless of what his or her abilities or disabilities are.

2. Have a clear idea of your desired outcome. This is not always as easy as it sounds. Sometimes we simply want things to be different, or better. You have to ask yourself what that looks like. Perhaps you love the teacher but feel that extra assistance is needed. Maybe you simply want clearer IEP goals or better support during transitions. Or maybe you need a completely new direction for your child. Whatever it is, you have to know what you are aiming for. Ask yourself what the outcome would be if you got to be in charge of all the decisions.

3. But be prepared for compromise. This means knowing what you are prepared to settle for. In my case, first prize was a new program for George in his current school. There was always a chance that that wouldn’t happen, so we were prepared to settle for a good program at a different school. Aim for what you are really, really hoping for, but have some acceptable alternative scenarios kicking around in your mind as well.

4. And know what you will not accept. Sometimes, you may be offered a “solution” that just doesn’t work. You are not compelled to accept anything just because you’re told it’s the only option. What we were not prepared to accept was the program George was originally supposed to go to. We made that crystal clear early on in the discussions, and we did not budge. Negotiation is always key in discussions like this, but you have to be clear on the points that you will absolutely not move on.

5. Don’t go in looking for a fight. If you walk into the room assuming that the people you are meeting with are on the same side as you, the entire tone of the meeting can swing in your favour. The thing is, most of the time they will be on the same side as you. Advocating for your child does not always have to be a battle. Principals and teachers are caught between a rock and a hard place. On the one hand, they genuinely care (or they should) about the best interests of your child. On the other hand, they have to operate within rules and procedures that they cannot control. Show understanding towards them, and more often than not, they will show understanding towards you.

6. But don’t let anyone intimidate you. Look, from time to time you will encounter ass-hats. That’s just life. Smile serenely, know that if someone is being an ass-hat to you, they’re probably an ass-hat to everyone, and identify who your allies are. If there’s no ally in the room, politely tell them you need to reschedule the meeting, and go out and find an ally. You can bring anyone you like. You can even hire an advocacy consultant to accompany you. We were fortunate in that George’s principal was firmly on our side right from the start.

7. Remember that the special education community is small. No matter how frustrating the process is, no matter how badly you want to scream and swear, try your best to take the high road. People in the special education field tend to crop up again and again in different capacities. The person sitting opposite you today, whose head you badly want to rip off, could be in a position to help you three years from now. Don’t let anyone walk all over you, but keep your cool and stay polite.

8. Be persistent. If a meeting doesn’t yield acceptable results, call another one. If you agree on a course of action but something isn’t working, go back and see if something can be adjusted or tweaked. You are never obligated to just accept something for your child that is not working.

This is an original post by Kirsten Doyle. Photo credit: Woodleywonderworks. This picture has a creative commons attribution license.

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The Pitfalls Of Competitive Parenting

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When an article entitled “5 Things You Should Never Say To A Stay-At-Home Mom” appeared in my Facebook feed a couple of days ago, I knew there was going to be trouble. The article itself was innocuous – a little unintentionally judgy, perhaps – but the comments section was a virtual bloodbath. Work-outside-the-home moms were claiming to be busier than stay-at-home moms. Stay-at-home-moms were claiming to be there for their kids more than work-outside-the-home moms. Each side was claiming, without actually saying it directly, to be better than the other side.

As I was reading this, I was thinking about what a shame it is that there even are sides. What happened to the days when parents were just parents? At what point did moms and dads become so insecure that they started resorting to competitive parenting? There seems to be a constant game of one-upmanship in which people talk about the sacrifices they have made and the difficulties they have endured in order to be the Perfect Parents.

Here are some of the problems I see with today’s trend of competitive parenting:

It smacks of judgment, and that’s just not right. Unless you are beating, starving, neglecting or otherwise abusing your kids, you’re doing fine. Stay-at-home moms are not better than work-outside-the-home moms. Work-outside-the-home moms are not better than stay at home moms. You’re not a better or worse parent just because you give your kids boxed mac-and-cheese, or limit their screen time, or give up on arguing with them over a chore and just do it yourself. We are all parents, and we all do the best we can with the circumstances we find ourselves in.

It ignores the fact that everyone’s situation is unique. We humans love to categorize and compare things. Stay-at-home moms vs. work-outside-the-home moms. Breastfeeding moms vs. formula feeding moms. Free-range parents vs. helicopter parents. The trouble with classifying everything is that it leads to division, and it assumes that everyone in the same “group” is the same. Some stay-at-home moms love spending all of their time with their kids, and others yearn for the workplace. Some formula feeding moms would really love to breastfeed, and some breastfeeding moms really don’t enjoy it. Even within the same family, things can be different. I can free-range parent my younger son, but my older son, who has autism, requires a much more hands-on approach.

It places too much emphasis on the distinction between doing things out of choice and doing things out of necessity. Many work-outside-the-home moms really don’t have a choice. They need the income just to pay the mortgage and put food on the table. But some work-outside-the-home moms choose to work outside the home. And guess what? That’s OK. I don’t know why so many people have this notion that parents are not allowed to make a single decision in their own self-interest. I mean, sure, if you’re leaving your three-year-old at home alone for eight hours a day just so you can pursue a career, that’s a problem. But if you are taking care of your kids, protecting them from harm, and doing what you can to help them become mature, well-rounded individuals, nothing else really matters.

It takes the focus away from what we really need to be doing. When it comes down to it, these attempts at competitive parenting don’t accomplish a single thing. They are merely distractions that give parents something to argue about when there are so many other things for us to be devoting our energy to.

This is an original post by Kirsten Doyle. Photo credit: Jason Bolonski. This picture has a creative commons attribution license.

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10 Surprising Things I Have Learned Since Becoming A Mom

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I was born in the last month of the 1960’s and went through little-girlhood in the 70’s, when gender stereotyping was so much the norm that the term “gender stereotyping” didn’t even exist. Little boys played with guns (yes, they were even allowed to take them to school without being branded as mini-terrorists), and little girls played with dolls.

I think my mother was quite concerned when I didn’t turn out to be a typical girl. More often than not, I abandoned my dolls to play “cops and robbers” with my brother and his friends, and when my parents enrolled me in ballet classes, I was without any doubt the scruffiest member of the class. When I was little, my mother bemoaned the fact that I didn’t play with dolls like other little girls. As I grew older, she was concerned that I wasn’t ladylike or feminine enough.

I didn’t want to be feminine. Being feminine seemed too much like hard work. I’d have to faff around with my hair, worry about my clothes and my nails, and spend hours trying to get my makeup just so. Don’t get me wrong – I liked to dress up from time to time, but I wanted to save it for special occasions, not everyday living.

All of this added up to the idea that I was probably not going to grow up to be marriage material. And if I couldn’t even keep a doll alive, what were my chances of being able to raise an actual human baby?

Fast forward to today… that tomboyish little girl from long ago is now a middle-aged woman who is Mom to two beautiful children. In my eleven years as a parent, I have learned that I possess some previously hidden talents and skills. Like these ones:

1. Contrary to prior beliefs, I actually do have a mother’s instinct. I used to think that if I ever had kids, I would not survive without the aid of a million parenting books. To my surprise, I have been able to muddle through based on my gut feel and a hefty dose of common sense.

2. Although I do occasionally lose it, I have far greater reserves of patience than I ever thought would be possible.

3. I can survive on very little sleep.

4. I have the ability to completely tune out the constant talking of another human being, while giving the talker the impression that I’m listening intently.

5. I can accomplish long lists of tasks in very little time.

6. I am good in emergencies. Like one kid hitting the other kid on the head with a gardening tool, or someone trying to flush Bob The Builder down the toilet.

7. I am capable of organizing and hosting successful kids’ birthday parties without going completely insane. I do tend to need a good shot of wine afterwards, though.

8. While I regularly do without sweet treats so that the rest of my family can have some, I am not above occasionally hiding chocolate so that I can have it myself.

9. I’m brilliant at multi-tasking. I can cook dinner, help a kid with homework and conduct a telephone meeting with a client all at the same time.

10. I am a lot more creative in the kitchen than I ever gave myself credit for. If I lack both ingredients and the will to go to the grocery store, I’ll still be able to get something resembling a full meal onto the table. I’ll never be Gordon Ramsay, but at least no-one will die of food poisoning.

What hidden talents have you discovered since you became a parent?

This is an original post by Kirsten Doyle. Photo credit: Peter Becker. This picture has a creative commons attribution license.

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For James On His Birthday

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To my darling son James,

Nine years ago today, you finally decided to leave the comfort of the womb and join us in the world. You were a week overdue: either you were very comfortable where you were, or you figured that we would need an extra week of quiet before the adventure began.

The day of your birth was incredible, filled with little moments that I will never forget – like the little kid in the hospital coffee shop who was convinced that I was Santa Claus. You can’t blame him: it was Christmas morning and I had a massive belly and a Santa hat. The best moment of all, though, was when you came flying into the world like a cannonball, screaming in outrage. There was never any doubt that you had a very healthy pair of lungs and an abundance of energy.

Since that day, you have filled our lives with a very special kind of magic. You are never afraid to explore and discover not only what is in the world, but what is within yourself. Your massive imagination takes all of us on weird and wonderful journeys, and the front of my fridge is covered with your fabulous artwork. Your creativity combined with your love of animals has given us a zoo of animals that have been lovingly crafted by you. As I write this, you are transforming ordinary cardboard into a set of Wild Kratts creature power disks.

You have the biggest heart of anyone I know. You are one of life’s true givers who experiences absolute joy through the act of making other people happy. Every single day, I am on the receiving end of your spontaneous hugs and little handmade gifts and notes. I see the kindnesses you extend to your friends without even having to think about it. Being a caring person is so much a part of who you are that your school gave you an award for empathy.

The love that you have for your brother is genuine and complete. You do not take anything for yourself without first making sure George has something too. If George’s autism is making things difficult for him, you calmly and patiently do whatever you can to soothe and comfort him. You play with him, you share with him, you protect him. You take care of him so beautifully, and yet you think of him as your hero.

I know that sometimes I cannot keep up with your boundless energy and your constant chatter. But I absolutely love that those things are a part of your character, and I would not change a single thing about you.

I love you, and it is a joy and an honour to be your mom.

Happy birthday.

Lots of love,
Mommy

 

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Parenting: Live And Let Live

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Early this morning, while I was sipping my first coffee of the day and browsing through my Facebook feed, I came across a thread that made me feel incredibly sad. It was a post about co-sleeping, and one of the first comments was from a woman saying that she believed co-sleeping was fine as long as it was done safely, that she had co-slept with her first child and that she would co-sleep with any future children.

The thing that made me sad was how other moms lambasted this woman, told her that she was uneducated, and said that if she lost a baby, it would be her own fault.

I have no interest in starting another debate about co-sleeping. Quite frankly, I don’t have a strong position about the subject one way or the other. One of my babies slept in a crib, the other co-slept with me. I did what I felt was best for each child, and in both cases, I made safety the paramount concern.

What I do have a strong position about is the idea that the vast majority of parents do what they think is best for their children, most of them research their choices, and most of them do everything they can to keep their kids safe. Unless a mother is being deliberately and blatantly abusive or negligent, she should be allowed to make those choices for her children without worrying about what other people think.

It always fascinates me that a species as diverse as the human race tends to think in such absolute terms, and parents are no exception to this. Many of them tend to believe that there is only one right way of doing things, and it’s their way, and anyone who does things differently is a <insert insulting adjective> parent.

Frankly, I’m tired of it. When will parents just accept that what’s right for them is – well, right for them? The fact that some moms breastfeed their kids until Kindergarten does not give them the right to criticize moms who are unable to breastfeed or who simply choose not to do so. Parents who limit their kids’ screen time should not be accused of being unreasonable, and those who do not should not be branded as lazy. If you let your baby “cry it out”, you are not heartless and mean, and if you pick up your baby whenever he cries, you are not spoiling your child.

Your own personal experience – no matter how tragic – does not entitle you to judge other people. Your child’s autism diagnosis may have come shortly after a vaccination, but you don’t get to accuse pro-vaxers of being uninformed and ignorant. Maybe your formula-fed child developed life-threatening food allergies, but that doesn’t give you the right to tell other formula-feeding moms that breastfeeding would be possible if only they would try harder. If your baby died while co-sleeping, I am truly sorry for your loss, but please don’t go around telling parents who choose to co-sleep that they are potential child-killers.

I’m not suggesting that we all shut up about our beliefs and opinions, or that we stop sharing our experiences. On the contrary – parents who speak out about what they go through can be valuable resources to other parents who are struggling with their choices or looking for information about their options. It’s even OK to be passionate about something that you have a strong opinion about.

Just be respectful about it, that’s all. No blame, no finger-pointing, no judging.

This is an original post by Kirsten Doyle. Photo credit: mariana f. This picture has a creative commons attribution license.

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A Birthday Message To My Son

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To my darling George,

As you go through life, you will hear many people saying that they don’t know what the meaning of life is. What is the purpose behind it all? Why are we on this earth and what are we supposed to accomplish?

Eleven years ago today, I found out the answer, and it is not something that can be put into words. It is something that can only be understood from looking into the eyes of your newborn child as you contemplate the enormous responsibility of creating a life.

Your birth – all 21 hours of it – was an anxious time for me. I had never done this before, and I really didn’t know what to expect. It took me several hours to recognize my labour pains for what they were. I suppose my frantic nesting activities that day should have been a clue. I was almost manic with activity as I flitted from one task to the next, vacuuming, doing laundry, reorganizing the fridge, cleaning windows – all while each pain radiating from the centre of my being brought you one step closer to me.

And then, that magical moment arrived. I lay spent on a hospital bed as your first cries filled the room. You were placed into my arms, and as I felt the warmth of your tiny little body, the thought struck me: “This is it. I’m a mom.”

That day feels like it was five minutes ago and a lifetime ago. Sometimes I look at you and think about how far you’ve come, how tall you are, how you are starting to make the mysterious transition from boy to man. And other times, when you come to me in need of comfort or a hug, when you try to curl your lanky self onto my lap, I look at you and see my baby.

Life with you has been an adventure. You have not followed the same path as most kids. There have been many times when we have had to stray from the beaten track and take the scenic route. The scenic route may take longer and have more obstacles, but it allows us to look at life from a different angle, and when we arrive at our destination, the sense of victory is like nothing else on earth.

I keep hearing about how challenging it is to be the mother of a child who is different. And yes, the challenges are real and cannot be denied. But the truth is that above everything else, being your mother is an honour and a privilege. You, along with your brother, represent what life is all about. Every day, you teach me something new about the things that are really important – love, determination, perseverance, togetherness, family.

You are my heart and soul.

Happy birthday, my son. I look forward to another year of discovery and adventure as you start your next rotation around the sun.

I love you forever,

Mom

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Courage Under Fire: Perspectives Of An Israeli Mother

Not long ago, on a really bad day, I told someone that parenting a child with autism was like living in a war zone. When I look at what’s going on in the world around me, I realize that that is a ridiculous and insensitive comparison. I mean, I have the privilege of living in Canada – one of the richest places in the world, a country teeming with opportunity, that truly believes in peace and human rights. There are people who are parenting their children in actual war zones, like my friend and fellow writer Susie Newday. She lives in Israel, and she has graciously agreed to share her perspectives here on my humble blog. Please read, and share, because this is a story that really needs to be told.

courageisfireSometimes I manage an unplanned escape from the reality around me. I manage to forget about the reality in which air raid sirens are going off and depending where you live in the country you have between 15-90 seconds to get to a safe room or a bomb shelter before a rocket might hit. Most of the time we’re lucky, the Iron Dome Missile Defense System blasts the rockets in mid-air and all that’s left to worry about is shrapnel. Not that shrapnel is safe, it was deadly enough to kill a Thai worker today.

I’m one of the lucky ones. I’m not an old person who can’t run to shelter. I’m not a parent of a special needs child who has a hard time coping with change. I don’t live in the south where there has been a massive barrage after barrage of rockets. There, a whole decade of children have grown up with unexpected yet consistent rocket attacks, even after Israel displaced 10,000 Israeli citizens in 2005 and withdrew from Gaza.

Like many people in Israel, we didn’t really understand what our fellow citizens from the south were living through, until the rockets starting raining down on Tel Aviv, Jerusalem, Herzilia, Haifa and many more cities. Just imagine New York City, Paris, London or Ottawa being fired upon with even one rocket, let alone multiple non stop rockets. Would the governments of any of those countries go even one day without trying to wipe out the terrorists responsible? I think not. But for years Israel has not responded, because we don’t want to go to war.

In less than a month, there have been over 2000 rockets fired at Israel from Gaza by Hamas terrorists. Terrorists who hate us more than they love their children. They shoot the rockets from schools and hospitals while their children watch and are being unwittingly used as human shields. They build extensive tunnels originating under mosques, schools and residential buildings. Tunnels that cross underground into Israel with openings right near playgrounds and houses. Tunnels that have been used for terror attacks.

It’s odd how in just two weeks time, sirens and running for shelter or crouching on the ground with your hands over your head, have become routine for me, even when a rocket, not shrapnel lands less than a ten minute drive away. Because I have the luxury of 60-90 seconds to find shelter, when a siren goes off, I am not in a hurry or panic, the way the citizens of the south are.

“I was shaking from fear.” my 8 year old daughter told me about her first experience with a siren. They were rushed by their counselor in summer camp into a safe room and read psalms together.

She started refusing to go upstairs by herself because “what happens if there is a siren.”

And when we finally convinced her it was okay, while she was taking a bath one evening, the siren went off and my husband ran to yank her out of her bath and run with her to our safe room. As soon as we closed the door there were a few loud booms. You are supposed to stay in the safe room/shelter for 10 minutes. We waited impatiently, everyone checking their cell phones for news hoping that there were no casualties or damage. Then my husband remembered that he forgot to shut off the bathtub and he went upstairs to close the water.

And I wonder what kind of world we live in that I need to have a special concrete and metal fortified safe room.

Sometimes when the TV and radio are off and I’m not on Facebook, I can forget the collective unbearable pain of my country and its citizens. So far my heart has stopped 32 times, with the announcement of the death of each soldier.

My second son is in an elite urban warfare combat unit as is my nephew. My other nephew is in a tank in Gaza. But even if my son and nephews weren’t soldiers, the pain would be no less unbearable. I cry for the loss of tomorrow, for the future that will never be. I cry for the over 150 soldiers who have been injured and for the families who will never be the same. I cry for the innocent civilians on both sides who are being injured and killed because of extremist Islamic radicals who only know hate. They don’t care about their own people, all they care about is killing Jews and wiping the State of Israel off the map.

When the television and radio are turned off I can sometimes pretend that I’m not living in limbo and uncertainty. When the sirens don’t go off at work and I don’t have to round up my oncology patients hooked up to their IV chemotherapy and escort them to a safe room, I can sometimes forget the reality that I’m living in a tiny country hated so much by so many. The only democratic country being condemned over and over by people who claim they are pro human rights. As Hillel Neuer, Executive Director of UN Watch said on July 15, 2014:

“If in the past year you didn’t CRY OUT when thousands of protesters were killed and injured by Turkey, Egypt and Libya, when more victims than ever were hanged by Iran, women and children in Afghanistan were bombed, whole communities were massacred in South Sudan, 1800 Palestinians were starved and murdered by Assad in Syria, hundreds in Pakistan were killed by jihadist terror attacks, 10,000 Iraqis were killed by terrorists, villagers were slaughtered in Nigeria, but you ONLY cry out for GAZA, then you are not pro HUMAN RIGHTS, you are only ANTI-ISRAEL.”

And he is right. As Dennis Prager said: “As hard as it is for modern, rational and irreligious people to accept, Israel’s Jewishness is a primary reason for the hatred of it. ”

Yet even with all the pain and uncertainty and fear, I feel proud. Proud to be an Israeli, proud of my sons, daughters and countrymen. I am proud of the ethical and compassionate army we have, the only army in the world who puts their our own soldiers’ safety at risk in order to minimize civilian casualties. The only army that spends days warning civilians to evacuate, dropping leaflets in Arabic and making phone calls. They do all this at the expense of tactical surprise. Bombing strikes are called off when there are civilians in the vicinity, called off leaving the units on the ground with less support than they should have.

I want evil wiped out. I want peace, real peace, not one sided concessions. I want to be able to raise my children in security and without fear. And sadly it seems like a far fetched dream. If someone hates you for your religion or country, how will they ever see past that hate to get to know you as a person? How will they ever see that you are a mother or father like they are?

I pray in my heart that one person at a time can bring about change. I pray that one connection at a time with people different than myself will bring about an ever growing ripple that can and will change the tide of hate and war.

I pray for the day when no nation will want to go to war against another because we will all live in peace.

Susie Newday is a happily married mother of 5. Born in the USA, she moved to Israel at age 21 when she was pregnant with her second child. By profession she is an RN, and now works in outpatient oncology after 15 years as an ER nurse. For fun she loves to take photos, write, drive people crazy on Facebook and of course to write. You can find her musings in many places including on her blog New Day New Lesson as well as World Moms Blog.