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Keeping The Conversation Going

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When Robin Williams committed suicide back in August, a friend predicted that everyone would post obsessively about depression awareness for a week before forgetting about it and moving on. Apart from the duration – the posts lasted for two weeks – her prediction was dead-on.

Three months after the death of Mr. Williams, Facebook and Twitter posts about mental illness had all but disappeared. Then a woman named Brittany Maynard started trending on social media when she chose assisted suicide over a horrible death from cancer.

Reactions to her death have been all over the place. There are those who believe Brittany’s decision showed courage and strength of character, and there are those who are convinced that she is burning in hell because of her selfishness and disobedience of God.

I want to make it clear that I am in no way equating the deaths of Robin Williams and Brittany Maynard. Robin Williams fought a long battle with depression. He felt desperate and hopeless, and when he looked into the future all he could see was a bleak, desolate landscape. Brittany Maynard was not suffering from depression, and she did not want to die. She simply knew that her death was both inevitable and imminent, and she wanted to spare herself and her family the ravages of brain cancer.

The only thing the two deaths have in common is that both individuals chose to take their own lives.

Whether or not terminally ill people are obligated to see their diseases through to the bitter end is a matter of personal opinion, and that’s another debate for another day. The thing that I took issue with after Brittany died was a comment posted by one of my Facebook contacts on a link to the story.

“Anyone who commits suicide is selfish.”

I was certain that I had seen the commenter’s name crop up in one of the discussions following the death of Robin Williams, so I started digging around in the bowels of her newsfeed. It took a while, but I found it: a statement to the effect that people really shouldn’t judge those to take their own lives without walking a mile in a depressed person’s shoes.

I’m not usually one to start a fight, but one thing I cannot stand is hypocrisy, and as an advocate for mental health awareness, I couldn’t just let it go. So I went back to the Brittany Maynard discussion and replied to her comment, reminding her of what she had said when Robin Williams died. She didn’t respond. Unfortunately, her comment about suicide being selfish was far from isolated.

I am left feeling somewhat disheartened. Did we learn nothing from the Robin Williams tragedy? If, three months later, people are spouting those cruel stereotypes that they previously vowed to help fight, how are we ever going to move forward? Will we ever be able to continue the discussions, or are we going to keep having to start the same discussions over and over again?

I don’t expect everyone to start posting endlessly about mental illness, but I would love to see it consistently treated with the same respect that is given to physical illness. I would love for people to feel able to talk about their experiences with mental illness without fear of embarrassment or shame. I would love to see the judgments and blame replaced with understanding and support.

And I would love to see more meaningful conversations that are not triggered by tragedy.

This is an original post by Kirsten Doyle. Photo credit: Victor. This picture has a creative commons attribution license.

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Autism And The Art Of Conversation

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Every night, I give my older son George a piggy-back ride to bed. These days are numbered, of course. George is almost nine and he’s all arms and legs. Someday soon, he will too tall and heavy for me to cart around on my back. For now, though, I treasure these last days of being able to pick up my son.

We get to his room, where I dump him unceremoniously on his bed. He tucks himself in while I turn off the light, and then I lie down beside him. For the next few minutes, it’s just him and me, alone in the entire world.

We talk. I ask him questions. He answers them.

Who does Mommy love? She loves George.
Who does George love? He loves Mommy.
How do you feel? Happy.
Did you have a nice day? Yes.
Where did you go? School.
What did you do there? Math.

Always the same questions. Always the same answers.

I follow this ritual for the sense of closeness between me and my son, because it’s a comforting part of our time together. I also do it to help him practice the art of conversation. His verbal communication skills are worlds behind those of typical kids his age. He knows how to talk, how to make requests and the occasional joke. He is starting to make the odd remark for social purposes, and not just when he needs something.

But he does not know how to have a conversation. So I am teaching him.

When George was first diagnosed with autism, he did not know how to point. Over a period of eleven painstaking months, during which I followed the same routine every single night, no matter how futile it seemed, I taught him how to point. I still cry when I think of the first time I was rewarded with him pointing independently.

If I could teach him how to point, surely I can teach him how to have a conversation. After all, they are both forms of communication, right?

From time to time, I switch up the questions during our nightly routine, and ask him something else. When I do that, he never answers the question I ask. He gives an answer to the question he was expecting. I don’t mind. It just shows that he’s not yet ready to move to the next level. There’s no rush. I can wait. It will happen when he’s ready for it to happen.

It’s OK that he has memorized the sequence of questions and answers. Children learn to read in much the same way, rote-repeating sentences that they have heard many times, before making the connection with the printed text. There is every reason to believe that George’s relationship with conversation could evolve in much the same way.

While I’m helping him learn a skill that will be of value to him for his whole life, I am treasuring those nightly moments we spend together.

(Photo credit: Kirsten Doyle)

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Autism Through A Child’s Eyes

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 8 – Best conversation I had this week: Try writing script-style (or with dialogue) today to recap an awesome conversation you had this week.

I’m not much of a person for conversations. I suffer from social anxiety, so talking is difficult. I tend to be more comfortable finding my voice in the form of the written word.

Obviously, this is less of a problem when I am among friends and family. I am married to a man who, in addition to having a totally off-the-wall sense of humour, has no “inside voice”. The conversations I have with him range from the baffling to the downright hilarious.

I also have some great conversations with my younger son, James. For a six-year-old, his vocabulary is astounding, and his imagination knows no bounds. He weaves in and out of topics at will, and you can never tell where the conversation will go next. One moment he seems to be wise beyond his years; the next, we are reminded that he is still a kid finding his way in this world.

A few days ago, we had this conversation while I was cooking dinner:

James: Mommy, can you buy me a water gun?
Me: Why do you want a water gun?
James: So I can spray Granny on the nose.
Me (after snarfing on my coffee): Why do you want to do that?
James: Because her nose is dry and that means she’s sick. Roger (a classmate) said so.
Me: Roger said that Granny is sick if her nose is dry?
James (looking at me as if I’m nuts): No. He was talking about his dog.
Me: Ummmm, James? Dogs and people aren’t the same. Granny’s nose is fine.
James: I think Roger’s dog has autism.
Me: What makes you think that?
James: He doesn’t talk and he knocks down Roger’s Lego towers. It’s not his fault, though. He doesn’t know what he’s doing because he has autism.
Me: James, that’s just the way dogs are. Dogs don’t have autism.
James: How do you know?
Me: Ermmmmm (thinking: the kid has a point)
James: Mommy?
Me (wondering about James’ sudden sombreness): Yes, buddy?
James: Will George always have autism?
Me: Yes, baby, he will. Autism is not something he can grow out of.

I want to pause this account briefly to say that where autism discussions with James are concerned, I find that honesty is the best policy. I don’t try to sugar-coat anything, and I answer questions without elaboration. This approach seems to be the one that works best with James.

James: That’s OK. I love him.
Me: I know you do. And he loves you too.
James: Yeah! Mommy?
Me: Yes?
James: Will George die from autism?
Me: No, people cannot die from autism. We just have to make sure we keep him safe.
James: It’s OK, Mommy. I’ll take care of him.

Yes, I cried.

(Photo credit: Kirsten Doyle)