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The Princess And The Dragon

A few days ago, I was play-wrestling with my kids in the living room. They were beating me hands-downs. I mean, it’s hardly a fair contest, is it? There are two of them and one of me, so I was at a mathematical disadvantage right from the outset.

So anyway, there we were, rolling around on the floor. I was lying face-down trying not to choke on bits of carpet. James was sitting on my legs poking his very pointy elbows into my back. And George was trying to pull my head off my neck. All of a sudden, James lost his balance, rolled off me, and bumped his head lightly on the table.

Instantly, the wrestling came to an end (much to my relief, it must be said) and James started screaming in outrage, underscoring the theory that he was born with the drama queen gene that runs in my husband’s family. When I had managed to calm him down and convince him that not only was he not bleeding to death, he hadn’t even broken the skin, he said to me, “Do you know how much that hurt?”

“How much did that hurt?” I obligingly asked him.

He replied, “That hurt more than a pickle falling on my eyeball.”

James’ use of words is just incredible. His extensive vocabulary coupled with a colourful imagination results in word pictures unlike anything I’d be able to come up with. I mean, a pickle falling on your eyeball? How do you even think of that?

It beats the time we asked him to tell us a story, and he said, “Once upon a time there was a poo. The end.”

His imagination clearly wasn’t firing on all cylinders that day, although for a week after that, I couldn’t get the South Park song “ Mr. Hanky The Christmas Poo” out of my head.

More often than not, though, James does come up with really creative stories. It used to be that he would provide the plot and I would turn it into a coherent story, but now he doesn’t even need me to do that.

Yesterday evening, while I was cooking dinner, James was sitting at my desk busily working away with a piece of paper and a pencil. When he was done drawing, he joined me in the kitchen, showed me his picture, which depicted a girl standing at the window of a castle and a dragon flying by, and solemnly said, “I am going to tell you a story about this picture.”

I sat down with my boy and listened as he spun a wonderful tale…

Once upon a time, there was a beautiful princess who lived in a castle. She had long black hair and the prettiest dresses in the whole wide world. One day, Dragon came to visit the princess. She wasn’t scared, because this was a friendly dragon and she knew he wouldn’t hurt her. She took him to the back yard, and gave him tea and cookies.

The dragon told the princess that he wanted her to give him one of her pretty dresses. The princess asked why he wanted a dress, and he told her it was a surprise.

The princess had lots and lots of dresses, so she gave one to the dragon. He finished his tea, played in the sandpit, and then left with the dress in a plastic bag.

The next day, the dragon came back, and he had the handsomest prince in the world with him. The dragon said, “You were lonely so I made you a prince to marry. And my granny turned your pretty dress into a wedding dress.”

The prince and the princess loved each other, and the princess put on the pretty wedding dress, and they got married.

The end.

Personally, I think the princess was kind of slutty to get married to someone she didn’t know, but I still think it’s a lovely story.

(Photo credit: http://www.flickr.com/photos/pathfinderlinden/3118654532/)

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2011 Run For Autism – The Countdown Begins

I’m feeling fantastic today!

Actually, that’s not strictly true. I was awake all night with a sick child, who at some point during the process very generously shared his bug with me, as a result of which I am bone-tired and tossing my cookies. So in reality, I feel really, really rough. I feel like a hedgehog that just got dragged backwards through the business end of a lawnmower.

But despite my less than stellar physical condition, I am feeling good about some things that have happened this week.

First, I resumed early morning running. I’ve been a little out of it for a while, and a lot of my running has been done on the treadmill. But two days ago, I dragged myself out of bed and went for a run before work. It was great. I felt the way I always do when go for early morning runs: alive, invigorated, positive about starting the day with an accomplishment. And since my route involves me running east over the Rouge Valley bridge, I get treated to the most spectacular sunrises. I mean, what’s not to love about all this?

Later that same day, I got a series of emails informing me that I am now officially registered for the Scotiabank Toronto Waterfront Half-Marathon. Which means that everything I do between now and then (everything running-related, anyway) is in preparation for that race. It is my annual Autism Run – the reason I got back into running two years ago. This will be my third year doing the run. In 2009, I finished in about 2 hours and 28 minutes. In 2010, I improved that time to 2:22:38, knocking more than six minutes off my time from the previous year. This year I want to do something even more spectacular, and break 2 hours.

That will be a tall order. Taking 22 minutes off a time over a distance of 13.1 miles? It’ll be tough. But that’s not going to stop me from trying.

The other thing this all means is that I am now officially fundraising, enlisting people to sponsor me for the run, trying to gather together as much money as I can that will all go towards providing services for children and youth with autism.

I cannot stress how important this is. George’s progress since diagnosis has been off the charts, but this is no accident. It has taken many hours of hard work, buckets of tears, patience, IBI therapy, parent training, information sessions, and advice. George would not be where he is today if it weren’t for the Geneva Centre for Autism, who have provided services and training and all kinds of other resources.

I cannot help but think that if George continues to get services that evolve with his needs as he grows up, the sky will be the limit for him. This child is so loaded with potential, but he does need help and support to realize it. If funding dries up, so does my child’s future.

So I spent some time yesterday setting up my fundraising page. I have set my initial target at $500, but I am really hoping to surpass that and raise the target. Preferably more than once.

My call to action is this: if you have the financial means, please consider sponsoring me for my run. If you cannot afford it (and I totally get  that – life ain’t easy for many people right now), then please spread awareness about autism. Help spread the word that people with autism are a valuable part of our society.

And if you circulate the link to my fundraising page, that will be an added bonus as well.

I am excited about getting this show off the road and doing the best I can for my George, which means doing the best I can for my family, and for the community of autism.

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Talking Toys

The day before yesterday, I felt like buying presents for the kids. It’s not Christmas, it’s not anyone’s birthday, it was just a day when I wanted to pull out surprises for the kids when I got home and see their faces exploding with smiles.

Getting presents for James is easy. There’s just one general guideline to follow: if it has wheels, he’ll love it. When he was younger, it was Thomas the Train. Then it was Hotwheels. And for the last year or so, it’s been Disney’s Cars. The kid has about twenty Lightning McQueens and fifteen Maters, plus a Sally, a Sheriff, a Red The Fire Truck, a Doc Hudson, and all of the other characters, and it’s still not enough. The Cars obsession showed signs of starting to flag a little, but that was before the preview for Cars 2 came out.

And now the toy stores have come out with a whole new line of Cars 2 products. And so I headed straight for the display and picked out a Lightning McQueen (yes, another one) and a Mater (yes, another one). These aren’t just any Lightning and Mater, though. Some previous iterations have had features like the ability to light up or make vroom-vroom noises. These new ones do all of that AND talk!

Buying presents for George is more of a challenge. He doesn’t play with toys in the same way that other kids do. He’s into more cerebral stuff that lets him work with words or numbers, but there are only so many alphabetic fridge magnets and alphanumeric toys that you can buy for one child. The only toy toys that he really likes are Lego blocks and Mr. Potato Head. And again, he has so much of that stuff that buying more would seem like overkill. I mean, his Mr. Potato Head collection fills three large boxes.

But still, there’s always hope that Hasbro has come up with a new Mr. Potato Head character to add to Indiana Jones Taters of the Lost Ark, Darth Tater, and all the rest of them. So I headed over to the Mr. Potato Head section, and to my utter astonishment, I struck gold.

A talking Mr. Potato Head.

This thing is super-cool. You don’t even have to press any buttons to make him talk. He’s equipped with a built-in microphone that picks up on conversation and noises in the room, and he talks back. His repertoire of things to say is surprisingly extensive. An added feature is that when the room is silent, he will say things like, “Can I get some attention around here?” And if you make a sudden loud noise like banging on the table or clapping your hands, Mr. Potato Head’s pieces come flying off.

It’s a fun, fun toy. A bit challenging to have in the room when you’re trying to watch TV because it keeps providing a running commentary, but that’s a minor detail to live with. What’s really fantastic about it is how much George loves it. Getting him a toy that he instantly engages with and has fun with is such a rare experience, and we savour it.

In the meantime, James has fallen in love with his talking Cars cars. He gets them to have conversations with each other (they too, have a decent repertoire).

So things are peaceful in my house right now, with the kids each having cool new toys to play with.

And because of the nature of the toys involved, things are very, very talkative.

(Photo credit: http://www.flickr.com/photos/kiraca/5651863946)

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Resurrecting Beanie

On Saturday afternoon, I was startled from a Facebook-induced trance by the sound of James wailing as if the world had just ended.

“What on earth is the matter?” I asked.

“Plant died!” he cried. “Plant died!”

Bearing in mind that five minutes previously, James had been crashing toy monster trucks into each other, it is understandable that I was completely confused.

When I investigated, I discovered that each child in James’ class at school had grown a small potted plant from seed as part of a project. On Friday, the project was deemed a success, and the children were allowed to take their plants home with them. James’ plant was placed in a large brown paper bag, which was placed in his backpack. Which James’ lazy mommy did not check on Friday evening.

So by the time James opened his backpack on Saturday, the soil in the pot was dry and much of it had spilled into the bottom of the paper bag.

The good news, though, was that although the plant looked a little the worse for wear, it was still alive. Somehow I managed to calm down this hysterical child who was screaming as if the family Labrador had died, and I convinced him that – um, Plant – would be OK.

I poured the soil from the paper bag back into the pot. I stood the pot on a saucer and stuck a stick into the soil to support the plant, which is some kind of viney thing that cannot stand on its own. I watered the plant and showed James how it was green and strong, and not at all dead. I promised him that together, him and I would take care of it.

Yesterday, I asked James if he wanted to check on Plant’s progress.

“His name is not Plant,” said James in grand tones. “His name is Beanie.”

Beanie? Why Beanie?

When asked, James replied as if I was a complete moron for not getting it: “Because it’s a beanstalk.”

It is? Well, I’ll just have to take James’ word for it. I wouldn’t know a beanstalk if it jumped up and bit me on the butt.

Beanie was doing well. James fed it – I mean, him – some more water. On the advice of my mother-in-law, who knows considerably more about gardening than I do, we moved Beanie to a different spot, where he would get just the right mix of sun and shade.

And so the care of Beanie, who is maybe seven inches high but is, according to James, fourteen years old, has become an integral part of our daily routine.

This plant had better not die. There is a lot of pressure on me to make sure it stays alive. If anyone has any horticultural tips on ensuring the survival of what may or may not be a beanstalk, please pass them on.

(Photo credit: http://www.flickr.com/photos/emeryjl/1157150558)

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He Ain’t Heavy, He’s My Brother (2010/04/23)

With the arrival of my Mom yesterday, I did not have the time or inclination to post. However, I do still want to keep up with the Post A Day challenge, so for the next two weeks, while I’m doing stuff like visiting with my Mom and getting married, you may see a number of reposts. Like this one… I thought it would be fun to unearth the post from this day in 2010…

My boys have fallen into a new sleep routine.  At bedtime, we do all the stuff we always did.  They get their jammies on, use the bathroom, brush their teeth (most days they have a bath earlier in the evening).  For story-time, I sit on my glider chair between their beds – the same glider chair that saw me through countless night-time feedings when my boys were infants.  George gets right into bed, James curls up on my lap, and they each drink their milk while I read a story (current flavour of the day: anything to do with Thomas the Train).  After the story, James gets into his bed, each of them gets a sip more milk, and the lights go out.

About five minutes later, we usually see a little face quietly peeking around the corner: George, trying to sneak onto the futon we have in our living room so he can watch TV.  Or maybe he just wants the extra hugs we always give him, because once we’ve hugged him he goes back to bed amenably enough.  At some point during the night, usually fairly early on, he migrates to the sofabed in the playroom, and sleeps there for the rest of the night.

Sometimes I worry about this.  From time to time, when one of the kids is having a hard time, I have to sleep on the sofabed with said kid, and that thing ruins my back.  I always wake up the next morning feeling as if I’ve been tortured by Vikings.  I worry about whether the sofabed is doing to George’s back what it’s doing to mine.  But once he’s there he won’t budge, he sleeps soundly, and he wakes up cheerfully enough.  So maybe he’s OK and I just need to chill out a little instead of finding yet another thing to be perpetually stressed about.

In the meantime, James is sleeping soundly in his own bed.  He’s a little champion at bedtime, James is.  Once the lights are out he goes right to sleep without a fuss.  He usually wakes up in the middle of the night, though – sometime between midnight and three in the morning.  When I found out the reason for his nocturnal awakenings, my heart soared: he gets lonely for his big brother.  He makes his way to the sofabed, climbs in beside George, and goes right back to sleep.  George surfaces just enough to shift to make room for James, then he goes to sleep as well.

I am always the first one in the household to wake up in the mornings.  Some days – like today – I go for an early morning run.  Other days, I like to get dressed, pour out a cup of coffee, and have some me-time at the computer reading emails or playing meaningless games on Facebook.  I love carving out that time for myself in the mornings, before the rest of the world wakes up.

Whatever I am doing – running or playing on the computer – the first thing I always do is check on my boys.  I go to the playroom and watch them sleeping peacefully, each completely at ease with the other’s presence.  They look cosy and comfortable, like a pair of sleepy kittens.  There is always physical contact between the two: James’ hand resting on George’s, or George’s hand lightly touching James’ shoulder.  When I checked on them this morning, George’s arm was flung over James’ shoulders.  It looked big brotherly and protective.

I savour those moments as I watch them and wonder what dreams are going on in those little heads.  Even though they are sleeping, I feel as if I am witnessing a moment of special connection between the two brothers.

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Performing Artist In The Making?

Sometimes it is just not possible to write a post. People get sick or busy, unexpected things happen, and life just gets in the way.

Or sometimes people throw bridal showers for you – or in my case, Jack & Jill parties – and you spend the day drinking red wine and watching your future mother-in-law pay $50 for the privilege of throwing a pie in your fiance’s face.

The last of the guests has left, and the last glass of wine for the evening has been drained. It was a good, good day – one that I needed, because my stress levels have been through the roof. I’m in no fit state to write because I’ve had a lot of wine and I’m slurring my words. Instead, I offer you this picture of James acting like a ham.

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The Wheels On The Bus Go… WHERE?

The start of the next school year in September is going to be a big time for our family, as both boys make the leap to full-time school. In August, George is being discharged from the therapy centre where he currently spends his mornings, and James will be graduating from half-day Kindergarten and going into First Grade. It is a big adjustment for both boys, and although I expect some fallout, particularly from George, I am not too concerned. I have faith in both of the boys’ schools.

It’s the school buses I’m worried about.

For James, this isn’t an issue. We live too close to his school for buses to be in the picture for him (much to his disappointment; James would love to ride in a school bus like his big brother).

George, on the other hand, needs the bus, and four years’ worth of problems in the school bus system have taught us a very unfortunate fact: when it comes to scheduling school bus runs, special needs children are treated as an afterthought. The children who do not have any disabilities – in other words, the ones who as a rule are more adaptable and resilient – have their scheduling sorted out very early on in the school year. And the children who do have disabilities – the ones who are vulnerable, have higher levels of anxiety and more reliance on routines – easily spend six weeks or more being picked up at different times, by different drivers, and spending inordinately long periods of time on the bus, while their parents try to figure out what is going on.

Like most parents of young children, I want to know where my kids are at all times. I want to be able to know that at this time, George is on the bus, or at that time, James is eating lunch at the daycare. I do not want to be wondering whether or not George is still at the therapy centre and why the school is calling me to ask why he hasn’t shown up yet.

Last year, right after the Thanksgiving weekend, there was an incident with George’s bus that, while turning out OK, could have had terrible consequences. At that point, we had struggled with the bus company for almost two months getting George’s schedule worked out, and we thought that it had finally been resolved. George was being picked up at a consistent time from the therapy centre by a driver he knew from the previous year, and he was spending half an hour at most on the bus before being dropped off at school for the afternoon.

On the first day back after the Thanksgiving weekend, George was picked up at the usual time by the usual bus driver. He was driven to school.

The only problem was this: it was the wrong school.

Thank goodness George had on a seatbelt lock, which prevented him from getting up, walking off the bus, and getting lost or worse. Thanks to the seatbelt lock, someone had to actually get onto the bus to remove the seatbelt.

The teacher who took George off the bus didn’t know what was going on. She took the driver’s word that George was supposed to be there. It was only when the driver had left and George was standing in the principal’s office with a confused babble of grown-ups surrounding him that someone realized that a mistake had been made.

For a regular kid this would have been bad enough. For a child with autism who is afraid of people and places he doesn’t know, and who has severe communication impairments, it was downright traumatic.

Somehow the principal figured out who George was, and through a series of phonecalls, was able to figure out where he was supposed to be. A child’s booster seat was dug up from somewhere, and the principal bundled George into his car and drove him to the right school.

It only then, when George had arrived at his own school, that someone thought of calling me and Gerard to tell us what had happened. Up until that point, we had been completely oblivious to all of this.

While we were unbelievably grateful to have our child home safe and sound at the end of that day, we were haunted by thoughts of “what if”. The thoughts of “what if this happens again” prompted us to spend the next few weeks trying to figure out what the hell had happened.

We never did receive satisfactory answers. We do know that the bus driver was not at fault, that she was given the wrong information from higher up. We also know that in said higher-up’s attempt to avoid responsibility, the bus driver was relieved of her duties. There were no attempts made to figure out what had gone wrong so that steps could be taken to prevent it from happening again.

And in a few short months, we are going to have to fight a new battle for a new school year.

(Photo credit: http://www.flickr.com/photos/alextakesphotos/149198520)

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James, Trains And Automobiles

From the time he was a baby, James loved trains. Loved, loved, loved them. In fact, potty-training him turned out to be quite an expensive endeavour, because his rewards were trains. Not just any trains – they had to be Thomas the Train trains. I suspect that James drew out his potty-training for long enough to collect most of the Thomas the Train characters. He even got a Sir Topham Hat (who, if I’m to be honest, creeps me out just a little – I mean, he looks like an adult baby, reminiscent of Dr. Evil in the Austin Powers movie).

Then, about two years ago, James was given a DVD of the movie Cars, and just like that, the trains became second-class citizens in his toybox. Now it was all about Lightning McQueen, Mater, Doc Hudson, and all the rest of them. No creepy human characters in this lot – the Cars cars inhabit a world consisting solely of cars, trucks, and helicopters.

The movie is actually quite cool. It has a bit of everything: action, suspense, comedy, and a moral message. It even has those essential elements: a car chase and a love interest.

Since he first saw the movie, James has built up a staggering collection of Cars stuff. He has more Lightning McQueens than I could possibly count, as well as at least one of all of the other characters. He’s got race tracks, ramps, tipping tractors (tractor-tipping is like cow-tipping – don’t even ask), and several Radiator Springs buildings. He has a Firetruck Mater, Monster Truck Mater, Bulldozer Fighter Mater, and some good old plain Maters. His toothbrush, shoes, and backpack all feature Lightning McQueen. He’s got books, puzzles, and the Mater’s Tall Tales DVD.

Our household has probably singlehandedly kept the Disney Cars industry alive.

And now a sequel to Cars is coming out soon. In this one, Lightning McQueen competes in an international Grand Prix, and Mater gets sucked into an espionage situation (to get an idea of the incongruity of this, picture Mr. Bean trying to be James Bond).

James is dead-keen to see the movie, and not on some lame-ass TV screen. He wants the real-deal, big-screen movie theatre. And that is why his very first trip to the cinema is in his very near future.

Today, some exciting news came my way. News that will make James a very happy little boy indeed. This weekend, Lightning McQueen and Mater are in Toronto. They will be setting up camp in one of the larger shopping malls, and making themselves available for their adoring fans.

It is going to be crowded. There will be hundreds of screaming kids running around like lunatics, and hundreds of sobbing parents running after them, trying to contain them. Do I really want to put myself through that kind of stress?

Damned right I do. Seeing the look of joy on my child’s face as he beholds his Cars heroes will make it all worthwhile.

(Photo credit: http://www.flickr.com/photos/beaub/5159613205)

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Life As Seen By My BlackBerry

On days when words fail me, my BlackBerry comes through. I have gotten into the habit of taking pictures with it, because it is so convenient. I don’t always have my camera with me when Kodak Moments crop up, but I always, always have my BlackBerry.

As a result, I have a multitude of pictures stored on this trusty little device (people are always telling me that iPhones are better, but since I’m anti-Apple and refuse to own anything that starts with “i”, I am not likely to find out). And so, on days when I do not have the time or the mental wherewithal to assemble coherent strings of related words, I can rely on my library of pictures.

As I do today, as I give you this photographic offering.

Yes, it's blurry, but it's still a great pic!

Dopey and Dopier

Sign made by James: No Dogs Allowed

What's he doing with his face?

What's he doing with his face again?

George and his creation

Proof that they *can* sit together quietly!

Move over, Gordon Ramsay!

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Can You Call Back Later?

After a fairly quiet morning, my phone just rang. I was struck by an initial blast of panic because I hate talking on the phone, except to a select group of people that includes Gerard, my Mom and other close family members. According to the display, it was a long-distance call but no number was available to be displayed.

The only reason I answered was that my Mom had told me my brother might call.

It was not my brother. It was a telemarketer.

This is what the conversation went like:

Me: Hello?

Telemarketer: Hello, this is Rajid from ABC Windows and Doors. How are you today?

Me: I’m fine thank you, how are you?

Telemarketer: I’m fine, thank you for asking.

Me (interjecting quickly but politely to avoid having to listen to the sales pitch): To save us both time, I’d like to mention that I am not interested in buying anything right now.

Telemarketer: Oh no, I’m not trying to sell you anything. I just want to offer you a special price on our windows and doors, for this week only.

OK, did I miss something here? The man tells me that he’s not selling me anything. In the very next sentence he tells me that he wants to sell me something. Whoever wrote the script manual for that telemarketing company should probably look for a new job.

Despite the fact that we are on all kinds of Do Not Call lists, we get our share of telemarketing calls. I deal with them by getting rid of them as quickly but politely as possible (they may be annoying, but they’re just doing their job, and it costs nothing to be nice), or more commonly, by simply not answering the phone.

Gerard has a very different approach. He likes to engage them in conversation and have a little fun messing with them (not in a malicious way; he’s never mean to them).

Several years ago a very nice lady called us – strangely enough, it was also to sell windows and doors. “Would you mind calling back a little later?” Gerard asked sweetly. “I’m in the middle of having sex with my wife.”

Cripes. Even though there was no-one to actually see me (apart from Gerard), I still turned beet-red.

Then there was the time someone called to tell us that James had completed a suvery and won a three-night stay in a hotel in Mexico, and that he would just have to listen to a three-hour time-share presentation. We informed the caller that the then 16-month-old James did not have the writing skills to complete a survey, and that the presenter would have to stop mid-way through his talk to change a diaper.

More recently, we got a call from a guy selling alarm systems, who was so persistent that it was almost admirable. Eventually, Gerard told him that we didn’t need an alarm system because we would simply shoot anyone who started stealing our stuff. The poor guy spent a whole thirty minutes on the phone discussing the merits of alarm systems vs. guns. Ten out of ten for perseverance.

I think I might have a new way of dealing with telemarketers: I will simply give the phone to James (yes, the same James who at 16 months, won a three-night stay – as yet unredeemed – in a Mexican hotel). James has, it would seem, inherited Gerard’s propensity for saying outrageous things.

Telemarketers of the future, beware.

(Photo credit: http://www.flickr.com/photos/jonphillips/4423187529/)