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A Birthday Message To My Son

Mother and son 2

To my darling George,

As you go through life, you will hear many people saying that they don’t know what the meaning of life is. What is the purpose behind it all? Why are we on this earth and what are we supposed to accomplish?

Eleven years ago today, I found out the answer, and it is not something that can be put into words. It is something that can only be understood from looking into the eyes of your newborn child as you contemplate the enormous responsibility of creating a life.

Your birth – all 21 hours of it – was an anxious time for me. I had never done this before, and I really didn’t know what to expect. It took me several hours to recognize my labour pains for what they were. I suppose my frantic nesting activities that day should have been a clue. I was almost manic with activity as I flitted from one task to the next, vacuuming, doing laundry, reorganizing the fridge, cleaning windows – all while each pain radiating from the centre of my being brought you one step closer to me.

And then, that magical moment arrived. I lay spent on a hospital bed as your first cries filled the room. You were placed into my arms, and as I felt the warmth of your tiny little body, the thought struck me: “This is it. I’m a mom.”

That day feels like it was five minutes ago and a lifetime ago. Sometimes I look at you and think about how far you’ve come, how tall you are, how you are starting to make the mysterious transition from boy to man. And other times, when you come to me in need of comfort or a hug, when you try to curl your lanky self onto my lap, I look at you and see my baby.

Life with you has been an adventure. You have not followed the same path as most kids. There have been many times when we have had to stray from the beaten track and take the scenic route. The scenic route may take longer and have more obstacles, but it allows us to look at life from a different angle, and when we arrive at our destination, the sense of victory is like nothing else on earth.

I keep hearing about how challenging it is to be the mother of a child who is different. And yes, the challenges are real and cannot be denied. But the truth is that above everything else, being your mother is an honour and a privilege. You, along with your brother, represent what life is all about. Every day, you teach me something new about the things that are really important – love, determination, perseverance, togetherness, family.

You are my heart and soul.

Happy birthday, my son. I look forward to another year of discovery and adventure as you start your next rotation around the sun.

I love you forever,

Mom

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Embracing Autism

If there was a cure for autism, would you use it for your child?

This question was posed to me recently by a non-autism parent, and it really made me think. Before I was an autism mom – indeed, before I was any kind of mom – my immediate instinct would have been to say “Yes! Absolutely! What kind of parent would choose for their child to have a disability?”

Now that I can speak with the voice of experience, my answer to that question is very different. There are some aspects of autism that I would get rid of in a heartbeat. When my son, now eight, has his meltdowns, the expression of anguish in his eyes breaks my heart. If I could wave a magic wand, I would give him the ability to communicate the pain that he feels during those outbursts. I would make the changes of seasons easier for him, I would make Christmas less overwhelming, and I would give him the skills to play with his little brother.

On the other hand, there are things that I would not change in a million years. Someone once told me that my son is very smart “in spite of his autism.” I gently corrected this person by telling her that my son is very smart because of his autism. His mind works in a very unique way. Thanks to his out-of-the-box thinking, this kid can problem-solve rings around the rest of us. He can do multiplication in his head, and this is something that no-one has ever taught him. He just figured it out himself. He sees patterns that are lost on everyone around him: once, when he was putting coloured pegs into a board, I literally had to squint at the board from a number of angles before the pattern he was creating suddenly jumped out at me. If he was given a cure for autism, that incredible way of thinking would disappear.

In the eyes of society, my son has a disability. The education system regards him as having special needs, autism is classified by the medical community as a disability, and the government has granted us a disability tax credit for him. And rightly so: my son definitely needs special accommodations. There is no way he can function in a neurotypical world without assistance. Although I believe he will be capable of great things as an adult, I see the possibility of him being unable to live completely independently. But as much as there are things that he cannot do as well as other people, there are things that he does better. He may frequently take the scenic route from a problem to the solution, but his route can cover a lot more ground, solve problems that no-one else even knew existed, and frankly, the scenic route often has a better view than the highway.

When this amazing boy with his sweet, sweet disposition curls up on the couch with me, wraps his little arms around me, and allows me the privilege of being in his world with him, I feel a love for him that is too big to put into words.

Would I ever want my son to be “cured” of autism? No. Because the challenges just make us stronger, and his autism is a part of the beautiful person he is.

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The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

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The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

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This Too Shall Pass

From time to time, my mind goes into a dark place. The reasons why are not important – well they are, but since I only blog about them anonymously, in a whole other place, they are not important for the purposes of this blog. Suffice it to say that sometimes I get plunged into this darkness, and it can be a struggle to come out.  Many late nights and early mornings find me wandering restlessly around the house while everyone else is sleeping, trying to outpace the darkness and bring myself back to – well, at the risk of sounding like a hippy, back to a happy place.

Sometimes, when I feel bad, I have an almost irresistible compulsion to go for a hectic run, no matter what time it is. It’s a compulsion I have to fight, of course, because it wouldn’t be safe. Even in the midst of the darkness, I never completely lose my common sense.

At the end of the day, what gets me through is the fact that despite this periodic bleakness, I am a natural optimist. There was only one time in my life – a long time ago – when I could truly say that I lost all hope. Apart from that one terrible time, I have always lived by the credo that no matter what is going on, this too shall pass. I have a permanent assumption that all bad times are temporary. Sometimes they may last for longer than I would think reasonable, but they always – eventually – pass. And when they do, I am hopefully a stronger and wiser person for it.

At times my life has taken the scenic route. There has been rough terrain along the way, and sometimes I have fallen down and I haven’t been able to get up right away. But I’ve never been one to just lay down on the side of the trail and give up. I’ve gathered my strength and forced myself to surge forward, sometimes at a sprint, other times at a snail’s pace. As long as I am moving forward, I am going in the right direction.

The thing is, when I get through those rough patches, the view I get at the end of it can be absolutely spectacular.

No matter what makes me fall, it’s always – ALWAYS – worth my while to pick myself up, dust myself off, and keep going.

I just can’t seem to shed the baggage I collect along the way.

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This Too Shall Pass

From time to time, my mind goes into a dark place. The reasons why are not important – well they are, but since I only blog about them anonymously, in a whole other place, they are not important for the purposes of this blog. Suffice it to say that sometimes I get plunged into this darkness, and it can be a struggle to come out.  Many late nights and early mornings find me wandering restlessly around the house while everyone else is sleeping, trying to outpace the darkness and bring myself back to – well, at the risk of sounding like a hippy, back to a happy place.

Sometimes, when I feel bad, I have an almost irresistible compulsion to go for a hectic run, no matter what time it is. It’s a compulsion I have to fight, of course, because it wouldn’t be safe. Even in the midst of the darkness, I never completely lose my common sense.

At the end of the day, what gets me through is the fact that despite this periodic bleakness, I am a natural optimist. There was only one time in my life – a long time ago – when I could truly say that I lost all hope. Apart from that one terrible time, I have always lived by the credo that no matter what is going on, this too shall pass. I have a permanent assumption that all bad times are temporary. Sometimes they may last for longer than I would think reasonable, but they always – eventually – pass. And when they do, I am hopefully a stronger and wiser person for it.

At times my life has taken the scenic route. There has been rough terrain along the way, and sometimes I have fallen down and I haven’t been able to get up right away. But I’ve never been one to just lay down on the side of the trail and give up. I’ve gathered my strength and forced myself to surge forward, sometimes at a sprint, other times at a snail’s pace. As long as I am moving forward, I am going in the right direction.

The thing is, when I get through those rough patches, the view I get at the end of it can be absolutely spectacular.

No matter what makes me fall, it’s always – ALWAYS – worth my while to pick myself up, dust myself off, and keep going.

I just can’t seem to shed the baggage I collect along the way.