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A Mom’s Shameful Regret

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He’s been needling me all day.

It’s a cold, rainy day and I didn’t get any sleep. The weather is too miserable for me to go outside for some invigorating fresh air. I’m trying hard to hide the fact that I’m irritable, and for the most part, I’ve been succeeding.

Just another hour to go…

Just sixty more minutes until I tuck him in, turn the lights out and kiss him goodnight. He’ll sleep well tonight. He usually does when he’s been fussing all day. Irritation and anxiety take a lot of energy out of him.

And there has been a lot of irritation and anxiety today. He’s kept on wanting stuff but not knowing how to ask for it. He’s been frustrated by my failed attempts to understand him. He has been pushing his little brother around, because he just doesn’t know what to do with the frustration. Sheets have been ripped off beds. Toy boxes have been turned upside down. Hampers full of clean, folded laundry have been upended. There’s a new hole in the drywall from a headbanging incident.

I’ve been taking it in my stride, talking in low, calm tones to soothe myself as well as him. Earlier I escaped to the shower for a much-needed ten minutes. I’ve been keeping myself going by taking this difficult day in five-minute chunks, by guiltily counting down the minutes until the kids’ bedtime, by promising myself a relaxing glass of wine as soon as the kids have dropped off to sleep.

They’re in their pyjamas now, and I’m preparing their bedtime cups of milk.

He comes up to me and yells something unintelligible. I sigh inwardly and look at him.

“What did you say?” My question comes out more sharply than I had intended.

He walks over to the door, and opens it for the express purpose of slamming it as hard as he can.

And just like that, I’ve had enough. That one small action has been enough to send me over the edge, to be the proverbial straw that breaks the camel’s back.

“I’m SICK of this!” I scream, surprising even myself. “Why can’t you just be NORMAL?”

Instantly, I realize what I’ve said and I feel like the worst mother in the world. This is my son, my beautiful boy. He hasn’t been difficult today on purpose. It’s not his fault he has autism, and he hasn’t enjoyed this anxiety-filled day any more than I have. And I have just yelled at him for not being normal.

I’ve done something terrible, I think to myself.

I look at my child, who I absolutely adore, who I have just thrown such dreadfully hurtful words at, and I wish I could have the chance to take it back.

I didn’t mean it. I wouldn’t trade you for anything in the world.

I sink down onto the couch and dissolve into tears. I am full of self-loathing, and every fibre of my being is wondering what damage I have done, and how much I have set back my child’s progress.

As I sit there sobbing, with my face buried in my hands, I feel a small movement next to me. I look up and he is there, looking at me with a combination of confusion and concern.

“Go give Mommy a hug,” he says softly, and wraps his arms around my neck.

And that makes me cry even harder.

(Photo credit: butupa. This picture has a creative commons attribution license.)

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Sticks And Stones And Words That Hurt

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Special needs parents come with all kinds of super-powers, one of them being the ability to grow a thick skin. This is a necessary part of survival: without it, we would not be able to withstand the stares from strangers during public meltdowns, the judgmental comments that are designed to make us feel like bad parents, and the mothers who steer their children away from our kids in the park, as if autism were contagious.

These things never really stop hurting. They never fail to make our hearts ache for our beautiful children who through no fault of their own, are targets of ostracism and discrimination. As we grow into our roles as special needs parents, though, we learn coping skills. We come up with ways to shield our children from the hurt, and to let the strangers know that our kids have a place in this world, differences and all.

We learn how to accept that the blatant looks and rude comments are not a reflection on us as parents. They are a reflection of the ignorance and prejudice in other people.

But.

No matter where we are in our special needs parenting journey, nothing can prepare us for the first time someone maliciously refers to our children as “retarded”.

Although this word was originally used in a medical sense, it is now generally regarded as a derogatory term, especially when the intent is clearly to hurt either the child or the parents. As conventional wisdom states, “It’s not what you say, it’s how you say it.”

Today marks the fifth anniversary of my son George’s autism diagnosis. I guess it is a cause for celebration: not only have we survived for this long, we have seen great strides along the way.

It is also the first – and hopefully only – day on which someone referred to George as our “retarded son”. It happened in the early hours of the morning during a telephone argument between my husband and someone else. There is no doubt that the words were spoken with malicious intent.

George was asleep, so he was spared the pain of hearing himself referred to in this way. The hurt behind the words had to go somewhere, though, and it slammed into me, almost leaving me breathless, and then settled over my shoulders like a heavy cloak.

Several hours later, I am left with a knot in the pit of my stomach that won’t go away, and unshed tears that I am trying with all my might to contain.

As I try to prepare my son for life in the big wide world, I worry about what the big wide world is going to throw at him. Will it be a place of opportunity for him, or will it be a minefield of insults and discrimination?

Do I try to shield him from the hurt, or do I let some of it get through to him so he can learn how to protect himself?

How do I ensure that my son will be OK, that he will be happy and feel safe, in the days when I am no longer here?