Archives for December 2013

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14 Things I Want To Accomplish In 2014

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1. Stretch myself to run a distance longer than the half-marathon. I am registered for the Around The Bay 30K race at the end of March.

2. Publish the book I wrote for 2013 NaNoWriMo. It may not be a best-seller (or maybe it will – who knows?), but I want to end 2014 being able to say that I’m a published author.

3. Sort out, for once and for all, my messed up relationship with food. For thirty years I’ve been flip-flopping between eating disorders and I’m tired of it.

4. Bring to fruition everything I have set in motion to get funding and support for our non-profit youth recording studio.

5. Get my home office space properly organized. That includes getting a new office chair so my ass stops sliding onto the floor.

6. Declutter my house and get rid of clothing, toys and things that are no longer used.

7. Run a half-marathon faster than 2:15:00.

8. Establish a habit of going to bed by 10:30 every night.

9. Stick to my training plans, without making excuses about the weather or how hard it is to wake up early in order to run or go to the gym.

10. Learn to cook more things from scratch. This year, I learned how to make great Hollandaise sauce and cook fish. Next, I want to conquer Alfredo sauce and find a semi-healthy recipe for cheesecake.

11. Make more effort to stay in contact with my brother. He is a really awesome guy and I miss him. I want him to be a bigger part of my life.

12. Complete another two credits for my post-grad writing certification. I am working on my third right now, and I want to have five done by this time next year.

13. Spend more time with friends. Virtually all of my friendships are conducted via the Internet. While that is highly convenient for my introverted self, it is good for the soul to be in the same room as a friend having a good chat. Preferably with wine.

14. Be comfortable being me, instead of trying to be a person I think other people want me to be.

 

What are your goals for the next year?

This is an original post by Kirsten Doyle. Photo credit: joesive47. This picture has a creative commons attribution license.

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Leaps Of Kindness

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Yesterday, I wrote about the difficulty of buying toys for kids with autism. As hard as it is, from time to time we are lucky enough to find something that my son George really loves. A few years ago he was into the Brown Bear, Brown Bear books, which were successfully used as his transition object for some time. Mr. Potato Head has been an essential part of my family’s life for about seven years now. George never gets tired of them, as his staggering collection will testify.

A year ago, we stumbled upon something else that would bring George a lot of joy, when we bought each of the boys a Leap Pad for Christmas. This child, who usually takes a bit of time to warm up to a new toy, pounced on the Leap Pad immediately. He spent countless hours watching the videos and playing the games, and even making a few simple videos himself. We started to see improvements in George’s speech and cognitive skills as a result of the games he was playing.

Then, about a month ago, catastrophe struck. Somehow, this device which had survived almost a year of an autistic child playing with it, got its screen cracked. This was an absolute disaster. George’s Leap Pad breaking was utterly traumatic for him. He was bereft, and could not understand why his beloved toy was no longer usable.

The next month was – rough. George’s younger brother James was remarkably kind in sharing his Leap Pad as best he could, but there were still a number of meltdowns and many, many tears. And in my current state of unemployment, I couldn’t afford to buy another Leap Pad. The situation seemed hopeless for poor George.

But sometimes, when situations seem hopeless, little miracles can happen. Maybe you win money in the lottery or find a $100 bill lying in the street. Or maybe – as was the case with us – you speak to someone who cares.

We called Leapfrog, the company that makes and distributes Leap Pads, and we explained to the customer service representative what had happened. I wasn’t really sure what we were hoping for – perhaps a discount on a new Leap Pad, or the option to send the broken one somewhere to be repaired.

What we got was so much better. Although the cracked screen is not covered by the warranty of the product, and although Leapfrog was under absolutely no obligation to do anything, the customer service lady told us that she would have a one-time replacement sent to us. I had to follow an elaborate set of instructions that were emailed to me, and then the new Leap Pad would be on its way.

Yesterday, we came home from a shopping trip to find a parcel on our front steps. I looked at the return address on the box, and seeing that it had come  from Leapfrog, I handed the box to George to open. There are no words to describe the look of absolute joy on his face when he saw what it was.

Thank you, Leapfrog. And thank you, Customer Service Lady. The fact that you cared has brought many smiles to the face of a child with autism. And that is the best possible Christmas gift for a parent.

This is an original post by Kirsten Doyle. Photo credit to the author.

 

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How To Buy Toys For Kids With Autism

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One of the hardest things for us autism parents to deal with is buying toys for our kids. Our kids don’t really do toys, simply because they don’t really play. It can be heartbreaking to get something we are sure our child will love, be all excited as we give it to them, and then kind of deflate while the child shows little or no interest in the toy.

One day, shortly after George was diagnosed with autism, I bought him an activity table that was chock-full of sensory-type things for him to do, including a toy phone. He tugged mightily at the toy phone until he succeeded in pulling it off its string, and then spent hours – literally, hours – lying on his back playing with the string. He paid absolutely no attention to any other part of the activity table.

And so I tried crafty things. Paper, pencils, crayons. I mean, what kid doesn’t like to scribble and make a mess, right? In theory, this was a good idea, but in practice it fell a little flat. Although there’s never been anything wrong with George’s gross motor skills – the kid sometimes demonstrates Olympic-like coordination – his fine motor skills are still behind where they should be. For a long time, he just didn’t have the ability to hold the coloured pencils and safety scissors that I lovingly bought him.

After a decade of autism parenting, I am finally starting to get it. I am, through my experiences and those of others, figuring out how to get toys and activities that my son will actually use. Here are some of my pearls of wisdom.

1. Test-drive toys from a local lending library before buying them. You’ll save a lot of money if you can discover ahead of time that your child won’t like the toy (this tip comes from fellow autism mom Jacquie, who left it as a comment on a previous blog post).

2. Go with your child’s interests. If that means buying Mr. Potato Head or Mega Blocks for ten Christmases in a row, so be it. At least your gifts will be appreciated.

3. Check out websites for educational toys and activities. A great one is UK-based Junior Scholars. They have an entire section for special needs items, including ergonomically designed pencils and pencil sharpeners for left- and right-handed children, fine motor activities like lacing toys and peg boards, and giant hourglass-style timers, which are ideal for kids who need visual reminders. Conveniently, they accept PayPal as well as credit card payments, and they ship internationally.

4. Think outside the toy aisle. When we realized that George’s fancy activity table was only being used for its string, we decided to get rid of it. We couldn’t expect George to go cold turkey on the string, and we didn’t want to spend a fortune on a toy just for the sake of a string. So we went to the dollar store and bought one of those miniature mops that some people use for cleaning dishes. It worked like a charm.

5. Think visually. Many kids with autism are visual learners. We tried for months and months to teach George how to name colours. In the end, all it took was two months of playing Mr. Potato Head games with my mother.

6. Cater to the deep pressure needs. Many kids with autism love to do things like swing, jump and wrestle. Providing toys suitable for this will not only satisfy that need within your child, it might also save your furniture. We have to keep one of those small round trampolines in our living room for George to jump on. I think we’re on our third one now, and that’s OK. Replacing a $30 trampoline is a lot cheaper and easier than buying a new bed.

If you buy a toy that gets a lukewarm reception, give it a bit of time. Like many typical kids, auties have interests that wax and wane, and sometimes they simply need to get used to the new toy being there.

Do you have any tips to add? Leave them in the comments!

This is an original post by Kirsten Doyle, published in accordance with my disclosure policy.

Photo credit: Junior Scholars. Picture used with permission.

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2013: Memorable Moments

With just a few days left in 2013, this seems like a good time for me to take a look at some highlights of the last twelve months. The word “highlights” is a bit of a misnomer, though – a large portion of the year was filled with the most mind-bending stress. To be completely honest, I am ready for the year to be done. I am ready to wake up on January 1, 2014 looking forward to a year of new beginnings.

Not a lot happened in the first three months of the year. I was working overtime on a massive project, so for a while I didn’t really have a life. From time to time I went running, and that was going great until the day I gave myself an injury by doing a long run at race pace on icy sidewalks. As far as common sense goes, that was not one of my shining moments. I had to pull out of a half-marathon that I had registered for – not the greatest start to my season.

In April I ran a ten-mile race that can only be described as my worst race ever. It took place on a golf course, which was very scenic but had a scary number of hills. If the weather had been nice it might not have been so bad, but it was cold and windy, and it was raining. Instead of feeling down about my dismal finishing time, though, I was surprisingly upbeat. I had run this brutally hard race in terrible weather, and I had crossed the finish line. It was a testament to my determination. The hard-earned finisher’s medal I got that day is one of my favourites, just because of how hard I had to work to earn it.

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In May, my life kind of spiralled out of control a little. Things were going reasonably well at the time: my running was back on track and my big project was a whisker away from being closed after a successful implementation. A few days from the end of that month, I got the shock of my life when I was called into a little office in the HR department and informed that I no longer had a job. I had seen it coming – much change was afoot at my place of work and they had been downsizing people for a while.

Something else happened in May that shook my foundations quite badly. One of my best friends, who I had known for seventeen years, passed away after a lifelong battle with Cystic Fibrosis. Fran was just shy of her 41st birthday when she died, and years of knowing that I would in all likelihood lose her did not make it easier when it happened. I have so memories that include Fran, including her first race and my wedding. Seven months on, I’m still having trouble adapting to a world that she no longer inhabits.

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In June, my family and I went away to Niagara Falls for a few days. It was a break I desperately needed, and it included the Niagara Falls Women’s Half-Marathon. I had a fantastic race – although it was not my best-ever performance, my finishing time was respectable enough. The race was a perfect opportunity for me to run off a bit of stress.

July kind of passed without me noticing. I was worn out from stress and grief, and I was fighting what felt like a losing battle with depression. I applied for jobs without getting any responses, and my spirits sank lower and lower with each passing day. Ultimately, what got me through was running.

August started off on a note of terrible tragedy, when a friend’s seven-year-old son drowned in a river. He hung on in hospital for a couple of days, but in the end, his mother had to make the heartbreaking decision to let him go. I felt the kind of sadness that threatens to engulf you, like a heavy blanket that suffocates. I started worrying a lot – about my kids, about the twists and turns of fate that we have no control over, about friendship and whether I was doing enough for the people in my life, including the bereaved mother.

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In September, I was supposed to travel to Ottawa to take part in the Army Run, a majestic half-marathon in the nation’s capital city. Due to illness and circumstance, the trip had to be canceled at the last minute. The disappointment was excruciating. In the grand scheme of things, it wasn’t a big deal, especially when looked at beside all of the other stuff that had been going on, but at that point my coping skills had been eroded to the point of nothingness. I turned to my trusty method of stress relief and threw myself into my running.

A month later, my training paid off when I ran my main race of the season: the Scotiabank Toronto Waterfront half-marathon. For the fifth consecutive year, I ran the race to raise funds for the Geneva Centre for Autism. Inspired by my son George, I ran my way to a personal best time. It was a truly fantastic race, and that day marks the point at which I finally started to claw my way back from the terrible depression that I had been going through.

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In November I signed up for a novel-writing challenge called NaNoWriMo. I decided that what I really needed was a goal, and writing a book in thirty days seemed like a reasonable one. Every day when I woke up, I sat at my laptop and hammered out two thousand words, and by the time the end of November rolled around, I had a completed manuscript of almost 60,000 words. It was a first draft, meaning I would need to do a whole lot of work to make it fit for public consumption, but I had done it. That achievement did wonders for my confidence.

December has, for the most part, been kind to me. Yes, we had a pesky ice storm that cut out power for a few days and left a mess of fallen trees and broken branches all over the neighbourhood, but we got through it. Although there was the obligatory family drama, we enjoyed Christmas. We even got a picture of Santa that involved a lot of fun and no autism meltdowns.

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Over the next few days, I will be setting some goals for 2014. I have lofty plans that include running a 30K race and getting my book published. For now, though, I am enjoying time with my family, and in spite of the more stressful things that have happened this year, I am feeling grateful for what I have.

This is an original post by Kirsten Doyle. Photo credit for the Scotiabank Toronto Waterfront Half-marathon picture: www.marathon-photos.com. Photo credit for all other images: Kirsten Doyle.

 

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My Birthday Race: Tannenbaum 10K

Photo credit: Rob Tripp

Photo credit: Rob Tripp

When I sat down at the beginning of 2013 to plan this year’s race calendar, there were three or four races that I knew I had to include. The Tannenbaum 10K was one of them. I ran this race in 2012 (in the pouring rain, I might add), and had a fantastic time. Also, this year’s race was going to happen on my 44th birthday. Anyone who’s a runner will know there is no better way to spend a birthday than by running a race.

I stalked the race website throughout the year, and about five minutes after seeing the announcement that registrations had opened, I was signed up. I sent an email to the race director asking if I could please, pretty please, have bib number 44. He replied on the same day, promising to try. When I went to pick up my race kit on the eve of the race, I was delighted to see that I had, in fact, been given bib 44. I was also given a race kit with some nice goodies, including a super-cool winter hat that has already become an essential part of my winter wardrobe. I never leave the house without it.

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Photo credit: Kirsten Doyle

On the morning of the race, I found a parking spot (a free parking spot!) about a minute’s walk from the start line. This, along with the gorgeous winter weather, boded well. I went to check my bag and ran into my friend Phaedra. We chatted for a while, then it was time to check my bag and line up at the start line.

I got off to as good a start as I could. I started far back in the pack and got caught behind slower runners (a deliberate tactic to avoid starting too fast). During the first kilometre, my dollar store earbuds gave up the ghost. I didn’t have a spare pair of earbuds with me, so I had to run the race without music. I realised that I have become far too dependent on music for setting my pace, because I struggled to find my rhythm after that.

In spite of this, I managed to keep a reasonably consistent pace, and I didn’t do too badly running up the Spit. Usually I hate running up the Spit. I find it lonely and soul-destroying. However, the race only took us a short distance up the Spit and back. At the 5K turnaround point I sped up a little, knowing that I was now heading back the way I had come. A wave of exhaustion hit me somewhere around the 7K mark, but I forced myself on, telling myself that I only had about 20 minutes left.

I crossed the finish line in a little over 1:04:00 – not my best time, but well within what I was hoping for. I collected my finisher’s medal, and then went to get a post-race snack. Instead of the usual bananas and bagels, there were these sinfully delicious scone-pastry type things. They were so good that I had two of them.

 

Photo credit: Kirsten Doyle

Photo credit: Kirsten Doyle

I met up with Phaedra again, and we headed to the awards presentation area. Not only was Phaedra the first Masters woman over the finish line, she broke the women’s Masters course record. She collected her award, and I picked up a draw prize (a hat and a voucher for a Road ID, which is already on its way to me).

Just like last year, I found this event to be well-organised and festive. There was a community spirit that sometimes gets lost in the larger events. And the cause – giving Christmas to families who cannot afford it – is absolutely fantastic. After two years of running this race, I can say with confidence that it has earned a permanent spot on my annual race calendar.

This is an original post by Kirsten Doyle.