Archives for November 2012

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Time to Jump in Puddles

From time to time, people who think they could raise my kids better than I do criticise me for not enrolling them in weekend activities, and from time to time, I wonder about that myself. I get this guilty feeling that I’m not exposing my kids to enough opportunities. From a logistical standpoint, it is so difficult, though. Even if you assume that I’m up to my neck in free time during weekends, which I so totally am not, my husband and I only have one car between the two of us. My husband usually goes to work on Saturdays, leaving me at home with the boys and a public transit system that is sporadic over weekends.

The real question is whether this is even an issue. Does it matter that the boys are home with me on Saturdays instead of being whisked off to baseball practice and karate class? It’s not like I get a lot of time with them during the week, and even when I am busy working on invoicing or household admin or laundry, I love having the boys around me. I listen to them play together, which they are doing more and more, and I let them watch movies like Ice Age and Cars 2. I break up their sibling rivalry spats, eat lunch with them, and occasionally bully them into picking up their toys. Sometimes we make “cake in a mug” or s’mores, or play intriguing variations of Scrabble. When I am doing my own thing, the kids will rush up to me at random times just to launch themselves at me and give me a hug.

If they were in weekend activities, none of that would happen. Someday, I know it will all change, and the boys will be off doing their own thing with their friends. But for now, I enjoy having that time with them.

And for the kids, it might not be a bad thing to have a bit of downtime. Their weeks are so busy, with school and homework and time with the respite worker and all the rest of it. I worry that overscheduling them would leave them no time to be kids.

After all, kids should always have the time to run around in the rain and jump in puddles.

Photo credit: Kirsten Doyle

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Body for Life: Starting the Adventure

Quite a few years ago, on the suggestion of my friend Adam, I entered something called the Body for Life Challenge. Adam, who was my chiropractor at the time, was entering the challenge himself, and he formed a little group of people who would take part and offer support and encouragement to each other along the way.

Body for Life is an exercise and nutrition program that promises spectacular results if you follow the guidelines. The guidelines are quite simple. The nutrition aspect involves balancing carbs with proteins, and it follows the now-accepted protocol of six small meals throughout the day instead of one large one. The exercise aspect involves daily workouts, alternating cardio activity with strength training. You follow the Body for Life program for six days a week, and on the seventh you are free to eat whatever you like and sit in front of the TV all day.

I stuck with the program for about nine of the twelve weeks, and during that time I had phenomenal results. Excess weight melted off me, and for a while, my flabs actually turned to abs. Unfortunately, I was thrown off-track by a serious injury to my left (dominant) hand that required stitches, cortisone shots, and all kinds of other ugliness. Back then, I did not have what it took to get back into the saddle after a setback. I was completely derailed.

Although I gained back some of the lost weight after that, it wasn’t all a complete waste. Being on the program taught me some basics about nutrition and exercise that have stayed with me to this day, and of the fifty or so pounds that I lost, I gained back about fifteen. So as a program with long-term effectiveness, it’s pretty good.

I have been feeling a little iffy about my body of late. I run long distances and exercise several times a week. My eating is less than ideal but certainly not disastrous. And yet, I still struggle with my weight. I continue to fight with belly fat gained during my pregnancies seven and nine years ago. I have bat wings. My thighs wobble. My oversized boobs get shredded to bits on long runs, in spite of a good sports bra.

I hate to think what I would look like if I didn’t exercise. I mean, what does a girl have to do to be a normal weight around here?

In the wake of my decision to run a marathon three years from now, I have decided that I am going to reinvent my body. I will never be reed-thin or fit into a B-cup, and perhaps I will always have a little jiggle in my belly to remind me of the lives I had the honour of growing. But there is weight for me to lose. There are things I can do to lose fat, increase muscle mass, and be leaner and stronger.

Over the years, I have tried a number of different eating plans. I have sought the advice of a life coach and a dietician. I have attempted this thing and that thing. But none of it has worked, and it has been very frustrating. For someone with body image issues and a history of eating disorders, this is not healthy.

And so it makes sense to me to go back to the only program that yielded results, the only program I was able to sustain for any length of time. Yesterday, I started the Body for Life challenge again. I have recorded my weight and measurements, and I have had my “before” pictures taken.

This time, it will be even better than before. Because now, I know I will have the strength to pick myself up after any setbacks that may come my way. And when the twelve weeks are over, the healthy habits that I gain will stay with me.

I am not publishing my initial weight and measurements, but I will report back every week to tell you what I’ve (hopefully) lost, along with pictures that show progress. Hopefully they will look better than this:

 

 

 

 

 

 

 

If you really want to see my flabby bits in all their glory, you can click on the pictures for full-size versions

Photo credit: Kirsten Doyle’s long-suffering husband

 

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Teen Series Part 4: Time To Think

Three years ago, when I got fed up with being reliant on a transit system that kept raising its fares, I started car-pooling with a co-worker, Michelle. Through many commutes we shared laughs and stories, and became very close friends – so close that Michelle was my maid of honour. Because I am friends with Michelle, I have the pleasure of knowing her daughter, Megan, who is 16 years old. Today, Megan shares her brave and very compelling story with us. Here are her words, uncut and unedited.

My name’s Megan I am 16 years old and I live in London, Ontario. Seeing into the minds of people my age can be difficult for anyone who isn’t my age. My generation faces new problems, new social norms, and new expectations. The way teenagers thought 30 years ago isn’t how we think today and the way we think now won’t be how teenagers 30 years from now will think. And within that every teenager will have different priorities and different hopes and dreams so clearly you can never have a full understanding of every teenagers mind. I have been sick for the last 5 years of my life and have been removed greatly from people my age so I can’t tell you much about the way they think but I can tell you about the way I think.

The thing about being sick for so long is I had a lot of time to think.  Most people envy being able to stay home all day and relax but being that isolated can become boring and tedious; you can only check facebook so many times. For the first few years of my illness I found small things to entertain me, video games, books, television shows, but as I grew older I spent more of that time thinking. I thought about my future and if I would get the chance to have one, I thought about my family and if I would always be a burden on them and I thought about the world and would I ever be able to do anything for it. I started spending more of my time reading about what was going on in the world and I started seeing things that I couldn’t believe were happening. For example a couple months ago in Iran 70 university programs were closed off to women because they were surpassing the men within them. And in many places around the world, such as Uganda, it is legal to kill a person for being a homosexual. Reading all this I wanted to fix it but never thought I would have the opportunity to.  At that point in my life I didn’t let myself dream or hope for anything but sickness, after five years of nearly constant illness how could I? So I ignored these problems and went back to my tv or video games.

Something changed for me a few months ago, I got tired of letting my illness stop me, I got tired of not trying to do anything because no one thought I could succeed, and I got tired of accepting that I would live the rest of my life being ill. I don’t know what changed for me but I did. I started researching universities and looking at careers in human rights and I started working towards a future for myself. I started volunteering in the community and doing things to see if I could handle going back to school. And now after five years I’m fighting my illness so I can do something with my life. I have decided I want to become a human rights lawyer and be the person that helps solve the types of issues mentioned above. So this year I’m working my butt of to do well in school and to get more involved so I can get into a good university and eventually a good law school. It is hard, I get tired and I get sick but I keep working because I have to, because I’m tired of letting illness rule my life.

So that is how I think, it may not be how every teenager sees the world but those are the challenges I am currently facing and I hope this gives some insight on a teenagers brain even if it is just mine. One thing I want to add is a quote from novelist John Green.

“When adults say, “Teenagers think they are invincible” with that sly, stupid smile on their faces, they don’t know how right they are. We need never be hopeless, because we can never be irreparably broken. We think that we are invincible because we are. We cannot be born, and we cannot die. Like all energy, we can only change shapes and sizes and manifestations. They forget that when they get old. They get scared of losing and failing. But that part of us greater than the sum of our parts cannot begin and cannot end, and so it cannot fail.”

― John Green, Looking for Alaska

(Photo credit: NASA Goddard Photo & Video. This picture has a creative commons attribution license.)

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Too Much Information?

Today’s prompt in the National Health Blog Post Month challenge invites participants to talk about disclosure. How do we decide what to share and what not to share in our posts?

This is a question I grapple with from time to time, as all bloggers should. As soon as you put any aspect of your life onto the Internet, you can say goodbye to privacy. Sometimes that really doesn’t matter. There’s no danger in me posting my race times and less-than-flattering photographs of myself in motion. Any Joe on the street can go online and look up my race times anyway. Since that information is publicly available, I may as well post it in my blog where I can brag about it a little.

I am equally open about my son’s autism and the challenges it presents to my family. This is where the question of disclosure becomes a little tricky, because I am being open about people other than myself. There are certain things that I will not discuss on the Internet, but in general I talk quite freely about the lives of my kids, and to a lesser extent, my husband. It is one thing for me to talk about myself, but my right to make that decision on behalf of my children is a bit of a gray area.

My blog serves multiple purposes. It’s a form of expression for my socially anxious, bad-at-verbal-conversation self. Writers as a breed tend to be a little neurotic and introverted, and I am no exception. This is how we communicate. Writing gives us a voice that we wouldn’t otherwise have.

Apart from fulfilling my own need for self-expression, my blog gives hope to other parents of special needs children who might be feeling a little lost and alone. From time to time, I get emails from readers telling me how my writing has made them feel less overwhelmed, and more able to cope. Those emails make everything truly worthwhile, because at the end of the day, what I want is to do my small part to make the world a better place for our kids, for the parents and siblings, for everybody.

At the same time, I hope to smash the stigmas surrounding autism, and the way I see it, the best way to do that is to be frank about it all. People are afraid of what they don’t understand, and in talking about autism, I hope to give it a human face, to give people the message that although there are little kids with autism, they are first and foremost little kids.

There are aspects of my kids’ lives that I will never talk about on my blog. My basic rule is this: if I cannot talk about it in public, I cannot talk about it on my blog. I agonize over many of my posts, weighing the benefits of sharing information against the risk of anyone getting hurt. I have written entire posts and then deleted them without publishing them.

It’s a delicate balancing act sometimes, and I find that as long as I listen to my gut instinct, it’s OK.

How do you decide what information to share on your blog? Have you ever shared something and later regretted it?

(Photo credit: John “Pathfinder” Lester. This picture has a creative commons attribution license.)

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My Three-Year Plan

In running, as in most areas of my life, I tend to be a goal-oriented person. Some people run just for the fun of it, but I need to have a purpose behind it, a goal to work towards. This, in addition to the addictive feeling of collective start-line energy, is the reason I run so many races. I will keep running through the winter because I have a half-marathon to work towards at the end of it. After that, there will be another half-marathon in the middle of the year. Then there will be my annual autism run in the fall.

I need these races to keep going. They give me the kind of discipline I would never find if left to my own devices. I sometimes procrastinate when it comes to actually deciding on the goals, but once I’ve made up my mind I’m very good at the follow-through.

For some time now I have been wavering about the idea of running a marathon. The full monty – the whole 26.2 miles or 42.2 kilometres. The whole cyclical thought process usually goes something like this:

My husband is driving me to the start of a half-marathon, and I am all excited and ready to go. I am caught up in the pre-race euphoria of it all, and I say to my husband that someday it would be really great to run a full marathon. I carry that thought with me to the start of my race. At the end of the race, when I’ve been running for over two hours and I am crying because of how sore my legs are, I say to my husband, “I must be nuts! Why would I want to put my body through a full marathon when I can’t even walk after a half-marathon? I think I’ll stick to shorter distances.” And then I recover from the half-marathon and the whole marathon train of thought starts all over again.

The truth is that I am not in good enough shape to run a marathon. There is a lot of work that has to be done to get me where I need to be. I need to sort out, once and for all, my intensely uncomfortable relationship with food and my body image issues. I have to lose weight, gain muscle, build up my physical and mental strength. It is a lot, but I can do it, especially if there is a prize – or a finisher’s medal – for me to work towards.

And so I recently set myself a goal: when I turn 45, I will give myself a marathon registration as a birthday present. At some point between December 1, 2014 and November 30, 2015, I will lace up whatever running shoes I am using then, and I will run a marathon.

Having set that goal, I had to decide on the marathon. This is likely to be something I do only once, so it has to be something really special, really meaningful. My first thought was a marathon somewhere in Johannesburg, South Africa, on my dad’s old stomping grounds from his own marathon days. Following in my dad’s footsteps – what could be more special than that? But considering that I live close to sea level and Johannesburg is at an altitude of several thousand feet, that would be really difficult. My body is so unused to running at high altitudes that I’m not convinced it would be achievable.

So where, then? New York? Chicago? Vancouver? Or should I stay close to home and run a marathon in Toronto?

A few days ago, I accidentally stumbled upon the website of the Cape Town Marathon. I took a look at the map of the course and was instantly plunged into Memory Lane. I am an alumnus of the University of Cape Town, and during my few years there a lot happened. I got myself a bachelors degree in psychology, and also did a lot of growing up. Not everything that happened to me there was good. In Cape Town, I was introduced to some ugly aspects of life. I got badly hurt there, and I also unwittingly hurt other people.

There is a lot of myself on those roads that make up the Cape Town marathon – a lot of memory and emotion. There is lost innocence, regret, a sense of wondering about how things would have turned out if.

If I return to Cape Town and run a marathon on those streets, will I be able to start confronting some of those demons that lie within me? Will it provide some degree of absolution for my past and clear a path for me to move forward? Will I feel the presence of my dad, whose ashes were scattered in the sea at Three Anchor Bay in Cape Town?

There is only one way to find out, and I have started to plot out a course of action – a three-year plan – to get me to that start line.

Cape Town Marathon, 2015. Here I come.

(Photo credit: Brightroom Professional Event Photographers)

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Disabled or Differently Abled?

Today is Day 2 of the National Health Blog Posting Month challenge, and one of the suggested prompts invites writers to address the weirdest aspect of their health. As a health advocate for my son George, who has autism, I am often struck by how odd this condition is compared with many other developmental disabilities.

One of the things that makes it different is the reluctance of many people, both within and outside of the autism community, to use the word “disabled”. Parents of children with Down Syndrome or cerebral palsy are allowed to refer to their kids as “disabled”, but I always have people trying to force me to use the term “differently abled”.

Yes, there are many things that George can do. He can read fluently, he was doing multiplication in his head long before anyone formally taught it to him, he has superb problem solving skills, and he knows his way around a computer better than I do. But when he comes home from school, he cannot tell me what his day was like. I have to keep a firm hold of him when we are out on family walks because he does not understand the danger of running out into the traffic. He does not know how to play with other kids. He will only take a shower if someone is in the shower with him, and at nine, he still needs hand-on-hand assistance and extensive prompting to accomplish the task of brushing his teeth.

To me, the term “differently abled” implies that George can do anything other kids his age can do, but in different ways. But that is not the case. There are things that George simply cannot do for himself – basic daily living skills that other kids master by the time they’re six. In my book, George is developmentally disabled.

And so what if he is? I am immensely proud of George. I adore his sweet, loving nature and I admire his absolute determination to accomplish his goals. Even though he is still so young, he shows a steel core of tenacity. This is not a kid who gives up. I feel absolutely no shame or embarrassment about the fact that he has a disability.

So why not tell it like it is? Why should there be a need to couch it in pretty language? Are these well-meaning attempts to avoid use of the word “disabled” not undermining our attempts to ensure acceptance and inclusion for people with all kinds of disabilities?

What are your thoughts? Are we heading into territory where the word “disability” cannot be used? Would you or do you use that word with reference to your own special needs child?

 

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Ten Running Questions

Several months ago, I became a part of the WEGO Health network – a group of people advocating for health, either for themselves or for a loved one. My health advocacy serves a treble purpose. First, I want to do my part for the autism community on behalf of my son George. Second, I want to share how running helps my physical and mental health. Third, I am tentatively starting to talk about my own mental health, sharing stories from my past, in hope of removing the stigma surrounding depression and other mental illnesses.

Recently the folks at WEGO Health announced that November is National Health Blog Posting Month, and they issued a challenge for bloggers to publish a post every day for the month of November. I am never one to shy away from a blogging challenge, so here I am! Some days I will go with the suggested prompt, other days I will just follow the lead of my writer’s instinct. I will even have a couple of guest posts along the way.

Some time ago, my friend Phaedra tagged me in a post on her own blog. Phaedra is the kind of runner other runners want to be like, and she coached me through a phenomenal running season, in which I clocked up no fewer than five personal bests. In her post, Phaedra gives the answers to ten questions, which she then passes on to fellow runners. Phaedra’s answers can be found here. My answers are below, and I invite all runners to post their own responses and leave a link in the comments below.

1. Best run ever? In August, I did the Midsummer Nights Run 15K. For some reason 15K has always been a challenging distance for me – far harder than the half-marathon, which is six kilometres longer. The Midsummer Nights Run is on a course that I have tackled a couple of times before, and I have never done well on it. I was dreading this race because I had such big mental issues with the course. This time, though, I found my zone early on in the race. I hit the runner’s equivalent of the “sweet spot” golfers are always on about. I well and truly conquered the course, beating my previous personal best by a whopping 13 minutes and with energy still in the tank.

2. Three words that describe your running? Determined, focused, stress-relieving.

3. Your go-to running outfit? In the summer, I wear one of two pairs of running shorts – the leg-hugging kind, so my thighs don’t chafe. I pair that with either my Energizer Night Race T-shirt or one of my Geneva Centre for Autism shirts. In the fall, I replace the shorts with a pair of longer lightweight tights, and in the winter I wear whatever will prevent bits of me from freezing off in the cold.

4. Quirky habit while running? When I turn onto my street at the end of a long run, I pretend to be an elite athlete from Kenya. I sprint down the final stretch and fantasize about having run the entire distance like that, and when I step over the line dividing the road from my driveway, I raise both arms in a victory salute and pretend I am breaking the tape at the finish line of a race. It will probably never happen for real, but a girl can dream, right?

5. Morning, midday, evening? In general, I am an early morning runner. In the winter, though, a lunchtime run in the crisp cold air can be a purely magical way to get a break from the chaos of the workday.

6. I won’t run outside when: there’s lightning. There are a lot of trees in my neighbourhood, and I would worry about being struck, because that would just be my luck. I also tend to avoid the wind. I don’t mind running in rain, snow and sleet, but I absolutely detest strong wind. For some reason, it makes me anxious and edgy, often to the point of a panic attack.

7. Worst injury and how I got over it: Almost three years ago, an appointment with a chiropractor went dreadfully wrong – a result of pure bad luck rather than any fault on the part of the chiropractor – and I ended up with a pinched nerve in my neck. My left arm was in absolute agony, and the fingers on my left hand were numb. I had to go to the emergency room twice, and for the next six weeks I cried myself to sleep while I was waiting for the Percocet to kick in. Physiotherapy ultimately sorted me out, and to this day, I have numb fingertips.

8. I felt like a most badass mother runner when: I spent virtually all of the Good Friday Ten-Miler neck and neck with an older but much fitter gentleman who issued a friendly challenge to me, and then near the end of the race, I tore away from him and beat him to the finish line.

9. My next race is: the Tannenbaum 10K at The Beach in Toronto, on December 2nd.

10. Potential running goal for 2013: I’d like to see if this old body can handle three half-marathons in a single year. I’d also love to break an hour in a 10K race and beat 2:15 in a half-marathon.