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Homecomings

May 24, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

When my kids were little – well, littler than they are now – they went to a great daycare centre a few minutes’ walk away from our house. When the weather was nice, the kids would be allowed to play outside at the end of the day while they were waiting for their parents to pick them up. When I got off the bus from work, I would walk directly to the centre, and as I approached, I would hear the sound of children laughing and playing in the outdoor play area behind the building.

There is no sound in the world that is more magical than the laughter of children. I used to treasure that part of every day – those moments in which the sounds of childhood joy floated through the air and reached my ears.

When my boys reached the age-limit of the daycare and had to leave, I knew that I would miss those precious sounds.

Now that both boys are always home by the time I get off the bus, my homecoming is quite different to what it was back then, but it is no less magical.

My husband and children, alerted to my impending arrival by a text or phone call from me, stand together at the front door, peering out of the frosted glass panels on either side. When I appear at the end of the road, my husband opens the door and releases them into our quiet street. They charge down the road towards me, running in that completely natural, unrestrained way that only children are capable of, and they launch themselves at me, giggling helplessly as I pretend to fall over backwards.

By this time, my husband is usually ambling down the road to meet me. We go for a walk around the block, all four of us holding hands. Then we turn and head back towards the house. When we’re about half a block away, we line the kids up.

On your marks!

The kids look up at us with anticipation.

Get set!

George starts to giggle and looks all around him. James, who has acquired my love of running and actually takes this seriously, looks straight ahead as he braces himself for takeoff.

GO!

And they’re off, racing each other to the house. In that moment, we are not looking at a child with autism and a child without autism. We are looking at two typical boys, being brothers.

And this is what life is all about. Love. Togetherness. Family.

(Photo credit: Kirsten Doyle)

Filed Under: 2012 Wordcount Blogathon, Childhood, Children, family, Laughter, life Tagged With: , , , , , , , ,
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5 Tips For Moms Who Want To Run

May 18, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today’s post is also a part of the 2012 Fitness & Health Bloggers Conference Blogger Challenge, in which bloggers are invited to write about an aspect of women’s health.

James and I taking part in the Whitby Waterfront Races

At the time my older son was conceived, I was an active runner. I wasn’t as into racing as I am now, but I was in good shape and I hit the road regularly. Running was logistically easier in those pre-baby days, when I didn’t have to worry about whether I’d had enough sleep and who was going to watch the kids.

I had intended to continue running throughout my pregnancy, but my body had other plans for me. Pregnancy wreaked havoc with the fluid in my inner ear, so I developed the inconvenient tendency to simply fall over without warning. This obviously meant that running would be too much of a risk, especially during the tail-end of winter when there was still a lot of ice on the ground.

After my son was born, I started running again, but only for a few months before I got injured. That was when my six-year break from running started. There was always something that kept me out of it – injury, illness, post-partum depression, plain old garden-variety depression – before I finally found the right motivation to start running again in earnest three years ago.

Combining motherhood with running can be a tricky endeavour, especially when you add a full-time job and special needs parenting into the mix. But with a bit of practice and planning, it is possible to strike the right balance, and it is very worthwhile.

Today, I offer you some tips on how you can successfully combine running with being a mom. These tips do not come from any books or websites. They come from my own experiences.

1.       Lose any preconceived notions of what a female runner “should” look like.

Pregnancy and childbirth can really do a number on a woman’s body image. Our post-baby bodies include new wobbly bits (unless you are blessed with spectacular genetic material), larger-than-before breasts that now serve a practical purpose, and stretch marks that make our bellies look like a railway network. Some of us are self-conscious about the way our bodies look, and we are reluctant to go out in public wearing shorts and tank tops.

We tend to have this idea that in order to run, women have to be skinny and flat-chested. I get a lot of women telling me that they would love to run, but cannot because they are not built for it, or because their breasts are too big. From experience, I can tell you that those are not good reasons not to run. I am not skinny by any stretch of the imagination, and I am definitely not flat-chested. Barring any serious medical conditions, anyone who wants to run can run, no matter what size or shape they are.

Yes, it is true that the women who win the Olympic marathons are skinny and flat-chested, but you’re not trying to win the Olympic marathon. You are doing this for yourself. And if you have a post-baby body to contend with, wear it with pride. It serves as a reminder of the life you have borne.

2.       Remember that women have unique nutritional needs.

Women have to deal with all kinds of stuff that men never have to think about. Our bones start to degenerate after a certain age, and this increases our calcium needs. We have periods every month that deplete our iron stores and can throw our entire bodies temporarily out of synch. For the time we are nursing babies, our bodies are directing all of the good nutrients to our breast milk, leaving us with just the leftovers to live on.

There are scores of books out there that talk in general terms about what runners are supposed to eat and when. The material you read can be confusing and downright contradictory. I have come to the conclusion that different things work for different people. Whatever eating plan you end up adopting, you need to ensure that the nutritional needs unique to women are taken care of.

Here are a few basics:

  • Eat foods rich in iron and folic acid, particularly during your menstrual cycles.
  • Increase your consumption of Vitamin C: this has been shown to improve the body’s efficiency in absorbing iron.
  • As you get into your 40’s, start taking calcium supplements to compensate for the hit that your bones start to take in middle age.
  • If you are nursing, you need anywhere from 500-1500 extra calories per day, and that’s before you take into account the calories you burn while running. Make sure you are well fed on nutritional stuff, and take along an energy bar when you go running.

3.       Get the right support structure.

Whether you are small- or large-breasted, or somewhere in the middle, a good sports bra is essential. The last thing you want to deal with while you’re running is your boobs bouncing around like ping-pong balls. It is not only uncomfortable, it is downright painful. Although I speak from the standpoint of someone with large breasts, I have spoken to women who made the mistake of thinking that their breasts were small enough for them to do without a sports bra. With a couple of exceptions, they have bitterly regretted it.

If you are small-breasted, you can probably get away with getting your bra from a sporting goods retailer. Larger-breasted women could benefit greatly from being professionally fitted at a specialist bra shop that carries sports bras. No matter where you get your bra from, it is important to ensure a good fit. Not only can ill-fitting sports bras add to the bounce, they can lead to very painful chafing.

If you have just had a baby, be aware that the size of your breasts probably changed during your pregnancy. Don’t assume that what fitted you before will still fit you now. The same applies to moms whose babies have recently been weaned from the breast. As your body’s production of milk slows down, the size and shape of your breasts may alter.

Nursing mothers who want to wear breast pads should take precautions to ensure that they don’t shift during the run. When I ran as a new mother, I secured my breast pads with surgical tape and that worked well enough.

4.       Make it a family thing.

You don’t have to force your husband and children to go running with you, but at least enlist their support. Tell your significant other about your intentions to run, and let him or her be a part of the planning. You will need someone to watch the kids while you are out, and if that same someone massages your aching feet at the end of the day, so much the better! Most running moms I’ve spoken to report having supportive partners, and that makes all the difference.

For those with young babies, running can be logistically very easy. All you need, apart from your running gear, is a baby jogger – a three-wheeled stroller designed for motion. Look for a baby jogger that can be adjusted to have the baby forward-facing or rear-facing. These strollers do not have wheels like regular strollers, they have tires that look almost like bicycle tires. That makes them suitable for a variety of terrains and weather conditions. Not only is this a fun way to bond with your baby, pushing the extra pounds as you run is a great booster of upper body strength!

Running with older children can be immensely enjoyable as well. My younger son, now six, is showing an interest in running. He ran his first kiddie’s race last year, and he plans to more. I often take him out with me on a Sunday, just for a kilometre or two, and then I drop him off at home with my husband before heading out for my longer run

5.       Enjoy the me-time

People run for different reasons. Some runners are competitive, and are in it to win the races. Others want to get fit, or lose weight, or address some specific health issue. Some people simply run because they like it. Whatever your primary reason for running is, use it as an opportunity to switch off from the day-to-day business of parenting. Allow your mind to wander a little – bearing safety in mind, of course. Get an iPod and listen to some music. For a busy mom, it can be incredibly liberating to pound the pavement for a few miles. It is a great stress-reliever, it loosens the joints, and it refreshes the mind. When you get back home after your run, you will feel ready – and eager – to step back into role of Mom.

Disclaimer: The information given in this blog post, or anywhere on this website, is not intended to replace the advice of a medical professional.

(Photo credit: Kirsten Doyle)

Filed Under: 2012 Wordcount Blogathon, family, Fitness, health, Mother, parenting, running Tagged With: , , , , , , ,
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A House Full Of Love

May 14, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today is Guest Post Exchange Day! I am honoured to introduce you to a fellow special needs mom, who is not only an awesome blogger, but also an awesome friend. Mimi has not one, not two, but five children with special needs. That would sound daunting to anyone, but Mimi wouldn’t change her life for anything.

Hi!  I’m Mimi, mom to 5 great kids, all with special needs, but we don’t focus on that.  We focus on their achievements, their triumphs and the love that they have for each other.  Sure, they fight just like any other siblings would fight but at the end of the day the love is still there for each other.  My oldest daughter is 24 and diagnosed with PDD-NOS (a form of autism) and is an unmedicated bipolar by her choice.  My next daughter is 22 and was born with Down Syndrome, hydrocephalus, PDD-NOS and acanthosis nigricans, she’s my spit-fire child.  Next is my soon to be 16 year old daughter who was born with spastic diaparesis cerebral palsy, she also has Asperger’s Syndrome, bipolar with psychosis, anxiety disorder and an eating disorder.  Next are my two boys, my first son is 10 (11 in June) and for some unknown reason he is cognitively impaired, he too has PDD-NOS and a mood disorder.  My youngest son is 9 (10 in June) and he was born with Fetal Valproate Syndrome, static encephalopathy (due to a traumatic birth), he has PDD-NOS and a mood disorder.

Raising special needs children has its ups and downs, but I wouldn’t trade my life for anything the world has to offer me.  My children are the reason my world rotates on its axis.  Some people call me a mother polar bear because I am so protective of my children, but who else is going to protect them besides me?

My boys are the best of friends, they are great playmates for each other and I hope and pray that the bond between them stays forever.  It’s similar to the bond between my 2 oldest daughters.  They are close because when they were young girls, I was a single parent by my choice, so it was just us 3 girls against the world.  Until I met my husband in 1994, Bethany was 6 and Lauryn was 4 and Jon has been their daddy ever since.

What entertains my kids?  Different things…  My boys are video gamers with their dad, they each have either their PSP’s or PSP Go’s or in Jons case his PSP Vita, but they all three will gang up on the bed and be gaming, ignoring everything else that’s going on, whereas Maurra my (almost) 16 yr old loves doing research on various things, which is very common for children diagnosed with Asperger’s Syndrome, right now she’s focusing on historical events.  Lauryn is crazy for Justin Bieber and loves to watch horror shows in her bedroom.  Bethany is my crazy football fan – well I’m pretty crazy for our Green Bay Packers also, so we tend to watch football together and we DVR the games so we can watch them through the week.

Our social outings look a little different than most.  First of all, my 3 youngest kids can’t handle car rides very well, so our trips have to be short in nature, and there has to be a reward at the end of the trip.  Lauryn enjoys going to her adult day program 4 days a week, but that’s about the extent of her traveling comfort.  She loves to dance in the truck which is fun and the cars around us seem to be her audience.  Bethany (my oldest) and I tend to do mother-daughter outings or she will go with me if I have to run errands.  It’s hard to break things up so the kids can handle everything, but in the end it’s for the best for them.

The boys are getting ready to start their 3rd year playing Miracle League baseball, which is baseball strictly for children who are disabled.  I volunteer my time with the league as the team coordinator and absolutely love watching all of the kids play the game.

Like I said before, I love having special needs children, and now we are looking into adopting a special needs child because there is more room in my heart for more children, but I can’t have them myself anymore.  So we are looking into a special needs adoption.  I hope it all works out for the best.

Well, thank you for letting me share my family with you.  Have a great day!

And thank you, Mimi, for sharing your family with us!

Mimi has a great blog at Wife… Mom… Writer… All Blessings. She can also be found on Twitter @Gigi_S.

Filed Under: 2012 Wordcount Blogathon, family, Guest Posts, life, parenting, Special Needs Tagged With: , , , , , , , ,
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Beyond The Stars

April 29, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 29 – Six sentence story: In this day of micro-blogging – brevity is a skill worth honing. Can you tell a story and make it short and sweet? What can you say in six sentences?

When my son George was diagnosed with autism, I didn’t really know what it meant or what he would ultimately be capable of.

I didn’t know what it would mean for my family, or for George’s sibling relationship with his little brother.

Since then, we have discovered that George has potential that reaches beyond the stars, and that all we have to do is help him get there.

We have discovered that he has a big  heart with an infinite capacity for love, and that he and his brother will be best friends for life.

There are challenges, and I worry about what the future could bring for my boy.

But I believe in him absolutely.

(Photo credit: http://www.flickr.com/photos/gsfc/5161800961/. This picture has a creative commons attribution license.)

Filed Under: autism, Believing, Brothers, Children, family, Health Activist Writers Month Challenge, WEGO Health Tagged With: , , , , , , , ,
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Dream A Little Dream

April 14, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 14 – My dream day: Describe your ideal day. How would you spend your time? Who would you spend it with? Have you had this day? If not – how could you make it happen?

Summer 2008

My perfect day…

It is a hot day and the sun is shining brightly. We are on a beach with lots of soft white sand, and the sound of the Atlantic waves fills our ears.

It is our first proper family holiday. I am with my husband and my two children, who at 2 and 4 years, are the perfect age for children to really enjoy a day at the beach. My brother is there too, and so is my mom, who has flown in from South Africa to be with us.

George, who is almost five, has found a new hobby. He lies down on the slope leading down to the water and he rolls himself down, down, down until he feels the waves kissing his body. Then he jumps up, and squealing with delight, he runs back up the slope to do it all again.

Not only is this fun for him, the physical motion of what he is doing seems to give him some kind of sensory input – something that many children with autism crave.

Two-year-old James and I are sitting near the water’s edge, and I am teaching him how to build a sand castle. I use the little shovel to put damp sand into the bucket. I pack it down as tightly as I can, and then turn the bucket upside down. I lift it off and we are left with a perfect tower for our castle. James stands up, and giggling like it’s the funniest thing in the world, he turns around and lets his bum go Plop! right on the tower.

“Again!” he shrieks, laughing so hard he can hardly talk. “Again, again, again!”

So we do it again. And again, and again, and again. We are not making any progress with the sand castle, but we are having a lot of fun.

My husband is in the water, doing battle with the waves. His life has not afforded him much opportunity to swim in the ocean – real ocean with big waves that raise you up and move with you and crash over your head. He turns and waves; I wave back and laugh as a wave hits him side-on, knocking him down.

I see my mom and brother in the distance, returning from a walk along the beach. They meander slowly to me, taking their time, and sit down beside me, James and George, who has finally tired of his roll-down-the-slope game. My husband comes out of the water and joins us. We discuss dinner plans, wonder whether we need to stop on the way back to the house for wine, and bury the kids up to their waists in sand, much to their amusement.

We are together. We are happy. We are family.

Later, as I am riding the waves, I think that there is only one thing stopping this day from being complete, and that is the absence of my dad. But then, as the ocean swirls around me – the same ocean in which Dad’s ashes were scattered thousands of miles away – I look around me, at the sunshine and the white beach where the people I love most are clustered around a smushed-up sandcastle.

As the laughter of my children floats through the air and reaches me, I think that Dad is probably with us after all.

(Photo credit: Kirsten Doyle)

Filed Under: Beach, Children, family, Health Activist Writers Month Challenge, Vacation, WEGO Health Tagged With: , , , , , ,
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My Favourite Things

April 13, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 13 – 10 things I couldn’t live without: Write a list of the ten things you need (or love) the most.

When people ask me what one item I would grab if my house was on fire, I never know what to say. I mean, who can pick just one? I’m a woman, for Pete’s sake. Women need stuff, just like they need chocolate. It’s a scientific fact.

So in my hypothetical fire, I’m allowed to grab ten things. How I will carry them from a burning building while I’m simultaneously ferrying my kids to safety is not a cause for concern. When my hypothetical fire breaks out, all of the items are easily at hand along with a large duffel bag, I have superhuman strength and an extra pair of arms, and my kids are being fully cooperative.

The ten things I would save from the fire (apart from my family, who technically are not things), are as follows, in no particular order.

1. My Garmin training watch and accessories. I love this gadget. It combines my love of running with my love of technogeeky things. It is the coolest device ever. I can go for a run anywhere in the world, and when I am within range of my computer, it downloads a nifty little map of where I’ve been. The desktop app also tells me stuff about my pace and heart rate, and that appeals to my inner math nerd.

2. My smart phone. This thing does almost everything a computer can do, only on a smaller display. It functions as a camera, a Skype interface, an e-reader, an email client, a music player, and many other things. To be completely honest, I hardly ever use it as an actual phone.

3. My laptop computer. I would be lost without my computer. Seriously. I do everything on there. I don’t know how people like my grandmother coped without technology. Sure, that generation may have been more resourceful and better able to cope in a crisis, but they didn’t have Facebook or the ability to connect online with fellow autism parents when things were getting too overwhelming.

4. My notebook computer. I know, I know. I have a large number of technology devices for one human being. But I love my notebook. It goes everywhere with me. It’s a great little device for writing and web-browsing when I don’t feel like lugging my full-sized laptop around with me.

5. My coffee machine, along with ground coffee and filters. Because, well, obviously. My house just burned down in a fire. I’m stressed. I think I’m entitled to some coffee, and if it’s late at night the coffee shops might not be open.

6. A selection of my older son’s Mr. Potato Heads. George would be at a complete loss without his Potato Head family. These little characters have been with him since he was first diagnosed with autism. They were the means by which he started to tentatively explore language, and they were the tool that my mom used to teach him his colours. As a child with autism, George does not play in the way other kids do, but when he’s got his Mr. Potato Heads, he’s in heaven.

7. A selection of my younger son’s Disney Cars cars. When James first saw Lightning McQueen, it was love at first sight. Thomas the Train and his friends instantly got relegated to the toy box. Now it’s all about Lightning McQueen, Mater, Finn McMissile and all the rest of them. James would be heartbroken if his Cars cars got burned up in a fire.

8. My favourite shoes. Those who know me well know that I hate shoes. They are uncomfortable and don’t look good on my ugly, non-dainty feet. Shopping for shoes to go with my wedding dress was probably the most stressful part of my wedding planning. The only shoes I actually like are my running shoes. My mantra is: There’s no such thing as “too many running shoes”. I would grab my favourite pair and rescue them from the fire.

9. My purse. You never know what will be in my purse from one day to the next. Delving into my purse is like going on a scavenger hunt. It has all of the staples, of course. A little bit of cash, drivers’ license, maxed-out credit card, and the most essential item of all – a tube of lipstick.

10. A clean pair of knickers. From the time I was a little girl, I was taught to always have clean underwear with me. If I was in an accident and I was wearing dirty underwear then, you know, what would the ambulance men say? I would hope that the ambulance men would have better things to do than inspect the state of my knickers, but the lesson stuck.  Besides, if my house has just burned down, I don’t want to be wasting time worrying about the state of my underwear.

What are your favourite things? Share in the comments!

(Photo credit: Kirsten Doyle)

Filed Under: Disney Cars, Electronic Gadgets, family, Favourite Things, Health Activist Writers Month Challenge, Mr. Potato Head, Shoes, Uncategorized, WEGO Health Tagged With: , , , , , , , , , ,
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Three Generations Of Cheese Lovers

April 12, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 12 – Stream of consciousness day: Start with the sentence “_______”just write, don’t stop, don’t edit. To select an opening sentence, I asked my Facebook friends to post suggestions. I put them all into a hat and drew one out!

How much do you really think about cheese?

Since I’m the second generation in what’s turning out to be a line of cheese-lovers, this is actually a valid pondering for me. Many of my musings about cheese are related to thoughts about my dad, with whom I shared many interests, like reading, running and yes, cheese. Going grocery shopping with him was a real treat, because the pair of us would spend ages at the fancy cheese display picking out our next great delicacy. Meanwhile, my mom would be sitting at home wondering what we were going to buy that would make the rest of the fridge contents smell funny.

One Christmas, when I was a young adult still living in the parental home, Dad received a cellophane-wrapped basket containing boxes of crackers and a variety of different cheeses. When I wandered into the kitchen a couple of evenings later, I saw Dad working away at the packaging of one of the cheeses.

“Would you like to try some Gorgonzola?” he asked me.

“Is the Pope Catholic?” I responded. Meaning, Yes please, I would love some Gorgonzola.

“Let me show you the best way to eat Gorgonzola,” said Dad, reaching for a cake tin on the counter.

Ten minutes later, Mom came back from wherever she’d been. She walked onto the front porch and saw Dad and I sipping glasses of red wine and happily munching on slices of Christmas fruit cake topped with thin slices of Gorgonzola. She was utterly horrified to see the Christmas cake she had worked so hard to make being defaced in such a manner, but it was absolutely delicious.

Now that Dad is no longer with us, I have no-one to share my love of stinky cheese with. Not yet, anyway. My older son George is a trainee cheese lover, but his autistic sensibilities limit him to plain old Cheddar. The smell, the taste, and frankly, the look of the fancy smelly stuff is more than a little off-putting to him. That’s not to say I haven’t tried.

“Do you want some cheese, George?” I asked him one day, holding my triangle of Danish Blue aloft as if it was an Academy Award.

He came closer to take a look, and then said, “That’s not cheese!”

Carefully hiding my excitement at this unprompted-yet-contextually-appropriate verbal utterance, I said, “It is! It’s blue cheese! Do you want some?”

George curled his little face up in an expression of distaste and issued his verdict.

“Yuck!”

And that was that.

Still, even though he only likes Cheddar, he likes it with admirable dedication. I have hope that, with a bit of time, we will make a cheese connoisseur out of him yet.

Filed Under: Cheese, Children, family, Father, Health Activist Writers Month Challenge, WEGO Health Tagged With: , , , , ,
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A Day In The Life

April 11, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 11 – Theme song: Imagine your health focus or blog is getting its own theme song. What would the lyrics be? What type of music would it be played to?

I confess that I had no idea what to do with this prompt. My writing skills do not extend to the lyrics of songs. That is my husband’s arena. Therefore, for today, I decided to use one of the bonus prompts:

Daily schedule: Write a list of your daily routine from the moment you wake up until the moment you go to bed. Be honest!

alarmclock

5:00  I wake up to the sound of the alarm on my phone. More often than not, I am on the futon in my living room with a small kid pressed up on either side of me (although it must be said that the small kids are getting less small by the day). Because I’m wedged in between my kids, I can’t simply grab my phone and throw it against the wall like I want to. It takes effort to extricate an arm. Often, as I’m reaching for the phone, I knock it off the table, and then I have to get out of bed – a supreme effort indeed – to pick it up and turn off the alarm.

5:15 I turn on my computer to check my email. I am dressed in my running clothes and I am waiting for the coffee to finish brewing. While I’m reading my emails my younger son wakes up. I get him a cup of milk and start preparing to leave, knowing that I will be delayed by my son’s constant chatter.

5:25  I kiss my older son goodbye. He is asleep, but he will know if I’ve left without kissing him goodbye. I field a gazillion questions from my younger son and eventually manage to escape. I sprint to the bus stop and make it with seconds to spare.

6:30  I arrive at work and head straight for the corporate gym in the bowels of the building. I dump my stuff in a locker, fill up my water bottle, and head out for a run. I’m still groggy and sleepy, but the first kilometre or so takes care of that.

8:00  I get to my desk, all showered and feeling good from my run. I drop my bag on my chair and go straight back out for coffee and a bite to eat. I bring it back to my desk and work until noon.

12:00 Lunch-time! I curse about having once again left my carefully prepared lunch in my fridge at home. I gather up my notebook computer, buy a random salad somewhere, and sit in the common room writing words.

12:30  Back to the grindstone.

2:45 Arrival of my mid-afternoon energy crash. I go out for coffee, and while I stand in the queue I stare at the display of donuts and cookies wondering if it would be OK for me to have one. By the time I get to the front of the line I’m so undecided that I don’t get anything except the coffee. Which is a good thing.

4:00  I pack up, log off, say my goodbyes to my co-workers and leave. I go to the subway station and position myself on the platform just where I think the train doors will end up. More chance of getting a seat that way.

5:30  I arrive home, lamenting the fact that once again, I did not get a seat on either the subway or the bus. I walk home from the bus stop, and stop to check the mailbox on the way home. I do so much stuff over the Internet these days that I hardly get any actual mail.

5:35  The husband and children, who get home before I do, have been standing at the living room window watching for my arrival. The husband opens the front door to release the kids, who run towards me in that joyous, unrestrained way that only children are capable of. I dump my bags, drop to my knees, and open my arms. My boys come hurtling into my arms and almost knock me backwards with the force of their love.  My cup overfloweth with happiness.

6:00 The kids were fed their dinner before I got home, and now the husband and I are cooking up something for ourselves. I enjoy the companionship as we chop vegetables together and chat about our days. I reflect on how fortunate I am to have a husband who supports me in my writing and my running, who accepts me for all of my weird little quirks, and who is the best dad ever.

7:00  Dinner has been cooked and eaten. I clean up the kitchen but don’t start the dishwasher – not yet. My older son, the one with autism, has a lot of angst where the dishwasher is concerned. I have only just gotten to the point where I can unpack and reload it without him completely melting down. Actually running it would be asking for trouble. Best to wait until he is asleep.

7:30  Bathtime for the kids. George goes in first, because he really doesn’t like being in a tubful of water. I soap him down and then, amid panicky cries of protest, I wash his hair. Like many autistics, he has a big problem with having his hair washed. James dives for cover, only emerging when George is safely out of the tub and in his pyjamas. James’ bath-time is a splash-fest. I have to keep a towel handy for myself, and I’m not even in the water.

8:30  The kids go to bed. George has done his homework (and got it right) in about three seconds flat. Bedtime milk has been consumed, stories have been read, hugs and kisses have been administered. I wait until George is asleep and then turn on the dishwasher. I make lunches for the following day and ensure that everyone has clean clothes to wear. I sit down at my computer and do whatever admin needs to be done.

9:30  My day’s work is done and now it’s time to reward myself. I pour a glass of wine, send my daily email to my mom, and waste time on Facebook. I complete and schedule any unfinished blog posts and start one or two new ones. Sometimes I abandon Facebook in favour of a nice soak in the tub. There’s something very decadent about sitting in a bubble bath with a book and a glass of wine.

10:00 I have a cup of tea with the husband and sigh dramatically as he channel-surfs. Why do men do this? Just as I’m getting into whatever happens to be on the channel gets changed.

10:30  I suddenly remember some crucial email or piece of admin that absolutely cannot wait until the following day. I turn on my laptop again to take care of it.

11:00 I fall into bed in a state of exhaustion, and fall into a fitful sleep that will, at least once, be interrupted by one of the kids needing something. Sometimes, I wake up to find one of them beside me. And I’m completely fine with that.

(Photo credit: http://www.flickr.com/photos/szift/3196084839. This photo has a creative commons attribution license.)

Filed Under: autism, Children, Commuting, Daily Schedule, family, Health Activist Writers Month Challenge, running, WEGO Health, Work, Writing Tagged With: , , , , , , ,
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A Letter To My Younger Self

April 10, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 10 – Dear 16-year-old me: Write a letter to yourself at age 16. What would you tell yourself? What would you make your younger self aware of?


Dear 16-year-old me,

I am writing to you from 26 years in the future. I am 42 years old, and a lot has happened in the last two and a half decades. The world is a different place now, and I have grown up a lot since I was – well, you.

I don’t want to tell you too much about the next few years of your life, because as painful as some of it will be, it wouldn’t be right for me to change it. I am who I am today because of some of that stuff. You have to live through it, knowing that you will survive your worst times and come out stronger for it.

However, there are a few things you should know, that will make it a bit easier for you to navigate the next 26 years.

1) You are not fat, no matter what anyone tries to tell you. You are a beautiful young woman, and this body image problem that you have is just going to cause problems for you later in life.

2) When you go to that birthday party that’s coming up and drink a truckload of beers, Mom will smell your boozy breath from a mile away when she picks you up. Especially when you open your mouth to make lame excuses for why you’re tripping over your own big toes.

3) When they bring in the school’s first computer later this year, pay attention to it and learn how to use it. Computers will become a massive part of your life so you may as well start now.

4) That hairdresser appointment you have next week? For the love of God, cancel it. Believe me, you do not want a perm. It will take the phrase “big hair” to a whole new level.

5) If you meet a good-looking guy in the hallway of the medical centre, don’t talk to him. He’ll just cause trouble for you. Don’t fall for his flattery.

6) You’re allergic to mangoes. Like, seriously allergic. If you avoid mangoes, you will avoid anaphylaxis and a trip to an Israeli hospital where they’re very nice but don’t speak good English.

7) Things will happen during your University years that will be very hard on you. You will not be as alone as you will feel, and if you ask for help, you will get it. Don’t try to go through it alone.

8 ) Just because one therapist is mean and judgmental, that doesn’t mean they will all be like that. Don’t try to deal with depression alone for twenty years before you get help.

9) Find out as much as you can about autism and take your first child for screening as soon as you see the signs. The doctor will try to get you to wait for another year. Don’t listen to him. Threaten to sit in his office gathering dust until you get a referral.

10) Post-partum depression is a terrible, scary thing, especially when it goes undiagnosed for over a year.

11) Take care of your feet. You’re going to be getting plenty of use out of them. When you really get into the running, your feet will not be your most attractive feature. Wear your callouses and blackened toenails with pride.

12) You don’t realize yet that you are a runner. When your inner runner emerges, go running with Dad every opportunity you get. Later in life, you will hold onto the memories of those runs like treasures.

13) You deserve happiness, and you deserve to be treated with true respect. Don’t settle for anything less.

14) Enjoy your sleep while you can. When you become a mother, you will yearn for it.

15) In a few years’ time you will go to Israel. It will be one of the best times of your life and you will meet some people who will become lifelong friends. Enjoy it and store as many memories of it as you can.

16) The degree you do at University will have no relation to your eventual career. That does not matter. The degree will be useful to you in other ways.

17) Spaghetti mixed with ketchup does not make a gourmet meal, and you will get some very strange looks if you make it for your parents as a special treat.

18) Don’t try going on antidepressants without the guidance of a therapist. As the depression lifts, some other feelings will emerge that will seem scarier. You will need help managing those feelings.

19) The person who has been your best friend since you were ten will still be your best friend when you are 42. Your friendship will survive a rift and you will be there for each other through many major life events. Treasure this friend, because she really is a gem.

20) Life is too short for bullshit. Don’t bear grudges, don’t procrastinate, and make the most of every opportunity you have.

21) Take care of your teeth. When Mom lectures you about flossing, she’s right.

Enjoy your youth, Younger Me. It will be gone all too quickly, and you want to have some good memories of it to carry you through the darker patches of your life.

I’ll see you in 26 years’ time. Enjoy the ride!

Regards,

Older You

Filed Under: Advice, autism, family, Friendship, Health Activist Writers Month Challenge, Memories, Mental Health, running, WEGO Health, Youth
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Superhero Wannabe

April 3, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 3 – Superpower Day: If you had a superpower – what would it be? How would you use it?

superhero

A couple of weeks ago I posted something on Facebook about a long training run I had just been on, and one of my friends responded by asking if I run while wearing a cape and a big “S” on my shirt.

Well, no I don’t. It would be highly uncomfortable and let’s face it, people would stare. I don’t want to be responsible for any traffic accidents. And besides, being a distance runner might set me apart in some small way from non-runners, but it certainly doesn’t make me a superhero. If I was wearing an “S” on my shirt, it would stand for “sweaty”.

But what if I was a superhero? What if I could choose any superpower I wanted? What would that superpower be and how would I use it?

As an autism mom – indeed, as a plain old mom – there are so many areas in which I feel woefully inadequate. There are so many things that I wish I could do better, or faster, or with less grief. There are, of course, things I would like to do that in the real world are simply impossible.

And now, for the purposes of this article, I have to choose just one superpower.

The ability to cure autism? This may seem like the obvious choice, but it is not what I would want. If I cured my son of autism, I would be changing who he is. And while I am on a permanent quest to help him with the aspects of autism that cause him pain and frustration, I would never, ever want to change who he is.

What about bottomless reserves of patience? Those who know me well know that I am don’t exactly have a Zen-like aura of calm about me. I tend to get a little fraught at times. But changing that would surely change who I  am, and while I would never claim to be perfect, I’m reasonably OK with the person I am.

No, the superpower that I would order would be the ability to instantly soothe my children. At a touch, I would be able to calm my son from his meltdowns, and in the midst of his inability to communicate that causes him such frustration, I would make him feel safe and secure. I would brush my hand lightly on his forehead, and immediately, he would know that everything is OK, and inner turmoil he was feeling would disappear.

I would use this superpower on my younger son as well. The neurotypical child, the sibling to the special needs child. The one who, while knowing that his brother is different and needs special care, sometimes feels overwhelmed by it all. It is a rough deal, being the brother of a child with autism. My two boys unquestionably love each other, but still, it is hard for the sibling.

With my superpower, I would soothe my younger son when things got too much for him. When something happened that he perceived to be unfair, I would gently stroke his hair, and he would instantly feel a sense of calm. He might not fully understand his brother’s autism, but he would feel that everything was right with the world, and he would feel the love that we all have for him. He wouldn’t feel overwhelmed, and above all, he would know that his brother adores him and never, ever wants to hurt him.

I strive to make my kids feel these things – usually, it just takes longer than I would like.

(Photo credit: http://www.flickr.com/photos/globalismpictures/5723668328/. This picture has a creative commons attribution license.)

Filed Under: autism, Brothers, Emotional stability, family, Health Activist Writers Month Challenge, parenting, Siblings, Special Needs, Superhero, Superpower, WEGO Health Tagged With: , , , , , ,
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